
Aly1
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Aly1
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ARCHIVED Pls Recommend A gluten-free Flour
Aly1 replied to Aly1's topic in Gluten-Free Foods, Products, Shopping & Medications
Thanks for these replies! I will give them a try. -
ARCHIVED Help Healing After Accidental Glutening
Aly1 replied to Darwin's topic in Coping with Celiac Disease
I've seen some posts where people talked about using charcoal pills (??). I am curious about this too. Anyone? -
ARCHIVED Pls Recommend A gluten-free Flour
Aly1 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I want to start making muffins and pie crusts but am reacting to Bob's, presumably from the oats cc. Can anyone recommend a product where this isn't a concern? -
ARCHIVED New To Gluten-Free Diet In Addition To Other Food Allergies
Aly1 replied to Michelle L's topic in Gluten-Free Foods, Products, Shopping & Medications
I am in a similar boat - I can't have dairy, corn, sugar, eggs, and I react to oats. And there are very few gluten-free foods that don't contain one of those! I don't know what to eat for breakfast either, the idea of meat and veggies at that hour is gross to me, and fruit doesn't give me enough to go on. The one thig you might try is nuts (I find I am reacting... -
ARCHIVED I Got Sick On Bob's Red Mill gluten-free Apple Muffin Mix
Aly1 replied to Aly1's topic in Gluten-Free Foods, Products, Shopping & Medications
I do have an issue with certified gluten-free oats so that must be it! Thank you! -
ARCHIVED I Got Sick On Bob's Red Mill gluten-free Apple Muffin Mix
Aly1 replied to Aly1's topic in Gluten-Free Foods, Products, Shopping & Medications
Hmmm...my hubby used canola oil. I did not have an immediate reaction, but ate 2 batches (!) in about 3 days. I am trying to gain weight so I was being a piggy . It didn't actually feel like typical glutening though (and I got a lot of heart palpitations which I don't think has occurred with gluten), so maybe it is a different allergen. Felt horrid though... -
ARCHIVED I Got Sick On Bob's Red Mill gluten-free Apple Muffin Mix
Aly1 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I love their stuff! But I've eaten a ton of the muffins we made in the past week and I've been getting sicker and sicker. Am wondering if I have a sensitivity to one of the other ingredients or if others have had problems with Bob's? I keep glutening myself (or whatever reaction this is) while trying So Hard not to. Getting grumpy. -
ARCHIVED Heart Palpitations/ Tachycardia
Aly1 replied to peeptoad's topic in Related Issues & Disorders
I've been getting them when I get glutened but that's about it. Is it possible you have cc issues of some sort or are being glutened somewhere? -
ARCHIVED Me And Sister Feel Absolutely Terrible
Aly1 replied to Chalula88's topic in Coping with Celiac Disease
Oh I hate my auto-correcting iPhone. That's supposed to say be mindful of..! -
ARCHIVED Me And Sister Feel Absolutely Terrible
Aly1 replied to Chalula88's topic in Coping with Celiac Disease
For soup and othe ideas, check out allrecipes.com. Be mo drum of ingredients (it's just a general site after all, but you will get ideas on how to make things naturally and tasty (again - skip the recipes that use processed ingredients and stick to the basic ones. -
ARCHIVED Me And Sister Feel Absolutely Terrible
Aly1 replied to Chalula88's topic in Coping with Celiac Disease
Please note, the sugar intolerance I mentioned in my post has nothing to do with refined vs unrefined sugars. If I only cut out refined sugars but continued with the other types, I'd still feel like hell and would think sugars weren't the culprit! If you do decide to do a sugar challenge, get rid of them ALL (easiest way to figure out what is ok is to only... -
ARCHIVED Just A Vent- In Laws Are Making Fun Of Celiac
Aly1 replied to MitziG's topic in Coping with Celiac Disease
I will never get why people are so opiniated about things they don't know anything about. My mom knows first hand about the impact of diet in how one feels (she has sugar intolerance issues) but when I told her we were going to do a gluten-free trial with my daughter to see if she's affected, she said Why would you want to do that to her? Um, what?? I told... -
ARCHIVED Is There A Difference Between Celiac Disease And A Gluten Intolerance?
Aly1 replied to charlotte-hall's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I have done a lot of reading lately and from what I gather celiac and gluten intolerance fall under an umbrella condition (the name they are calling it escapes me). Celiac and GI are just different manifestations of the same thing. Celiacs very specifically have damage to the villi - people with GI do not but have very real gluten-induced symptoms. -
I am having palpitations this week, associated with a glutening. I've had palpitations for years, and saw a doctor for them. The truth is, most palpitations are nothing to worry about - it's the odd case where they are linked to a serious condition. With me they did a 24-hr holter monitor test on me and ended up telling me I was fine. The only reason they...
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ARCHIVED No Villi Visible After gluten-free For Over A Year?
Aly1 replied to HS7474's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You are getting lots of good advice... You mention that you drink distilled alcohols. I can't tolerate those, despite the claims that they are okay. Maybe avoid that for now and see...I now drink potato vodka which has been fine. -
ARCHIVED Me And Sister Feel Absolutely Terrible
Aly1 replied to Chalula88's topic in Coping with Celiac Disease
I've got to say, you have a lot of processed food there, any or all of them could have cc issues. I react to so many processed foods it isn't funny. :/ The latest is Bib's Red Mill apple muffin mix. I'm at the point where i won't even eat the almond butter i have bc i am reacting to everything and don't know what is safe anymore. Please take the advice... -
We went to Disney a couple of months ago and in my experience they were great and very attentive regarding gluten free diets. Whenever you arrive at a food place, start off right away saying you need gluten-free - at one place that resulted in me having my own personal server who liased with the chef. They appeared to be very knowledgeable and attentive....
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ARCHIVED Told you don't have celiac, but do?
Aly1 replied to lakb706's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It IS hard to avoid gluten even with all the so-called "gluten free" items on the market. So far I'm having a pretty high failure rate, I react to a lot of the stuff on the market. The one tried-and-true things is to go back to the basics and just cut out all processed food until you are feeling good and your symptoms are stable - then try one processed item... -
ARCHIVED Need Advice Re. Toddler Going Gluten Free...
Aly1 replied to Aly1's topic in Parents, Friends and Loved Ones of Celiacs
Oh, you hit the nail on the head. I wonder how different my life would have been if I'd never touched gluten. Three months? Ugh. Then we will consider doing that. Before going gluten free I could not tell at all if I had it (well, I was messed up but did not associate the two). Being off it, then going back on, it was clear as day. I guess I wonder if perhaps... -
ARCHIVED Bob's Red Mill...
Aly1 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I thought I'd pass on something I found online that made me smile. If you go to this link Open Original Shared Link you will find yourself on the Bob's Red Mill website at the article that says "Meet the Real Bob". At the end of the article there's a link that says "Watch Bob's Interview with Diane Sawyer" - it's just a couple minutes long and it made my... -
ARCHIVED Need Advice Re. Toddler Going Gluten Free...
Aly1 posted a topic in Parents, Friends and Loved Ones of Celiacs
I was put on a gluten-free diet 3 months ago after years of some serious neurological issues (I ended up in a wheelchair). My blood tests for celiac disease were negative but the doctor wanted me to give gluten-free a try; I did and I discovered that gluten makes me really ill. I had no idea - no gastro symptoms ever, no reason to think my illness was related... -
ARCHIVED I Had Hoped To Never Return To This Place
Aly1 replied to zus888's topic in Coping with Celiac Disease
By the way (still thinking about you here, you struck a chord). I have an incredibly strong sweet tooth and was told I'd have to give up all sweetners at age 16. I was aghast. What I have learned over the years is this: Like anything you don't want to do - don't let yourself think too much about it. Just do it. No one wants to clean the toilet but it needs... -
ARCHIVED I Had Hoped To Never Return To This Place
Aly1 replied to zus888's topic in Coping with Celiac Disease
Ok. I just went off on you and as soon as I hit Post I regretted the intensity of it. My apologies, but your post really hit a nerve due to my own experience and having to fight off an intense depression myself. Reading further down I see you write again in a different tone. I should have read before I went off on you. You really can do this you know. I get... -
ARCHIVED I Had Hoped To Never Return To This Place
Aly1 replied to zus888's topic in Coping with Celiac Disease
You know someone will look after your kids?? Wow. That may be the most stunningly selfish thing I have ever heard. I guarantee they will not see it quite the same way. I've spent years in pain and in a wheelchair, with no diagnosis, and was only able to work two days a week, totally isolated other than my guy at the end of the day (Thank God for him.... -
ARCHIVED Are These Celiac Symptoms?
Aly1 replied to Twitch's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Ps. Sorry here's a lot of typo's in my post - it's the auto-correct on my iPhone! :/