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GladGirl

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by GladGirl

  1. GladGirl
    Hi, Kamma, My last MRI was on Nov 23,2013 showing that the tumor had totally been resected...the biopsies (5) in total I have, but would prefer to share via e-mail. My next follow-ups at the Mayo Clinic are with my neurologist, Jan 20th for follow-up about epilepsy and other issues...and then I will be testing with Hematology and meeting with my neuro...
  2. GladGirl
    Hi, Kamma, I thought I would send some notes from my neuro surgeon that approaches the protocol of my own new MRI...his concerns were as follows: ASSESSMENT AND PLAN My impression is that Mrs. Pfeiffer is a 61-year-old female with a left temporal lesion. I cannot differentiate at this point a brain tumor, primary or metastatic, versus cavernous malformation...
  3. GladGirl
    Hello, I have not been here for quite awhile basically because of my health issues. I was diagnosed with Celiac Disease 3 years ago, but it took a very long time in coming....and now I have developed "Idiopathic Hypertrophic Pachymeningitis"... Too shorten this I first would like to say that I was having Epileptic seizures without realizing that is what...
  4. GladGirl
    Hi, All, I have not been on this system for some time...basically it is due to such unusual changes, I still find it difficult to understand. I was diagnosed through Hematology for Celiac Disease (latent) 3 years ago, became gluten free and so many things got better! My liver enzymes became normal again, my frozen shoulder was painless again, and I...
  5. GladGirl
    Oh, yes a "rye" bread recipe would be great!! I do miss my reuben's!! Tonight I made stuffed bell peppers with onions and garlic sauteed first in the skillet with virgin olive oil and then browned the ground round, added diced tomatoes and steamed rice, spooned into the prepped fresh peppers (got them at the Farmer's Market just today) and then a small...
  6. GladGirl
    If you are gluten-free already, these tests will probably not be conclusive since they look for the Gliadin reaction! the "gene" test however is not conditional to this. Here is one of the best labs testing currently for Celiac Disease, and they have good notes. This site also explains "testing" as well..good luck Open Original Shared Link
  7. GladGirl
    OH, Yes!! This is one symptom that led my brother and I to celiac disease!! We both started developing increased levels in our Liver Enzymes AST and ALT, and then the frozen shoulder! (my right, his left) After going gluten-free for three months, my pain in my right arm really diminished and my liver enzymes went down as well. Now being 6 months gluten...
  8. GladGirl
    I love it!! The Pancakes are superb! My hubby who is not gluten-free, but a diabetic has actually enjoyed the gluten-free products more than the old products. So, he said, go ahead, just make everything gluten-free and SF...we're good! LOL! He really likes the gravy I can make using this product as well for our beef roast, chicken, or pork roast!
  9. GladGirl
    Thank you for sharing, very interesting study done!
  10. GladGirl
    Although this thread is a little old, I was glad it was here! I just came back from my new Dr's office and found out that I have over-supplemented Vitamin B12. I have some "toxic" side-effects, mainly "joint pain" popping up in my extremities. The Dr. and I both think because excess Vit B12 can be stored in the liver, and my major issue with Celiac has...
  11. GladGirl
    Hi, All! Well,new to this as you may well remember. My gluten-free diet has made me feel so much better! However,I am concerned about some lingering issues, such as some fatigue, lethargy, and so on...So, now that we know our bodies are not able to sufficiently absorb/use nutrients of vital minerals/vitamins....I have been looking into the Iodine factor...
  12. GladGirl

    ARCHIVED Doctors

    GladGirl replied to Mateto's topic in Doctors

    It is so unfortunate when we patients are not "trusted" to be believed by our Medical support system. Our Dr's need to know that "trust" is a two way street! So, I just changed Dr's due to that very reason. My new Dr and I will be developing that patient/Dr relationship. I let her know how dismayed I have been in the past by some of the medical society...
  13. GladGirl
    Well, here we go! New Dr. recommended by my Insurance's Nurseline is Dr. Janice Nord, MD, Internal Medicine. She is part of a group called the Millenium Group in Southeast Florida. I met with her yesterday, she asked several questions, especially about the Hematologist I went to whom she also knows. I took copies of all my test results, and then her eyes...
  14. GladGirl
    I found this very interesting article on a link on Celiac Disease and thought I would share it. In this piece, there is quite a bit of "eye-opening" relative information. The fact that there is some "typing" makes sense and then there are the "Marsh" types as well that hold more definite terms. The part I really like is the added information on what needs...
  15. GladGirl
    Hi, Christian Mom, Well, I just got off the phone with the MA who works with my new selected Dr. She is an internal med Dr. and I will be meeting her for the first time tomorrow afternoon. Like you, I am hoping she has the "knowledge" your new young Dr. has. Praying for a good informational consultation and moving forward towards healing. Let...
  16. GladGirl
    And now indeed, I got a list from the nurseline...it is short...only two (2) internal med Docs, but I called both offices. I think the one I would like to meet first is the one who seems to have an Medical Asst who was very understanding about my concerns. But her reaction to "celiac" seemed foreign to her by name...hmmmm...in any case, it is worth a try...
  17. GladGirl
    So glad you found out at an earlier age...I say that because I "just" found out, and I am now 59 going on ancient!! LOL! Seriously, I am finding the same thing to be true about the "Big Box" Dr's as you say. I am in the medical field somewhat as a Patient Care Tech. (Phlebotomy, EKG, and certified nurse asst) So, not all in the field are dumb, I can tell...
  18. GladGirl
    Also, Naturegirl, I wanted to post a link for you concerning Celiac Constipation information, it has been helping me: Open Original Shared Link
  19. GladGirl
    Wow, the number of polyps are quite a few, especially at your age! Guess they will want to check you every 3 - 5 years on that. So, when I was 50, I had my first colonoscopy and I ws not yet diagnosed with celiac disease, but, ummmmm you might have thought that the Dr. should have gotten the big "clue" on this at the time. Like you, she told me I was not...
  20. GladGirl
    At the time I was sent to a hematologist, there were specific hereditary blood tests done for me. One was hemochromatosis because my ferritin level was elevated as well as my liver enzymes. However, my test for hemochromatosis was negative. The understanding I was given was the gluten was probably affecting my iron level as well. Truly hemochromatosis...
  21. GladGirl
    Thanks for the info, Birdie!! Inflammation has been one of my symptoms...maybe this will help!!
  22. GladGirl
    Since I was just diagnosed with Celiac Disease, although overlooked for years...I will relate my experience thus far with my ear problems. When I was 4 years old with a very bad ear infection, they did the same thing to me that was done to you. It hurt so so bad!! My left ear. It healed and then I started having more problems with vertigo and otitis...
  23. GladGirl
    So, my quest to find a primary care Dr. who "gets it" on Celiac has really been difficult to say the least for my area. I live in SW Florida, and have contacted the local Support Group for information concerning this quest. One of the co-ordinators answered my e-mail stating they really don't have one, that once they were diagnosed and told the treatment...
  24. GladGirl
    Here is the link to her story....also if you google obesity and Celiac Disease many other studies about this will come up to read... https://www.celiac.com/articles/1033/1/Celiac-Disease-and-ObesityThere-is-a-Connection-by-Melissa-Croda-q/Page1.html
  25. GladGirl
    Welcome to this board. I also am relatively newly diagnosed, although about 2 months ahead of you. There is much research being done concerning the fact that about 30% of Celiacs experience weight gain instead of weight loss, which you and I have both experienced. Most Dr's look for the weight loss before they even think about testing a patient for this...
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