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drewsant

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Everything posted by drewsant

  1. drewsant

    ARCHIVED New Here

    drewsant replied to redjoy's topic in Coping with Celiac Disease

    I've been told all my life basically it was IBS. I went to specialists and everything, and have had tons of tests done, and ruled out everything but Celiac or allergies. Finally 2 years ago, I went back to my GP, and talked with the Advanced Registered Nurse Practitioner, and told him that I would eat 3 bites of a sandwich or toast or crackers, and I...
  2. drewsant
    I live about 20 miles south of Sioux City, and I haven't heard of a support group, but there might be. I know that the Hyvee on Hamilton Boulevard has a lot of gluten-free stuff, way more than the others do. They might have info on support groups in the area--I've just never asked.
  3. drewsant
    Sorry, I wondered that after I posted, when I went back and read the posts again.
  4. drewsant
    Yeah, I know the difference, believe me. I spent hours and hours on the computer researching it 2 years ago. I either have celiac, or just a wheat allergy, which is what I thought I said but I guess I didn't. But I think I have a wheat allergy rather than celiac, just from my symptoms. But the result is the same, stay away from wheat/gluten.
  5. drewsant
    I went to an allergist about 2 years ago, and had the skin test, and tested positive for chicken, wheat, soy, tree nuts and fish. That's interesting that you're all saying that the skin test is more accurate. I had always heard that the blood test was more accurate. The allergist also told me that the wheat, soy and chicken reaction wasn't that big (it was...
  6. drewsant
    I'm allergic to wheat, soy, fish of all kinds, tree nuts, and chicken. I'm pretty much gluten free. It's the soy I'm having a hard time with. Soy eliminates chocolate which is one of my favorite things, as well as anything that has been fried, even tortilla chips, and things I never would have thought of. I've been on what I call my "allergen-free diet"...
  7. drewsant
    I think most people will tell you this is common to have a stronger reaction after you've been off of it. My doctor told me even the foods I'm allergic to will make me extremely sick after I stop eating them because your body gets used to constantly having that allergen, so it has a certain tolerance, but when you eliminate the allergen, then say a few months...
  8. drewsant
    I don't feel sorry for myself either, just frustrated at times that I can no longer eat what I want. I don't think any of us are sitting at home just letting life pass us by, just cutting back on our social lives that revolve around food. I certainly get up and go to work every day, despite having a serious disability, and multiple health issues. This is...
  9. drewsant
    I had the skin prick test on my back as well, and it revealed a lot of allergies I had that I wasn't aware of, but looking back, makes a lot of sense of what was going on. I knew there had to be something else going on other than Celiac because the only time I wasn't sick was when I was literally just eating fruits and vegetables. I found out I'm allergic...
  10. drewsant
    That's great that you love salad. I don't, and I got tired really fast with the questions about why I'm just eating salad, or whatever gluten-free thing I'm eating, and why don't I try this or that when I really would love to eat something else. I find that if I just entirely remove myself from that kind of situation, I don't have to explain anything, and...
  11. drewsant
    ILOVEOMC: First, love your avatar! And just wanted to say my stomach pain starts in the lower stomach, then migrates down into the intestines. Sounds like there isn't one specific area that it hits everyone.
  12. drewsant
    I think what is being lost in this thread that some people have alluded to is that doctors are not TAUGHT about celiac disease in med school, or they are taught that it is extremely rare, so not a likely culprit. Don't you think that if you are taught this, you will probably believe it? It's like my job, I work in telephone repair where we have to diagnose...
  13. drewsant
    Thanks. I've never heard of a naturopathic doctor. My GP is pretty good. He doesn't like to just give pills for what ails you, he wants to find out what is wrong and correct it. Usually this means a lot of tests, but at least he doesn't just assume it's one thing, give me meds to cover up the symptoms and send me on my way. I've just been finally diagnosed...
  14. drewsant
    a couple of weeks ago, and found out I'm allergic to fish, chicken, soy, tree nuts, and wheat. So I guess I'll still have to remain gluten free. I am really thinking it is due to allergies that I'm having all these problems. For the first 3 weeks or so going gluten-free, I ate only fruits and vegetables, because I was so afraid of getting glutened. I was...
  15. drewsant
    It has cut down drastically on my social life. I used to go eat at a friend's house at least once a week. I've probably eaten there 2 times since June when I started gluten-free. I can't take food with me, she would be offended, and she really doesn't understand what gluten is-(she's a nurse, too, so you'd think she would maybe) she thinks I can't eat corn...
  16. drewsant
    I think too, that the symptoms are so varied and sometimes vague, that it can be any number of things. Diarrhea, fatigue, foggy brain, can be symptoms of dozens of things, and it's a process of elimination. I read through a list of symptoms and sat there thinking, "how do they know these symptoms are specific to Celiac? It could be anything". Believe me...
  17. drewsant
    I went to the allergist today for the skin prick test. I found out that I am HIGHLY allergic to dust mites, ragweed, several other weeds, cats, dogs, molds, almonds, cashews, and fish. I also tested positive for wheat allergy, soybean, and chicken of all things. Everything was rated from 1 to 4, and the food allergies were a 1 except the nuts, which were...
  18. drewsant
    I don't know where you live, but in the Midwest, we have a store chain called Hy-vee that has a health food section, at least in the larger stores, that carry Tinkyada, and a LOT of gluten-free stuff. I was really impressed living in the middle of nowhere in Iowa and having these things available only 25 miles from where I live.
  19. drewsant
    I had blood tests done that came back negative, but the Dr. said that if the diet worked, then that is all the proof we need for diagnosis since blood tests often come back negative. I was told to go gluten-free for a month and see what happened. I finally was feeling better, so I decided to test myself to just see, ( I was told by my doctor to do this also...
  20. drewsant
    I'm going to an allergist next Wednesday. When I went to the doctor originally about the Celiac, he suggested I go to an allergist to see if I have any other food allergies. And according to him, he had been having a lot of stomach problems, so he went to this same allergist, and he did the skin prick tests, and my doc is allergic to soy. (Said his arm swelled...
  21. drewsant
    I have chronic bladder infections, and I rarely have symptoms. They don't treat it unless I get really sick, which at that point it has usually become a kidney infection, and the only symptoms I get are extremely painful kidney spasms, and fever. I rarely have any burning sensation.
  22. drewsant
    I live alone, and don't have anything in my house tht has gluten to my knowledge. I don't even own toaster, don't eat bread of any kind to be toasted anymore. I've been eating basically just fruits and vegetables, and fresh meat. And gluten-free chocolate, otherwise I'd probably go crazy. Checked my shampoo and soap, and all is gluten-free, and I don't wear...
  23. drewsant
    I was doing great for about a month, then the last week or so I've had big stomach problems again, and missed parts of 2 days of work, today included. I'm starting to feel a little paranoid as well, or that I really don't have Celiac and it's something else entirely.
  24. drewsant
    I am still having problems with my stomach. I was sick Saturday and Sunday, fine yesterday, ate a salad and didn't have a problem. Ate the same exact salad today, and about an hour later, was in the bathroom for about a `1/2 hour, and had to leave work. I'm going to the Dr. next week for a followup, and may ask him to refer me to an allergist. Maybe it isn...
  25. drewsant
    Don't think the Atkins Diet would help my situation, but thanks for the suggestion.
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