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Latest Celiac Disease News & Research:
Everything posted by FruitEnthusiast
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Seeking treatment for Histamine Intolerance
FruitEnthusiast replied to FruitEnthusiast's topic in Related Issues & Disorders
Thank you Posterboy, Only glanced at thread so far but noticed a mention of B12. I am trying to get a definitive diagnosis for a very severe B12 deficiency, and my folic acid is low too so the Niacin sounds pretty interesting. I’m anemic too but waiting for tests on that. I take the daily max of magnesium already for C - helps a lot for that. Think I... -
Seeking treatment for Histamine Intolerance
FruitEnthusiast replied to FruitEnthusiast's topic in Related Issues & Disorders
Yes eveyone has a different situation, with it’s own challenges for sure, so we just have to do the best we can. I know of no problems with unprocessed frozen foods at all, it’s never been a problem for me. -
Seeking treatment for Histamine Intolerance
FruitEnthusiast replied to FruitEnthusiast's topic in Related Issues & Disorders
...also the way I combat all those long lists of ingredients is I don’t eat anything processed - too much stuff in there. I make everything from scratch using all whole foods. Lots of work but worth the results! Avoiding canned foods helps and whatever you do avoid canned fish - look up Histamine poisoning from canned fish. I went tbrough that and it really s... -
Seeking treatment for Histamine Intolerance
FruitEnthusiast replied to FruitEnthusiast's topic in Related Issues & Disorders
trents, glad my post was helpful, I too wish to be finding more help available here in the US. One deflating aspect of this is that it’s being treated in other countries like the UK. Which means we are behind in America on the holistic side of things. Maybe all us HI people could get a special rate to fly over there for help together - oops there goes a... -
Seeking treatment for Histamine Intolerance
FruitEnthusiast replied to FruitEnthusiast's topic in Related Issues & Disorders
Hi cycling!! Thanks, was hoping to find more progress made in the Histamine arena by now. I don’t have symptoms of MCAS I’m aware of, just HI. No symptoms of Chrohns, just chronic C, no pain involved. I’ve asked several Drs about Sibo, none have thought I need to be tested for it. In your opinion is Sibo a standard test all of us with these... -
Seeking treatment for Histamine Intolerance
FruitEnthusiast replied to FruitEnthusiast's topic in Related Issues & Disorders
Thanks so much for remembering me icelandgirl!! I found GottaSki’s email! Sent her a note!!! So good to be on here again. My computer died but I’m able to do this on my phone!!! Thank you for your support, it means the world right now! ? -
Seeking treatment for Histamine Intolerance
FruitEnthusiast replied to FruitEnthusiast's topic in Related Issues & Disorders
Thanks for yor response trents! NCGI is Non Celiac Gluten Intolerant. Yes I am aware of histamine levels in foods. I can eat some fruits not others, cherries are on my “can eat” list. I haven’t been on this site for years. Is it still a place for NCGI people to come with issues or has that changed? At that time NCGI was used frequently here. I’m looking for Drs... -
ARCHIVED First Party Bringing My Own Food
FruitEnthusiast replied to FruitEnthusiast's topic in Coping with Celiac Disease
Thanks guys, good to know I'm not alone! -
ARCHIVED First Party Bringing My Own Food
FruitEnthusiast replied to FruitEnthusiast's topic in Coping with Celiac Disease
Next time someone gives me that look of pity I'm going to say, I like to eat healthy because it makes me feel great, like I'm in my twenties again. I don't think I'm going to say anything at all about what I "can't" have. I'm going to make my food choices all about being healthy as if I have decided to eat that way by choice. I'm going to turn it into... -
ARCHIVED New Nutritionist Is Helping Me
FruitEnthusiast replied to FruitEnthusiast's topic in Doctors
Sure. It seems that many people who suffer with C have a problem with having enough moisture in their colon, even though they drink enough water. She told me she had helped others like me, and it helped me too. She suggested supplements that bring water into the colon. She had me take one called Triphala in the morning that contains fruits from India. Then... -
ARCHIVED New Nutritionist Is Helping Me
FruitEnthusiast replied to FruitEnthusiast's topic in Doctors
Thank you -
ARCHIVED First Party Bringing My Own Food
FruitEnthusiast replied to FruitEnthusiast's topic in Coping with Celiac Disease
I don't think I explained this quite right. My friend wasn't giving me a hard time, she just felt bad for me because I couldn't enjoy the things others could. It was my first time at her house and a very small gathering, mostly just her family. They were all so nice and wanted to make sure I was having a good time. My family knows about my restrictions... -
I finally found a healthcare professional who is helping me get better!!! She's the Nutritionist on the Celiac/GI team at UCLA (but I see her through her private practice for a lower fee). She has Celiac herself (I'm NCGI) and was willing to do sessions over the phone until I was well enough to make it into her office. Maybe she could do the same for someone...
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ARCHIVED First Party Bringing My Own Food
FruitEnthusiast posted a topic in Coping with Celiac Disease
Today was the first party I've been to bringing my own food, and the first party I've been to in 3 years - that's how long it's taken for me to feel well enough to go to a social event since my food intolerances began - quite a milestone!!! I've been seeing a new Nutritionist who has helped me get there. I'm going to post more info about that in another topic... -
ARCHIVED Is A Celiac Dx Necessary?
FruitEnthusiast replied to FruitEnthusiast's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes, I was wondering about that too, something to consider. Thanks. -
ARCHIVED Is A Celiac Dx Necessary?
FruitEnthusiast posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I already know I'm gluten intolerant. I'm wondering how important it is to have an official Celiac DX, and I could use some opinions. I just went to see a new GI at UCLA who specializes in Celiac/Gluten Intolerance to address my ongoing chronic C that is closely related to the multiple food sensitivities that started after I went gluten-free 2 1/2 years... -
ARCHIVED Discussing The Newbie 101 Topic
FruitEnthusiast replied to psawyer's topic in Coping with Celiac Disease
I just wanted to mention in the list of blood tests to have/vitamin + mineral levels to have checked, I noticed vit D wasn't on the list, and I'm pretty sure that's an important one for all of us to watch. -
ARCHIVED Life Savers Candy Made Me Sick
FruitEnthusiast replied to FruitEnthusiast's topic in Food Intolerance & Leaky Gut
Ok, thanks -
ARCHIVED Life Savers Candy Made Me Sick
FruitEnthusiast replied to FruitEnthusiast's topic in Food Intolerance & Leaky Gut
That's so discouraging. The only way I keep making it through this is to try and stay positive and hope for the best. Just the thought of still being sick after five years is more than I can stand to think about right now. -
ARCHIVED Abnormal Screening Mammogram...worried
FruitEnthusiast replied to icelandgirl's topic in Coping with Celiac Disease
I had the same thing happen, exactly, and it was nothing... but anyone would be terrified, of course. Sometimes, with dense tissue as I also have, they just want to be sure by taking an ultrasound. Then they have something to compare it to the next year. I thought it was a sign that they were doing a good job and being thorough. -
ARCHIVED Life Savers Candy Made Me Sick
FruitEnthusiast posted a topic in Food Intolerance & Leaky Gut
I know, Life Savers making me sick, it's ironic… I had a moment of weakness in the grocery store. I had some hard candy before that was made in Germany that I ate sometimes, just sugar, a few ingredients, never had a problem. I can have a small amount of sugar and it doesn't bother me… but I ran out of those and nothing at the grocery store was available wit... -
ARCHIVED Brain Fog Is A Curse!
FruitEnthusiast replied to Georgia-guy's topic in Coping with Celiac Disease
She may not have even noticed, and if she did, probably wrote it off as "oh, he probably didn't get enough sleep the night before, or something like that." Next time you see her, you'll be starting all over again. If you want you can say that you were tired, not yourself, or whatever reason sounds good. You get good at explaining away brain fog when you have... -
ARCHIVED How Do You Deal With Waves Of Depression Post Exposure?
FruitEnthusiast replied to MermaidPaz's topic in Coping with Celiac Disease
This is exactly the thought process I go through. It is a real physical illness, and the psychological symptoms are part of it. The hardest part for me is to give myself permission not to worry about what I'm not getting done, and get the extra rest I truly need. Extra sleep helps me a lot. I also have to remind myself over and over why I am feeling that... -
ARCHIVED Colonic For Severe Constipation
FruitEnthusiast replied to FruitEnthusiast's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It's usually listed under Colon Hydrotherapy, and it's individual practitioners that do the procedure. They are sometimes in their own office or they sometimes share space with a Naturopathic Doctor. The practitioner I go to has an International Association for Colon Hydrotherapy (I-ACT) logo on her website, so I'm including a link for that - you can look...