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PersianCeliac

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PersianCeliac last won the day on February 27 2013

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  1. Hello, I was wondering for celiac parents with gene positive kids (DQ2 or DQ8) but celiac negative so far, how often do you get your kids tested for the antibodies ? and at what age did you start? I have a family history of celiac in my mom and maternal aunt, and planning on getting my younger one 2.5year old who carries the DQ2 (in trans...
  2. Hello, Both my aunt and mom were diagnosed with celiac. My aunt had severe symptoms and biopsy showed Marsh 3C. mom no symptoms and biopsy showed Marsh 3B. Mom’s endoscopy and biopsy after almost 2 years gluten free was normal. my aunt had her follow-up endoscopy and biopsy 1 year after being gluten free. her biopsy was completely N...
  3. Thank you for responding. did you have your miscarriages after or before celiac diagnosis ? my mother had 2 live births and 3 miscarriages before her celiac diagnosis !
  4. Hello Ladies, I am a mother of 2 boys, the youngest is 1 year and 4 months old and has the DQ2. My mother and aunt both have been officially diagnosed with celiac a couple of years ago and are doing well on the GFD. i Have been tested Twice now and negative so far, and planning to get tested every other year. i am planning to have my...
  5. Thank you for your response. Were your other non-celiac children screened via blood test ?
  6. Thank you so much for taking the time to respond. You are absolutely right, i need to start looking at the glass half full as opposed to half empty. Thank you for this wonderful advise. It makes me feel better knowing about the experiences of others and looking at things from a different perspective. I appreciate it.
  7. My mother and aunt were both diagnosed with celiac 5 years ago and both healed (follow-up biopsy done). They follow a strict gluten free diet in spite of its difficulty where we live. I got tested for antibodies (twice) and gene test and both were negative. However i carry DQ2.2, and my youngest son got DQ2.2 from me and DQ7.5 from his father, so he...
  8. Both my mom and aunt were diagnosed with celiac around 5 years ago and are following the gluten free diet strictly in spite of living in a country with very little gluten free options and almost no awareness. i was assisting my mom with her diet and insisted she pays attention to cross contamination among other things. In fact, after learning of my aunt...
  9. I was wondering how many of your family members got tested for celiac ? and how many ended up with positive or negative results ? how many tested for HLA DQ genes from those family members ? so far my aunt and my mother have celiac. their brother my uncle was tested and is negative, myself tested negative and my father as well negative. The...
  10. I am joining the celiac community here to run a survey for an upcoming presentation on facts and figures concerning celiac disease in an effort to raise awareness of celiac where i live. i would appreciate if you can help by simply providing the following information as i need a minimum number to be able to include the figures in the presentation. ...
  11. Hello everyone, i was wondering how many of you ladies have breast implants, and if you have had celiac before or after you got the implants. My aunt is also a celiac and had textured implants 10 years ago, and was diagnosed with celiac a few years ago, but she had celiac probably for 20 years and was never properly diagnosed. She has been having...
  12. She never had any symptoms and was tested because her sister was diagnosed.
  13. Thanks for your input. Have you had a repeat biopsy after being gluten-free ?
  14. hi everyone, i was looking for input from those who have had a follow up biopsy after goin gluten free to check for healing. My mom had marsh 3B biopsy at diagnosis, with increase lamina propria inflammatory infiltrate (duodenitis). After 2 years on gluten-free diet, she had a repeat biopsy which showed normal villi and no sign of celiac. however...
  15. My mom had her second biopsy after over 2 years gluten free. The biopsy says the villi is long on the periphery and there is no intraepithelial infiltrate. I guess this means her villi is normal now ? However, it says there is mild inflammation in lamina propria/duodenum. Is it normal to still have this sign of celiac on spite of norm villi now and over...
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