Jump to content

pain*in*my*gut

Advanced Members
 View Profile  See their activity

  • Posts

    186

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by pain*in*my*gut

  1. pain*in*my*gut
    Your AST is not that high (5-40 is usual normal range). That could totally be from a random virus (this happened to me about a year ago...my doc checked it again the next month and it was normal). Your doc needs to properly evaluate the cause of the elevated AST instead of just jump to conclusions. I would be pretty angry and be looking for a new doc...
  2. pain*in*my*gut
    The last part is the test for the endomysial antibody (a very Celiac specific marker)...you were negative. The second test was for IgA deficiency (immunoglobulin, A, quant). Yours was in the normal range, which just verifies that the other IgA mediated tests are accurate, and not falsely neg due to IgA deficiency. Hope this helps!
  3. pain*in*my*gut
    There are many, many reasons for elevated liver enzymes. Yes, alcohol abuse is one possibility, but other causes are obesity, diabetes, certain medications and viruses. Celiac disease and the other inflammatory bowel diseases can also cause liver enzyme abnormalities, but they usually are not a severe as the other causes. How elevated was your SGOT...
  4. pain*in*my*gut
    Yes, if you plan on getting tested, you need to be eating gluten for at the very least 6 weeks (most docs say 3 months)!
  5. pain*in*my*gut
    It can take weeks (or even longer) to recover from a really good glutening (which it sounds like you had)! I hope you had a good time eating all that yummy stuff....sorry you are paying for it now!
  6. pain*in*my*gut
    DGP is a new test. It has replaced the Anti-gliadin tests by many doc and labs because it is more specific to Celiac. This is from the Mayo clinic site: Testing for IgA and IgG antibodies to unmodified gliadin proteins is no longer recommended because of the low sensitivity and specificity of these tests for celiac disease; however, recent studies have...
  7. pain*in*my*gut
    YES! I saw my eye doc a month ago and told him about the floater in my right eye and he said there was nothing there. Well, I am looking at it right now, right in the middle of my vision field! It comes and goes, too. And the flashes of light, like a spark, happen to me every day. When I was gluten free for 2 weeks before I started my challenge, it...
  8. pain*in*my*gut
    When you mention "Celiac Test" do you mean biopsy or blood work? False negatives are possible on both. Also, if they found inflamation in your lower small intestine, what do they attribute that to? It sounds like you could have some kind of inflamatory bowel disease for sure (maybe made worse by a gluten intolerance?), especially with the positive SSA...
  9. pain*in*my*gut
    Yep, those are positive all the way....you are one of us. Jump in the pool...the water is nice and warm (and gluten-free)!
  10. pain*in*my*gut
    Your question makes a good point about the accuracy and false negative possibility of a biopsy. The biopsy done to dx Celiac disease is done on the upper part of the small intestine, which is usually the first part of the intestine to become damaged by Celiac disease. But what if it's not? What if the damage is in the jejunum, where the scope cannot reach...
  11. pain*in*my*gut
    Wow...that's a huge weight loss, hun! When you say you were retested on friday, do you mean blood tests? Hopefully you will get some answers, but even if they are negative, you should still give the gluten free diet a good try (2-3 months). Sometimes gluten intolerance doesn't show up in your blood work, but it still wreaks havoc on your body. Definately...
  12. pain*in*my*gut
    K-Wylee...thanks for posting this. I have been trying to wrap my head around Celiac vs. non-Celiac gluten intolerance. This sums it up perfectly! OP...you don't say if you have been tested yet. That could shed some light on your situation.
  13. pain*in*my*gut
    Holy Cow, we could be twins!! I have all of those symptoms from gluten (except the head sores...I get mouth sores)! My biopsy is the 9th, and like you, I don't care what it says....I am going gluten free. I look at it this way...at least we know we will feel better! We know we will get better as soon as we stop poisioning ourselves. For so long I...
  14. pain*in*my*gut
    When I had my positive blood results, my GP called me and told me to start the gluten free diet immediately (wish I hadn't, then I wouldn't have had to do a challenge ). I was starting to feel better on the diet, which gives me hope that I will feel really great once I drop gluten for good. I have been back on gluten since the beginning of August, but...
  15. pain*in*my*gut
    Ditto. You have Celiac disease. Plus, you need a new doc.
  16. pain*in*my*gut
    Well, this is it....my last week of eating gluten. I went to the store today and bought all my favorite gluteny things (loaf of french bread, black licorice, beer, sweet rolls, frosted mini wheats and cupcakes). I will probably be sick as a dog by Friday (if I make it until then). I want to be good and glutened for my biopsy! The last month that...
  17. pain*in*my*gut
    For some people (like me), your reactions to gluten can be different every time. I can eat a ton of gluten and be sick as a dog (bloating, nausea, cramps), then the next day eat a ton more of gluten and have nothing but fatigue and tingling hands and feet. Then I can also have no issues at all (which is rare these days, but it has happened).
  18. pain*in*my*gut
    I start to get really gassy and have lots of churning going on. I know when I start to feel that way, I need to be prepared to find the nearest bathroon ASAP. I also feel sleepy, to the point I feel drunk. Sometimes I get tingly in my hands and feet, sometimes my tongue tingles.
  19. pain*in*my*gut
    Hi! It's not clear to me from your post if you are planning on self-diagnosis or getting actual testing done. If you are going to get the blood tests and/or biopsy, you will need to be eating gluten for at the minimum 6-8 weeks ahead of time (most docs prefer 3-4 months to avoid false negative test result). There is no official amount of gluten you...
  20. pain*in*my*gut
    I would go for the biopsy if I were in your situation. I think it would be useful info to have if the damage to your intestines is severe (which it sounds like the blood test results might indicate). The endoscopy is pretty simple, and if you have insurance it will be covered. And yes, get a copy of your lab results. I have often thought about contacting...
  21. pain*in*my*gut
    Hi Sharon! If your blood tests are positive, most docs will want to do a scope for a "proper" dx. It's not a colonoscopy, but rather an endoscopy (they put a tube down your throat, insted of the other end, and take samples of your small intestines). It is much easier than a colonoscopy. But it is totally up to you if you want to do it or not. This...
  22. pain*in*my*gut
    Everybody has given you great advice, I don't have anything to add other that I can totally relate to wanting a solid dx. You are NOT crazy (cuz if you are, then so are the rest of us who are trying to figure out what the heck is wrong)!
  23. pain*in*my*gut
    This, exactly. I can totally relate to wanting something on paper with a name that I can say "this is what I have". I am in the medical field, and that is what we try to do, give people a diagnosis. But it's not always black and white. Sometimes, we have to just go with our gut (bad pun intended)! Welcome!
  24. pain*in*my*gut
    There are many autoimmune diseases that can still be present in the absence of positive blood work. It's called being "sero-negative" for that particular disease. Celiac is one of them. Is it likely? No. But gluten intolerance is very possible, and your bloodwork will not necessarily tell you if you have that. I am reading a good book right now about...
  25. pain*in*my*gut
    Yes, your blood work is normal, but you may still have gluten issues. Try going gluten free for a month or two and see how you feel. You might be pleasantly suprised! Remember, you don't need a doctor to tell you that you have a problem with gluten. Your body will tell you that all by itself!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.