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grodeylocks

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Everything posted by grodeylocks

  1. Celiac ELISA assay was negative as was test for dermatitis herpetiformis. I get a rash that is most likely dermatitis herpetiformis that breaks out on elbows, left shoulder area, back of knees, or right thigh. Always in one of the spots however usually not all together. The rash seems to have the same onset and duration as dermatitis herpetiformis and I've...
  2. Ok, first question. Been gluten free for three years with symptoms still lingering. I am very strict with my adherence. I did smoke though but recently quit. Could this be the reason for my lingering symptoms? Secondly, I recently started taking kratom for my symptoms and it seemed to help for a month or two but now am not sure if it is. Has anyone used...
  3. Couldn't agree more with you man. It seems that there are heavily biased opinions often spread on this forum that may or may not hold any basis in actual fact.
  4. First point. There has never been any proven link that vaccines cause autism. That is a myth. In fact if it wasn't for the extensive vaccination campaigns our life expenctancies would be drastically different. In all honesty I would be more trustworthy of xenobiotics coming out of pharma then I would of herbal supplements coming out of your local health food...
  5. A vaccine wouldn't be something you take day to day. Oh yea pharmaceutical companies are horrible, why don't you tell that to all the cancer patients who are only alive today thanks to the development of modern drugs. Yup you're right. We secretly actually gather around in our labs and come up with ways to make you sick first. Then we purposely come up with...
  6. You clearly have no understanding of how Pharma works, and this is coming from someone who as a Biochemist knows the field in and out. I'm assuming you are also one of those people that believe MSG is the devil and that all vaccinations are bad. You can make your broad generalizations without any backing what so ever because of you're own pessimistic view...
  7. So we shouldn't invest in alternative therapies?
  8. Wow what a gross generalization about many doctors and scientists working together for the ultimate benefit of society. That's not how it works at all.
  9. For those of you interested this is a real good breakdown of why being gluten free simply is not enough. Open Original Shared Link
  10. Once again you guys miss the complete point of my argument. The development of celiac drugs/vaccines is a great thing, I'm not sure why you chose to argue with me over something that multiple studies show is pretty true. You have the study and its findings right in front of you, its a lot more reliable then any random opinions from non-scientists on this...
  11. The science points in that direction. You can say whatever you want but the science speaks for itself and you can't argue with that. I've already shown you that over 90 percent of celiacs dont recover on a gluten free diet alone and by recover I mean return fully back to normal. My point is that clearly we need more weapons at our disposal in addition to...
  12. Also, even years after being completely gluten free, as shown in this study by Dr. Fasano (Open Original Shared Link) zonulin levels remain remarkably more elevated when compared to normal healthy intestines. This may explain all of our secondary intolerances as macromolecules are more easily allowed to seep through the epithelial paracellular space. The...
  13. There is a difference between saying the word healed and completely back to normal. There is clear evidence for the need for alternative therapies and that is the bottom line. We should be embracing the development of alternative therapies to be used in conjunction with a gluten free diet.
  14. Got it from this study. Open Original Shared Link Dapsone is a gnarly drug for sure. The drugs in development now are showing some promise. The approach by Alvine Pharmaceuticals was to actually design proteases which specifically target and break down the inflammatory sequence markers that elicit the whole immune attack when exposed to the wheat, barley...
  15. "After a median 16 months GFD, 38 (8%) patients had histological 'normalization'". That means even with a complete gluten free diet the other 92% never fully recovered to normal.
  16. Not incorrect at all, and is exactly the reason we need other options in addition to the gluten free diet. Open Original Shared Link
  17. We are pretty close to at least drugs that will allow us to have a defense against cross contamination and that is amazing., Imagine being able to eat out without having to worry.
  18. Vaccine and other types of celiac drugs are amazing. Did you know that despite adhering to a gluten free diet more than 90% of celiacs don't fully recover. It is virtually impossible to avoid gluten. A vaccine would be a life saver and would retrain you're immune system to accept gluten. This vaccine probably will also be beneficial to other autoimmune disorders...
  19. Lucky for you guys, science is way ahead of policy in this realm so that we probably will have much easier lives in about 5 years or so. I never once said anyone wasn't involved enough, all I said was that we should confront what isn't right when it happens and if you already do that well then great. You get on my case for getting all fired up and passionate...
  20. I did explain nicely, and they were quite rude to me, that's why I was so outraged. I usually am quite nice until you tick me off. I am a biochemist by training and so I like to deal with painstaking details. I am a diagnosed dermatitis herpetiformis sufferer so that means I have celiac. I was aware of those events that happened in the past as well. I am...
  21. When people refuse to take your illness seriously call them out on it, when people scoff and call us ridiculous and that our problems are made up speak up against them, I mean I even have a celiac friend who had bought a burger and brought her own gluten-free bread to put the burger in and was told she couldnt bring in outside food. I say resist!!!!!
  22. You again. I thought you were out!
  23. But then should soup kitchens be forced to serve gluten free options. I'm not sure how it works in that case. I think everyone in this country should have the right to eat food they can handle. I know this is a ridiculous point but just imagine how truly vulnerable we could be.
  24. Makes me wonder about Celiacs who are homeless. What about soup kitchens. God what a horrible situation. I'm sure there are some out there now that are forced to just gluten themselves.
  25. The point of this topic was to point out that discrimination exists towards celiacs and that it is our duty to stand up and protect other celiacs from this type of thing. The whole stadium thing was just one incident to which I felt personally discriminated against. You can agree with me or disagree whether or not that was so, however you can't deny that...
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