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Mom2J112903

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Mom2J112903

  1. Mom2J112903
    She can have BOTH or just an IBD, which honestly it sounds like she has and that is the proper dx. My son's entire GI system is messed up and he has dx for every section of it actually. There is a GREAT IBD support group for parents, I can send you the link if you would like.
  2. Mom2J112903
    Yes I would and have done scopes on my child because of GI issues. Based on your daughter's symptoms, a scope will provide lots of answers. Are they doing BOTH an endoscope AND a colonoscopy?
  3. Mom2J112903
    She may not be having obvious reactions but I would be shocked if there was *no* reaction after a positive blood test and bx.
  4. Mom2J112903
    *ANY* allergy/intolerance/disease/disorder process can and *will* affect behavior. If your body doesn't get what it needs and is attacking itself (as in the form of Celiac or any other autoimmune disorder) you are going to fell *awful*! My son, wow, we didn't realize what a personality he has until he got his g-tube (numerous GI disorders) and what the...
  5. Mom2J112903
    Unless Mom is gluten free, gluten will be passed via breastmilk you are correct.
  6. Mom2J112903
    For whatever reason my son spikes a HIGH temp, 104+ if he gets into gluten. Before we took gluten out of his diet, he was *always* sick. Now my son had low IgA levels, so that could have something to do with the temps. Back in March he got into gluten *twice* and *both* times he had a high temp, couldn't tolerate his feeds (he is 100% g-tube fed for numerous...
  7. Mom2J112903
    FWIW my son is IBS and Celiac and still throwing an IBD around instead of.IBS.
  8. Mom2J112903
    Inflammation and high sed rate in combination with constipation would lead me to look more at IBDs instead of or in addition to Celiac. Also look at EoS disorders as well.
  9. Mom2J112903
    2" of growth in a year is average. My son's bone growth x-ray was taken when he didn't grow *at all* in approx a 12 month time frame. He was found to have a 25 month bone growth delay but interestingly enough he had been fairly average in height until his GI system started to really show what it can not do. He is now 100% g-tube fed (his entire GI system...
  10. Mom2J112903
    ANY malaborsoption (I know I most likely totally fudged that spelling, sorry!) problem can cause growth delays. There are SO many different GI tests that could be done to see if there is something else going on. Have they done a bone growth x-ray yet?
  11. Mom2J112903
    I have been hearing more and more people whom have Celiac have an IBD, but then again my son has many symptoms of IBD but not a formal dx so I have been looking for a connection and speaking with many different people. I often wonder if my son has EoE even though bx says no but we all now you have to get the bx in the right place ohterwise the test is...
  12. Mom2J112903
    Thinking outloud, forgive me... If the Celia being damaged can cause nerve damage which would slow the digestion process, that would be dymotility in the small intestine not the stomach. Yes chances are if you haev dysmotility in one area of your GI sytem, the entire GI system will be affected. My son's very first UGI shows DGE among other things we...
  13. Mom2J112903
    I am wondering how Celiac could cause DGE or other motility problems? I am very curious though since we have every part of my son's GI system dysfunctional in one way or another. I am always on the hunt for answers My son has been on PPIs since a very tender age but we had no choice as he was refluxing several times a day and large amts. The...
  14. Mom2J112903
    Gastroparesis will not resolve on a gluten-free diet we have DGE in addition to Celiac and other GI disorders. Celiac was found before the motility issues were found for us. Open Original Shared Link Open Original Shared Link And I totally understand about the "did you poop, what kind, what color, etc" questions and kiddos not wanting to tell...
  15. Mom2J112903
    Cherrybrook Kitchen IMHO has some REALLY good gluten-free products.
  16. Mom2J112903
    Do your children have a GI? Sounds like chronic constipation/IBS issues to me. Reminds me some of my son whose motility is junky thru-out his entire GI system. His LLQ is where the most of his pain is as that is where we can see on x-ray things WAY out of porption (colon MASSIVELY enlarged) but has also had the RUQ pain and that is from things trying to...
  17. Mom2J112903
    We have always been told a week but I never wait that week and give them 5 instead. I don't want them thinking that this can wait, I don't think they like me much
  18. Mom2J112903
    I have never heard of Miralax causing pencil thin stools to pass unless there was still a blockage somewhere. Can you get someone to oder a KUB (KidneyUrtersBladder) x-ray? This will also show the intestinal tract and see what and/or how much "stuff" is in their.
  19. Mom2J112903
    I understand! My son has a longer medical hx than the typical elderly adult. We have had some rough experinces with him but they all led to answers (whether good or bad) and a path, which for us is what we need to give him a quality of life. Every parent chooses what is best for *their* child and to me that is what is ultimatly the most important factor...
  20. Mom2J112903
    Doing the happy dance right along with you!
  21. Mom2J112903
    No worries and no offense taken. I know I have a strange child He WILLINGLY took the bottle of barium at 5wks of age. It was WAY past feeding time (had to be NPO for 4hrs? before the test) and I just think he was hungry, he didn't care what was in it. As he got older, they started flavoring it and telling him it was a strawberry milkshake. The techs...
  22. Mom2J112903
    My son had his first UGI at 5wks, his last one was when he was 7. A good pedi GI will look at his chart and *all* of his symptoms, if they don't well they are not good!
  23. Mom2J112903
    I would push for more GI testing as there seems to be something more going on. A UGI with SBFT (UpperGI with SmallBowelFollowThru) is a simple radiological exam which will show how the stomach empties, if there is reflux, and what length of time it takes the barium (yummy! ) to go thru the small bowel. It will also show any anatomy issues, if there is...
  24. Mom2J112903
    I too wouldn't go gluten-free until you get the testing back and speak to a pedi GI about it. My son was taken off gluten thanks to an allergist whom didn't know what he was doing (and I was not educated on Celiac at the time) and totally screwed things up. He had to go back ON gluten for his scope, which he had in Sept before he turned 2 in late Novemeber...
  25. Mom2J112903
    Poor thing! And yep, liquid Mt Dew...our GI actually said it would be like looking in the toilet and seeing a 2L of Mt Dew poured into it. We were never able to get this at home (like I said a lot of intestinal dysmotility) and it took 3 days of inpt clean out to get it even remotly close to this. We were not 100% certain the colonoscopy could even be...
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