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Mom2J112903

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Mom2J112903

  1. Mom2J112903
    We too homeschool but when he does eat, we do NOTHING until he is better. He gets VERY sick and is just not able to do anything.
  2. Mom2J112903
    If he is a Celiac, he will always be a Celiac and always react to gluten. Celiac disease is life long, there is no cure minus staying away from gluten.
  3. Mom2J112903
    My son can play with playdough and be just fine. Now if he would eat it, that is a different story.
  4. Mom2J112903
    I didn't get rid of ANYTHING, just had specific kitchen tools for the little man. I also sterilized, SUPER hot water and bleach, some things.
  5. Mom2J112903
    A month off gluten does not seem like enough time for a proper testing. We were told a minimum of 6 months for a *good* picture via scope. Even our current GI says "if it walks like a duck, quack likes a duck, it most likely is a duck" even if pathology or labs say differently. Celiac is also different than being allergic to any gluten. My son...
  6. Mom2J112903
    My son is strictly g-tube fed now but he was on a gluten-free diet most of his life before we had to go to tube feeds. We stuck with a lot of fruits and veggies as we know those are safe. Udi's bread is really good and we used a lot of Pamela's (I think this was the brand at least) mixes as well. Do you have a Whole Foods, Earth Fare or Trader's Joe near...
  7. Mom2J112903
    We have *always* heard something as soon as the GI comes out of the OR. It takes sometimes 2wks for the results to come back from pathology.
  8. Mom2J112903
    We thought we were "in the clear" so to speak with our son because he had a GREAT 12-15 months. Boy were we WRONG! He went from eating everything to relying on g-tube feeds within 18 months.
  9. Mom2J112903
    My son did not start forming sentences until he was over 3yrs of age. With all of the GI problems he has going on, his little body just had other more important things to worry about. Just think about it, if you don't feel good do you REALLY want to meet your developmental milestones? I didn't think so. I agree, if your ped is good he would listen to...
  10. Mom2J112903
    I *always* sent my son's food and drinks for him, I never asked anyone to change anything for him. By sending what I know is safe for him, I had NO worries that he would be fed something that would harm him.
  11. Mom2J112903
    I personally feel you have to make that choice for yourself and your family based on how much, if any gluten that a person can be in contact with/digest. For example my son actually has to eat the gluten to become symptomatic. So we do not worry about personal care products with him. He is tube fed now so no worries about cross contimanation now. Before...
  12. Mom2J112903
    A lot of EoE children are on some sort of elemental formula whether that is by mouth or via g-tube. Neocate and Elecare are the two most elemental formulas and what the majority of EoE children use.
  13. Mom2J112903
    My son started at *birth* with GI junk. I ate a PB&J on whole wheat about 20 minutes after he was born. He nursed approx an hour after that and less than 20 minutes after that he started vomiting. I ended up stopping breastfeeding, he was placed on PPIs for severe GERD (dx via UGI) and then soy based formula at 5wks. When he started on table food at...
  14. Mom2J112903
    My son has *never* had a normal bm. When he eats gluten, things are BAD, but *all* food causes problems for him. If your son has a dietary need, either the daycare has to provide safe food or you will bring in what is safe for him. When it comes to a child's health, there should never be any agruments about their diets.
  15. Mom2J112903
    When my son was able to eat,McD's fries were *not* something he could handle.
  16. Mom2J112903
    My son was 21lbs at 19 months when we started down the Celiac path. At 8.5yrs he is 48lbs.
  17. Mom2J112903
    My son has been g-tube fed (every part of his GI system is messed up) since late September and he hasn't gained any weight. Actually the opposite He has *finally* grown in height, he has a 2yr bone age growth delay, so that didn't help the weight at all. His metabolism, lets just say a woman would LOVE to have even a fraction of it! Since he got his...
  18. Mom2J112903
    If a child has a gluten intolerance, their behaviors will decrease. If a child does not have any type of gluten intolearnace, there will be no chage.
  19. Mom2J112903
    My son is just the opposite! lol He has a bone growth delay and we contribute that to his *knock-on-wood* never breaking a bone. If it were not for his bone growth delay, I hate to think about how many broken bones my dare-devil would have so far.
  20. Mom2J112903
    We have a local frozen yogurt shop that is self serve. The only cc would be from the topping bars, not the actual frozen yogurt. We take our son there maybe once/week and has their fat free and dairy free sorbet-no problems with it
  21. Mom2J112903
    We were VERY strictly gluten-free with him for most of his life, the entire house was gluten-free and Momma was one TINY gal! Being gluten-free definatly agreed with me! Currently he is 100% tube fed due to his numerous GI issues and any bite of solid food causing problems. IBDs have been mentioned from a young age but we have never gotten a formal dx...
  22. Mom2J112903
    My son is on Prevacid and Axid for GERD. He has been batteling GERD since day one and formally dx at less than 6wks of age. He is now almost 8.5yrs and still batteling the GERD demon. We tried Prilosec, Zantac and even Reglan with no positive effects. Prevacid has been the best until the most recent flair and we had to add in Axid.
  23. Mom2J112903
    My son actually has IgE (delayed allergies) to both casein and soy.
  24. Mom2J112903
    I am new here but have been on the GI road most of my son's 8+ years of life. In short he was wheat positive on allergy testing, pulled off ALL gluten *before* his first scope and only 2wks (and a VERY sick child those 2wks) prior to testing. That scope showed blutned villa but nothing to formally dx Celiac. Thru this time period he was also IgA defficient...
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