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squirmingitch

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Everything posted by squirmingitch

  1. squirmingitch
    Sigh. I'm sorry you went through a false biopsy. Doesn't it just kill you?! Here's hoping for Pittsburgh! Please let us know what happens.
  2. squirmingitch
    Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Deamidated Gliadin Peptide (DGP) IgA and IgG Total Serum IgA Also can be termed this way: Endomysial Antibody IgA Tissue Transglutaminase IgA GLIADIN IgG GLIADIN IgA Total Serum IgA Deamidated Gliadin Peptide...
  3. squirmingitch
    Bravo for you shining more light on this situation!
  4. squirmingitch
    Laughter is what will get you through this. That & an IRON resolve not to let ANYONE make you feel awkward about not eating something. I don't care if that is your own mother & she spent 14 hours preparing something especially for you. YOU are the ONLY gatekeeper to your good health. Stand your ground hon & stand tall & implacably. You are...
  5. squirmingitch
    I'm sorry and I'm not being combative here but I really don't understand what the purpose of your post was. What exactly are you asking? Since you are so confident & defensive of your GI doc despite all the current recommendations in the UK, Oz, the US & so many other places then why are you freaking out?
  6. squirmingitch
    You've been given some great advice! I will only add that you couldn't EVER pay me enough to eat ANYTHING at Cracker Barrel!!!!! That is a place rife with flying gluten. Seriously! I don't care that they have any "gluten-free" items on the menu. I've never been in a Cracker Barrel that wasn't clogged with diners. They have to work FAST & FURIOUS...
  7. squirmingitch
    Reason to go for an official diagnosis is your future & that of any kids you may have. Celiac is genetic. If you do have celiac then all first degree relatives should be tested every 2 years in the absence of symptoms & immediately if symptoms present. Celiac can present at any age. It will be MUCH easier for your kids & other relatives to get...
  8. squirmingitch
    I am allergic to sulfa drugs & never tried Dapsone for that reason & a few other reasons. You say it is suspected you have dh. Have you had a dh biopsy? There are some other drugs that I have read can be used but are not as effective as Dapsone or sulfa drugs. They are in the tetracycline class. I don't know the dosing. Watch your...
  9. squirmingitch
    Good question!!!!
  10. squirmingitch
    You are so welcome Jammy! It's interesting how many of us find that after eating non processed foods for a while; when we do get around to eating them we are turned off to the max.! I find even the smell of them disgusting. I liken it to cleansing the palate. Once you do, you never go back. You might consider subscribing to The Gluten Free Watchdog...
  11. squirmingitch
    In light of the studies that found some probiotics that are labeled gluten-free yet tested over 20ppm I wouldn't touch them. Now those would be the powder or pill forms. Yogurt is not affected by that. Since you don't have a problem with dairy then I would say eat some yogurt every day. I like Chobani Greek because it has more kinds of cultures. Remember...
  12. squirmingitch
    You are most welcome Jammy! Glad to hear the fruit is working out for you. BTW, you can actually freeze omelets. I do it all the time. I make more than we will eat & then freeze what's left for a quick snack or meal in future. All you do is nuke it to heat. Also look up Frittata recipes. Make them up in muffin tins. Freeze & then nuke when you...
  13. squirmingitch
    Okay then you have a clean grain mill & can go to town. I have only done rice in mine because I found that either my husband or myself don't really car for the consistency or flavors imparted by things like coconut flour, nut flours, pea or bean flours. Mostly the hubs is the big stick in the wheel. I like nut flours but he doesn't. For rice flours, I...
  14. squirmingitch
    The very first question is.... Was that Retsel grain mill used for gluten before your diagnosis? If the answer is yes then the 2nd question is can it be COMPLETELY DISASSEMBLED and cleaned in every single nook & cranny? If the answer to that is no, then you can't use that grain mill because you will be continually cross contaminating yourself. ...
  15. squirmingitch
    Boy, you've sure had a rough time of it! My heart goes out to you! I love your positive attitude about coping until your villi heal more. THAT is your greatest ally in this journey. Okay, now to your problems...... Your gut is still damaged. You aren't healed yet - you know that as you've stated it. It can be really wonky for the first 6 months...
  16. squirmingitch
    Okay, this makes more sense now. Was the celiac test in 2014 part of the checking to find out what was wrong with you which resulted in the Barrets dx? NO, a colonoscopy will not diagnose celiac disease at all. The biopsies for celiac disease are taken in the small intestine not the colon. You need to get your records, both past & present....
  17. squirmingitch
    BTW, all first degree relatives of celiacs are supposed to be tested for celiac every 2 years in the absence of symptoms -- immediately if symptoms present. Your kids, your parents & all siblings should be tested. And that goes for your brothers kids too.
  18. squirmingitch
    I agree completely with cyclinglady! Do you even know that there is such a thing called silent celiac? No symptoms at all but the villi are damaged. I see you joined in 2009. Why? Is that when your brother was diagnosed? IMHO you need to do a lot of research & find out just exactly what you're risking.
  19. squirmingitch
    What were they looking for when they did the endoscopy? This is all backwards. You usually get a blood test first & then if that's positive they do an endoscopy. Did they tell you to make sure to continue eating gluten until the blood test is taken?
  20. squirmingitch
    No one can say exactly how long you might be able to get a positive dh biopsy after having been gluten free as long as you have been. The Chicago Celiac Disease Center says this: Open Original Shared Link Open Original Shared Link You said you had a flare of the plaque psoriasis -- that is NOT dh so why do you think the dh biopsy will show...
  21. squirmingitch
    Ditto what Christiana said.
  22. squirmingitch
    Absolutely, absolutely, absolutely!!!!!!! Your doctor seems to think all her villi have to be completely wiped out for her to be celiac. Like cyclinglady says.... get the records & get a second opinion. BTW, I happen to agree with all the rest she said too but I just wanted to emphasize the second opinion part.
  23. squirmingitch
    Thanks for posting that! It looks very promising.
  24. squirmingitch
    Ditto this!
  25. squirmingitch
    Some other boxed mixes that I think are worth it are Open Original Shared Link Open Original Shared Link We didn't care for any of the other Namaste products but the Spice Cake IS very good. Against the Grain Gourmet Frozen Pizza is really good! I hope you can find it at your local stores. BTW, when I made breads of any kind...
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