Jump to content

lisabp

Advanced Members
 View Profile  See their activity

  • Posts

    27

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by lisabp

  1. lisabp
    Just in case one of the things she likes is chocolate (and she can tolerate dairy)...what got my son through when he was so sick was milk with lots of ovaltine. It has vitmains in there and it goes down very easily and tastes great. You can probably mix it with soy milk too (I don't remember if there is dairy in the ovaltine...) we find it in the coffee...
  2. lisabp
    What worked great for us (2 1/2 year old) when he got glutened recently was some of the infant mylicon drops. His bloated tummy dropped right back down and he wanted something to eat within 30 minutes. Lisa P
  3. lisabp
    Hi Mightymorg.... You'll want to check out alamoceliac.org (it's austin, san antonio and corpus) also the austin celiac listserve: Open Original Shared Link and if you have any celiac kids we just got a ROCK (raising our celiac kids) group started and that is at Open Original Shared Link There is a meeting Wednesday night for the Alamo...
  4. lisabp
    My son was diagnosed at about 18 months too. Same "toddler tummy" thatr just kept getting bigger. His mood was better in 1 week and his appetite in 1 month, but the tummy took a long time to disappear. It took more like 4 months to go down to where you didn't really notice anything was wrong and probably 6 months to completely look normal. His weight...
  5. lisabp
    My son had the "Ethiopian look" at 18 months and had not grown for about 4-5 months. We had done ultrasounds of his stomach to see if there was a growth there or what. Then his blood test cam back positive for celiac, the endoscopy was "classic" celiac and we went gluten-free the next day. He never had the bad diapers, but he had weeks where he would throw...
  6. lisabp
    I can tell you what happened with us. My son was iagnosed at 19 months. Within 1 week he simply wasn't crying all the time. At 2 weeks he was acting happy again. At one month he finally had a reasonable appetite. Now, at 2 months gluten-free, he is back to his old nickname "food man". If he's awake, he's eating. He is back at his chart before all this...
  7. lisabp
    Thank you for asking this question! My son's BM's were actually OK when he was eating gluten (maybe enought passing though still whole acting as a glue??) but it's been 2 months and his BM's are all still pasty. I know that he hasn't gotten any gluten. My son is almost 2 and we talked to his pediatrician and she wasn't worried at this age as long as the...
  8. lisabp
    For our visit we confirmed that our sone was "classic celiac" and the doctor told us to keep feeding him some gluten until the biopsy which luckily was scheduled for less than a week away. We also got his weight and height. That was it.
  9. lisabp
    Just to let you know what you can or may expect after going gluten free (and get those tests done ASAP-have your family doctor call in the blood test to the lab or fax it over and go in tomorrow for that-it may take a week or so to get it back and then get on the cancellation list-it got us in a ,onth early). My little guy was diagnosed at 19 months,...
  10. lisabp
    My son (20 months old) had his biopsy one month ago. I was worried too and it indeed was nothing. Since he didn't have any appetite keeping him from eating was not a big task. The worst part was waiting to go into surgery and THEN having the IV in his hand after was driving him crazy. Have whatever clear liquids your daughter likes best ready after and...
  11. lisabp
    There it is...I had to go to google and do a search for the title of the page: Frito-Lay: Products not containing gluten" Open Original Shared Link
  12. lisabp
    Wow! You really have to keep a look out. That list posted before was gluten AND casein free. I have a print out in front of me, also dates March 1, 2005, of gluten free items from the Frito Lay website and now I can't find that page. (it lists 19 different kinds of Doritos, by the way, including cooler ranch). I have a bag of Spicier Nacho Doritos...
  13. lisabp
    You guys have the greatest answers. I was also rather lost amonth ago when I had to start this. Our whole family is now gluten-free as my husband is positive and my daughter and I are fine eating gluten-free. She has her stash of Cheerios and that's it. The main suggestion that I would make is to just concentrate on regular food that is naturally gluten...
  14. lisabp
    If you have about $400 to spend, go to the Enterolab site and order the stool sample test. You'll just collect (and freeze) at least 1/2 a cup of stool samples and send them off and then 3 weeks later you'll get an email with the test results. Your insurance might or might not may for it (I still havr to send mine in to insurance). With that (or maybe...
  15. lisabp
    You have!!! to get her tested. My son did the same thing and would only eat drinkable yogurts and milk with Ovaltine for days at a time. So that you know there is hope...we were lucky to have a positive blood work result on a Thursday night, already had an appointment with the pediatric GI the next day (get on their calcellation list and you do NOT...
  16. lisabp
    OK...so I had to keep reading what was here. This whole thing is probably turning moot since as my son is less and less scared to eat, he is eating less and less Dannon yogurt. He actually ate for an hour last night and 45 minutes tonight just before bed. YEAH!!! Now I just have to figure out what to do about his loose BMs. I guess there's no ...
  17. lisabp
    I apologize for trying to help others. I won't do it again. I am leaving this board and I won't be back.
  18. lisabp
    I asked my email for a list of all their gluten free products and they are still adding some but here is what they sent me already: PRODUCT NAME ITEM# BIOCOLOR - GALLON BIOGAL + COLOR FLUORESCENT BIOCOLOR – GALLON FBIOGAL + COLOR BIOCOLOR – 16OZ BIO16 + COLOR FLUORESCENT BIOCOLOR – 16OZ FBIO16 + COLOR FLUORESCENT BIOCOLOR PAINTERS FBM BIOCOLOR PAINT...
  19. lisabp
    My son is only 19 months old and he is scared to eat most things. He needs to get some calories somehow. Spending $20 plus the cost of 5 sets of 8 yogurts ($25) is $35. That's much better than spending $5 a pop for 4 gluten-free smoothies that he then doesn't eat and I have to throw away. I'm glad that I have the time and money to give my son his favorite...
  20. lisabp
    My son was just diagnosed celiac disease less than a month ago and up to then his absolutely favorite food, and the only thing he would eat sometime for a week, is Danimals Banana Drinkable Yogurt (he will put up with the Vanilla only because it come sin the same package and that's sometime all that is left). I tried everything else out there that is officially...
  21. lisabp
    Here's a recipe that someone else posted on another thread here and my daughter (not celiac disease but a great help to her little brother) and I made some batches this weekend. Open Original Shared Link Actually, first we got out all the old playdough and threw it away and then we washed the old containers and cutters and such in hot soapy water...
  22. lisabp
    Here is a reply that I just got from Roy's about the restaurant here in Austin and also Maui for an upcoming trip: Aloha Lisa, Thank you for your interest in dining at Roy's in Maui. Our chef has prepared a sample gluten-free menu for your son. The following menu may vary depending on what is fresh and available to our chefs when you arrive in December...
  23. lisabp
    I wish you had a Whole Foods near where you are. I went shopping there today and came home with gluten-free fish sticks, chicken nuggets and pizza (all frozen). The pizza was Amy's brand and it was just cheese (and kind of skimpy at that) so I aded a whole lot of topppings when I made it and it was really very good. My husband liked it better than regular...
  24. lisabp
    I have to admit if my daughter and I (the non-celiac disease ones) really liked bread and tons of pasta, it would be a different story. We just don't like them too much (she wants hamburgers and hot dogs without buns anyway). We would prefer a meal of potatoes, veggies and maybe a bit of meat. She doesn't even like birthday cake. Now if I had to keep...
  25. lisabp
    I have a 19 month old who was just doagnosed 3 weeks ago and we found out yesterday that Dad is celiac disease too. That just leaves me and my daughter (5 yrs old). I am really lucky since she eats like she's on Atkins by choice. She really does not like much bread at all. I have gone to a gluten free kitchen and kept it that was for 2 weeks and then...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.