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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by tiredofdoctors
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Sounds like you're on the right track . . . don't you hate it when you find stuff out like that AFTER you've had it for awhile . . . I always think: "The doctor should have known that . . . if it's common knowledge, then I expect them to have it memorized!!!"
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ARCHIVED The Endoscopy Went Great!
tiredofdoctors replied to shai76's topic in Parents, Friends and Loved Ones of Celiacs
I'm really glad it went well. It's never silly to worry about your child . . . no matter what. That's what mom's do best, somtimes!!! -
Looks like 277 isn't good AT ALL. Funny, that's around what mine was when one doc said I was "fine". Hmmmmm.......
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I have pernicious anemia, too . . . didn't want to scare her. I'm still not sure about my levels on the sublingual . . . am going to the endocrinologist to see how they are. May have to go back on injections, but hope not . . . I have a factor VIII deficiency, and so when I'm on the injections, my legs look like a kaleidoscope of different shades of bruising...
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I have these symptoms, but I really don't have typical celiac . . . I DO know that Freeda vitamins are gluten-free, yeast free, everything-free(!) and they have a sublingual B12 -- I take it now. I used to do B12 injections. At one point, I had to give them to myself daily, but then they got the level to the point that I could go to weekly, etc., and now...
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Glad you're going to find someone who listens . . . it really makes the whole process a LOT easier. It's scary enough as it is when all this bizarre stuff is going on with your body. Then, to have a doctor who acts as if he doesn't give a rat's fanny is just so disheartening. Good luck -- I'll be sending "find a good doctor vibes" your way!!! Hugs...
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ARCHIVED A Most Icky Way To Treat Crohn's
tiredofdoctors replied to RiceGuy's topic in Related Issues & Disorders
Hey Patti . . . . went to that thread, then the site -- No, that wasn't it . . . I actually went to a site where you could purchase the things . . . they described in detail how they sterilize them (I think three times . . not sure . . . ), how they're packaged, etc. There's an entire site devoted to the information and purchase. It's kind of cool, really... -
I agree. Gluten actually affects only my brain (long story), but I can definitely tell a difference when I accidentally get "glutened". The thing about gluten-free is that it is all or nothing. You can't just do it "a little". I would recommend you get the book "Dangerous Grains" by Dr. Peter Greene. It has really GOOD information for someone newly diagnosed...
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ARCHIVED Rosacea--now I've Got It
tiredofdoctors replied to jenvan's topic in Related Issues & Disorders
I do the same thing . . . debit card . . . don't want to get myself in charge card hell!!!!! -
ARCHIVED Rosacea--now I've Got It
tiredofdoctors replied to jenvan's topic in Related Issues & Disorders
I got the travel kabuki brush last year with a set -- talk about a difference when you're applying the foundation -- MUCH better coverage. The brush I'm talking about is the smooth, flat one that is tapered . . . I think it might be called the "full coverage brush" -- in fact, I think that's what it is . . . I have trouble with word recall because of this... -
ARCHIVED Rosacea--now I've Got It
tiredofdoctors replied to jenvan's topic in Related Issues & Disorders
Oh, Patti -- I'm trying not to become a QVC junkie, but I'm telling you, it's getting bad . . . will have to get the lip venom, now!!! I use the Bisque before I use the foundation, too. My "nasolabial folds" (around my nose) are pretty bad, so I use the (can't think of the name, sorry) -- it's the brush that's flat and REALLY applies it to that area.... -
ARCHIVED Panic, Anxiety...
tiredofdoctors replied to gabrielle's topic in Related Issues & Disorders
I think that if you are diagnosed with a chemical imbalance in your brain, it is perfectly natural to take a medication that will help regulate that imbalance. If you were diabetic and the physician prescribed insulin, you would probably take it, right? Even if it's only for a temporary period of time (usually psychiatrists think of "temporary" as at least... -
ARCHIVED Rosacea--now I've Got It
tiredofdoctors replied to jenvan's topic in Related Issues & Disorders
Hey Jen! You didn't notice my rosacea because of the Bare Minerals!!!!! It covers EVERYTHING!! Anything that is going to make you vasodilate (heat, alcohol, spicy foods), is going to make you flush . . . Not going any further than that, because I don't want to get in trouble . . . as you know, I'm trying to be on my best behavior. So, after a workout... -
I had hypothyroidism for years . . . I started with a goiter when I was 13, but no one did the testing for Hashimoto's until I was 42, because my levels were Okay as a teen, but started with hypothyroidism in my 30's. I had to change endocrinologists because of insurance . . . he told me that you don't take thyroid medication to control the size of a goiter...
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ARCHIVED A Most Icky Way To Treat Crohn's
tiredofdoctors replied to RiceGuy's topic in Related Issues & Disorders
I don't know where it was, but I read a much larger article on that . . . they don't actually give you the worms . . they give you the eggs. They eggs have some effect on the gut that they reduce the inflammation. I can't remember where I saw it -- I know it was on the web, but it was the entire study. It actually made sense. You purchase the eggs, keep... -
ARCHIVED For Those Who Are gluten-free But Tested Negative....
tiredofdoctors replied to jayhawkmom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You go girl!!! That Iron Fist comes in handy when it has to do with keeping your kids well!!! I thought the same thing about the endoscopy since my bloodwork was negative, but if I had to do it again, I would STILL have it done . . . it is the definitive test. And yet, I still think that if you FEEL better gluten-free, that is more of an indicator than... -
ARCHIVED Rosacea--now I've Got It
tiredofdoctors replied to jenvan's topic in Related Issues & Disorders
Hey Jen -- I have it . . . that's what they make "Bisque" for!!!!! It's the best! I've had rosacea for about 16 years now, I think? I've tried all the stuff . . . the PA that I saw started telling me that my skin was getting dangerously thin from the topical steriods I was using . . . some of the other prescription stuff was just too harsh for my skin... -
ARCHIVED Is There A Gluten-free Ramen Noodle Out There ?
tiredofdoctors replied to HelpingMyCeliacMother's topic in Gluten-Free Foods, Products, Shopping & Medications
I use Thai Kitchen noodles, as well -- hey Broncobux!!! I think they're pretty good . . . and great when you need something fast! I buy mine at Meijer -- a chain that we have here. Don't know if Kroger keeps them in stock, but I'll look the next time for you . . . . Lynne -
ARCHIVED For Those Who Are gluten-free But Tested Negative....
tiredofdoctors replied to jayhawkmom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am negative for everything Celiac except for Antigliadin antibodies . . . those bad babies are destroying the cerebellum of my brain, so I choose to be gluten free -- forever! I had a wheat allergy as a kid, but it wasn't that severe, and we had never heard of Celiac . . . and, as an adult, didn't know that I could develop antibodies only to gliadin WITHOUT... -
ARCHIVED My Psychologist Is Interested In Celiac Connection
tiredofdoctors replied to Nantzie's topic in Coping with Celiac Disease
You guys . . . wow . . . your strength is amazing. Ravenwoodglass -- you amaze me. What strength of character you have. I had no idea that you had struggled the way in which you had. Isn't it AWFUL what gluten can do to you??? With regard to the neurological manifestations: Those are the only ones that I have. I don't have the big D, in fact, I have... -
ARCHIVED Any "home-canners" Out There?
tiredofdoctors replied to jenvan's topic in Introduce Yourself / Share Stuff
Okay -- 3 replies: 1) Kabowman -- those nitrates are bad babies. I'm telling you what -- we avoid them at all costs. with regard to the squirrels, believe it or not, we can't even hit the stupid things with pellet guns -- not even PAINTBALLS! I asked my son if I could borrow his pellet gun or paintball gun, and he said that if I hit one and killed... -
ARCHIVED Toronto, Canada
tiredofdoctors replied to happy4dolphins's topic in Traveling with Celiac Disease
Don't know anything (yet) about travelling in Canada, but someday I WILL see a Mapleleaf's game -- IN PERSON! -
ARCHIVED Fatigue And Sprue
tiredofdoctors replied to sillyyak's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I used to give myself injections. I started with having to have one every day for a month, then down to every other day, then down to once a week. Once my levels straightened out, they've done pretty well. You can also take B12 by mouth, but it has to be done under your tongue. B12 is pretty much completely destroyed by the acid in your stomach. If... -
ARCHIVED I Hate This Disease
tiredofdoctors replied to tiredofdoctors's topic in Coping with Celiac Disease
Lisa -- Nope -- I live in Louisville, KY -- but I don't care. Neither does my DH. Just need your number so that I can call you! I think he's getting used to high phone bills! Have met a friend of two who is long distance, or VERY long distance!