GlutenDude

Celiac diagnosis in Fall of 2007. Massive pulmonary embolism in fall of 2008. The ironic thing is that I just asked a similar question on my blog today about other diseases of celiacs and a few people came back with blood clots. We have a lot to learn about celiac still.

Hang in there Lincoln. I think we all go through stretches like the one you're going through. It passes. I've been a celiac for five years and the first three years were hell. But it does get easier and before you know it, it becomes...normal. Yeah, it's a pain in the neck still and yeah I wish I didn't have celiac, but at the end of the day, there are worse...

I always tell people not to worry about me. Simply because even though their intentions are good, it is much better when I'm in control. I actually hate all the attention that celiac brings. Honestly, we can talk about other things then what I can and can't eat.

Bad news first: no beer. Yep...that hurts. Though some decent gluten free beers are coming to the market. And I would avoid most liqueurs. Good news: most liquors are safe (vodka, rum, gin, tequila, scotch, etc). And wine is also safe.

This frustrates me to no end! Does he not understand the seriousness of the disease? I wrote a post on my blog on the lack of spousal support and how it makes things so much more difficult. You need to change his way of thinking immediately or your daughter will suffer. Arghhh!

Tried a new stuffing recipe. The flavor was great. The consistency was a whole different story. Used Udi's bread and it just didn't hold together. Felt like I was eating a rice stuffing. But all in all...a great day.

The death of spontaneity when it comes to eating.

Laziness. That's what I attribute it mostly to. I was unbelievably lucky to have a GI that diagnosed me immediately. It helped that I kept a food journal for a few weeks beforehand (pasta, bagels, pasta, bagels, LOL). But the more I go see doctors, the more I'm convinced the majority of them (not all) are too dang lazy to put the effort in to get an accurate...

Hi Bella. It sounds familar, but one thing about celiac...there are no "standard" symptoms. Everyone seems to have their own story. Please get yourself to a qualified GI (who is familiar with celiac) as soon as possible. And keep eating gluten until you get tested. Good luck.

Yes...your doctor messed up. You cannot be gluten free prior to the blood work or the results will not be accurate. You need to make sure you have gluten in your system. It is amazing to me the number of horrendous doctors out there. What is the "gluten challenge"? Do you mean just staying off gluten?

Hi Rachel. So sorry to hear what you are going thru. Not sure what your doctors are doing. If they suspect celiac, they need to get you in for an endoscopy and blood work immediately. Those are the ONLY two methods to diagnose celiac disease. If you don't have celiac, then you will obviously need more testing. If you do have it, then you need to stop eating...

Patience. Patience. Patience. When I was first diagnosed, I read all the stories how people stopped eating gluten and felt better immediately. So I expected it to happen to me. But, alas, it took me a few years to really start to improve. Just keep being extra careful about what you eat, exercise when you can and in time, your body will begin to heal.

I would stay away from anything with the word "bar" in it unless it's serving alcohol. Way too much risk of cross contamination. Too many hands in all of the items if you know what I mean.

That's good advice and I certainly didn't try to minimize it. As a matter of fact, I'm one of those who is out of commission for some time if I get glutened so I hope I didn't come across flippant. Always err on the side of caution, but don't become a hermit for fear of getting glutened.

I agree! I've been with celiac for five years and in the last month I've given up both dairy and soy. Definitely feel a bounce back in my step.