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Rachel--24

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Everything posted by Rachel--24

  1. Rachel--24
    To add to what I said about Lyme being multifactorial...Dr.'s who use ART are never finding just Lyme. Dr. K. finds that viruses are an issue for most Lyme patients...theres a long list of coinfections which commonly accompany Lyme. EBV is definately on that list. None of my LLMD's rely on conventional testing alone because so many of these things are...
  2. Rachel--24
    That would work out GREAT if she's able to do this. That would pretty much resolve the problem of having so many patients waiting to see her. I'm sure follow up appts. would still be every 3 months...but by coming every month she can see ALOT more patients without having to extend her visits. She could probably just come for a couple days each...
  3. Rachel--24
    Kassandra, People with Lyme have mulitple issues....I've never heard of anyone *just* having Lyme. I dont think that there's a specific order as to what leads to what...in the end its a bunch of factors all contributing to unwellness. There are MANY people who have Lyme and are not sick...they havent reached that point where the immune system has become...
  4. Rachel--24
    They probably said your results were equivocal...not clearly positive but there is some evidence that you could have Lyme. No...this does not mean that if you have Lyme its weak...or that its not overpowering your body. Some of the sickest Lyme patients have negative tests because their immune system is not producing antibodies. It could be that the immune...
  5. Rachel--24
    Yes...Lyme can cause damage to the kidneys...either directly or indirectly. The bacteria can invade any organ in the body. Also, Lyme impairs detoxification...which causes mercury (and other toxins) to accumulate....this puts a great deal of stress on the liver, kidneys, etc. It can cause damage to these organs.
  6. Rachel--24
    April, EAV = electro-acupuncture by Voll Electrodermal Screening
  7. Rachel--24
    Get copies of all the tests they ordered. Obviously they dont know how to interpret them.
  8. Rachel--24
    Sorry about that...I have room in my box now.
  9. Rachel--24
    Eisabet...there's no such thing as too many questions here. No...I do not take glutathione anymore because I react to it. My Dr. has it on the"must avoid" list...because it stresses my body pretty bad. I dont know for sure if Biotin caused me problems but I suspect it did...although I didnt really notice anything until I'd been taking it for over...
  10. Rachel--24
    You can order the gene test through Enterolab (which is what I did) or your Dr. can order it...and that would most likely be sent to Prometheus lab. My GI doctor wanted to have my genes tested. He gave me the labslip for Prometheus...I'm pretty sure it required a blooddraw. I never had that test done because I'd already been tested through Enterolab (cheek...
  11. Rachel--24
    It depends which bloodtest was slightly abnormal. If it was one which is very specific for Celiac..then it would be permanant. If it was just the IgG...then its not specific to Celiac....it could be elevated for other reasons....but it can also be elevated due to Celiac. Having your genes tested will definately give you a better idea. Even if you had...
  12. Rachel--24
    Laurie, I dont worry too much about vitamins right now...I just get what I get from food. Its probably better now that I'm able to eat more things. I've always had problems with vitamins...especially B's...but C as well. I dont test well for vitamins and even with the IV's they never gave me any B's because my Dr. said most patients who are as reactive...
  13. Rachel--24
    I just wanted to add that most of the time these intestinal infections are not easily diagnosed in stool tests. I'm not sure what type of testing you had done but my first 3 stool tests for candida were unremarkable and parasites never showed up at all. None of it was ruled out based on the negative test results. All of my Dr.'s who use alternative...
  14. Rachel--24
    Laurie, Its very sad about Sandi. She was on that board as long as I've been there....and always talking about the metals. I know she helped alot of people. I spent most of my time over there posting about Lyme and other issues that werent ever talked about. I didnt spend alot of time on the metals because she pretty much took care of that...
  15. Rachel--24
    Yeah...I can be persistent...thats for sure!! A few years ago I bombarded that board with info. on gluten inltolerance/Celiac...at that time I think most people were eating all the gluten grains (except wheat) while on the candida diet. I think I drove people crazy!! This past year I'm sure I upset some people with my posts but I feel if...
  16. Rachel--24
    Yes...very sweet and very true Sherry. All of my "peeps" here in the OMG thread are just as precious to me as those who I see in my everyday life. You guys actually know more about me than most people I know! When we first started here who knew it would go on like this and that so many of us would find answers! I think you guys are the best support...
  17. Rachel--24
    As far as recommendations for antifungals and parasite treatments...I pretty much leave that up to the Dr.'s because I have seen too many people cause more harm than good by self-treating. I tried to self-treat candida/leaky gut for a few months in 2005 and I only made things worse because I didnt have a full understanding of all that was going on. I...
  18. Rachel--24
    I did this diet for about 4 months back in 2005. I didnt eat any grains at all...no starchy veggies either. I felt better for awhile and then worse as I started reacting to alot of what I was eating...and especially supplements I was taking. I ate alot of seafood which was not a good choice since I was already toxic from mercury...I'm sure this didnt help...
  19. Rachel--24
    Yeah...eating PIZZA finally.....who would have thought it could really happen like this!!?? Its CRAZY...I cant even comprehend this recent turn of events...I'm totally at a loss for words! Its only been weeks since I was still stuck with only 2 foods....not able to add in anything new. The only new changes are the Ketotifen and the DMPS. I...
  20. Rachel--24
    Last week I faxed the results of my hair analysis over to Dr. Amy. These were my old results from 2004....she had wanted to pass them on to someone who's studying the results in mercury toxic patients. Since I had also gotten the results of my latest urine test I faxed those results over as well. Metals were still coming out but my minerals were looking...
  21. Rachel--24
    Awww Kassandra...I'm sorry to hear that. Is this your younger brother? Elisabet, My list of past supplements is pretty long. I get tested for things whenever I have an ART session....I take whatever my body is needing and whatever tests well for me...so its very personal as far as what I'm taking. Your son may need different...
  22. Rachel--24
    YAY!! I think I'm feeling a little better eating alot more foods...possibly because when my diet is really restricted the tapeworm is getting most (if not all) of what I'm taking in. I feel like since I've expanded my diet I'm eating so much more food (because I dont ever get full and I have more options)....I think I might be eating enough so that...
  23. Rachel--24
    Great news Charlie! I'm happy to hear from you and I'm glad that you're making progress. I havent been on any abx or any treatments which have made me feel bad...I feel the same way about not wanting to take the step back in order to take the step forward. I really feel that there are ways to get around that. I'm gonna start taking a strong...
  24. Rachel--24
    OMG!! You guys wont BELIEVE this!! Yes Andrea....I'm REALLY living it up in the food world now!! Ok...today I went to the movies...ate regular movie popcorn... and lots of it!! I felt pretty good...no bad reactions...maybe my glands felt a little swollen for a short time but that was it...nothing like my past experiences. Then...
  25. Rachel--24
    Elisabet, I dont recall mentioning a skin problem? I never really had any significant skin problems although my skin has been affected by all the toxicity in my body. My skin used to burn and tingle alot...especially my upper body and face. My skin also gets puffy (edema) and sometimes pale. Sometimes my skin looks really unhealthy to me (blotchy...
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