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luvrdeo

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by luvrdeo

  1. luvrdeo
    It took me 20 years to get them to test for celiac...so, I get that one! I used to have major issues with headaches as well, and they have gone away 100%. The D though...that's the battle! I love yogurt and cheese...could totally live on that!!!
  2. luvrdeo
    I haven't been tested for allergies, it was something the naturopath and I discussed. I too am young, athletic, healthy, and have these 10 lbs that will not go away...so, I guess I better get tested for more foods than just the gluten! This is so helpful, I've often wondered if one of the "healthy" foods I'm eating might be what the real issue is. What...
  3. luvrdeo
    He told me to only be on the inflammx for a month...not sure why?? I haven't tried ginger, but know all about how it can help. I wasn't ever sure how to include it into my day, so thank you SO much for the suggestion! I will start on that right away.
  4. luvrdeo
    When it comes to food...I've tried it all. Doesn't seem to matter what I do or don't eat, I have constant D - the colitis is out of control. All my veggies are either steamed or roasted, keeping them soft. My meals consist of a shake/smoothie in the morning with fruit and some coconut or almond milk, lunch is turkey or chicken with veggies and maybe some...
  5. luvrdeo
    I am frustrated, and need to vent. Let's start with that! Here's why...in a short version - colitis is still giving me fits, so my gastro told me I'll be on pills for life. This is unacceptable to me. SO...I sought out a naturopath doctor, who put me on all kinds of new things...Metagenics UltraInfam shake stuff, a Theramedix digestive enzyme, and something...
  6. luvrdeo
    2 years, but everything still runs through me like water, my symptoms have actually gotten worse. So yes...good news, but still no relief!
  7. luvrdeo
    I had an endo/colonoscopy last week too - my doctor made the mistake of telling me that what he saw on the endo didn't look good at all, that being gluten-free hasn't helped whatsoever. Biopsies came back and everything (except for my colitis) checked out okay. I was somewhat confused by all of this, but I guess it's good news!
  8. luvrdeo
    Looks like it's just the colitis giving me hell...non-stop - and no matter what I eat it makes me sick. They want me on steroids again, and I said no - didn't work the first time, and that was an awful experience. So then they suggested Uceris, which I just got done with 60 days of...it helped some when I was on it, but the day I stopped everything fell...
  9. luvrdeo
    Going to the store today with a list of foods that are FODMAP safe - minor changes (have to swap some fruits and veggies) since I am paleo anyway - but it's worth a shot. I'm beyond anxious to get my biopsies back, simply because I don't like what I read about the damage that is still happening inside. It's flat out scary! I'm pretty sure I'll end up back...
  10. luvrdeo
    Blood tests came back showing that I do, in fact, adhere to a very strict gluten-free diet (which I knew)...doctor did some biopsies from the endo/colonoscopy, but said it's obvious that being gluten-free is not healing anything internally. In response to some of the above posts, I have tried Align, but got no relief :/ I've definitely considered going...
  11. luvrdeo
    Though I am not happy to see this - I am happy to see this! I saw someone new at my doctors office today, and he was very aggressive which was nice. He said I have 3 options for what the problem could (possibly) be: 1) some celiacs just don't heal by eating gluten-free, ever; 2) the colitis is just giving me fits; and 3) I have Crohns. I explained to him...
  12. luvrdeo
    What a bummer for you! It's been almost 2 years for me, and the convenience factor is probably what I miss most. I also have dreams of eating things I shouldn't have...a normal sandwich, a slice of pizza, pretzels - I wake up mortified, because every time I take a bite of whatever it is that has gluten, I start spitting it out and losing it because I know...
  13. luvrdeo
    Makes for interesting reading! I went a saw a new doctor today, and as a result am having a colonoscopy and endoscopy next week to try and figure out what might be still giving me such issues. Hoping for anwers!
  14. luvrdeo
    Living on a paleo diet, high fat and protein are the bulk of my diet! I'll look into this - very interesting for sure. I hadn't heard of pancreatic insuffiency before!
  15. luvrdeo
    I'll give align a second shot - and go from there. As for the meds...I've been off them for a good 2 months, could something still be lingering in my system? The problems I have now, I had before they tried this latest drug...so there's no telling. Thank you for the great suggestion!
  16. luvrdeo
    Thank you first off for the kind words!! It's definitely the colitis I think. My doc put me on some high-power pills for ulcerative colitis to try and get some healing done, but as soon as I go off of them I go right back to where I was. I guess you can't stay on the pills long term - it's more for when it flares up. They told me my last resort is some...
  17. luvrdeo
    I eat strict paleo, so yes - I am beyond strict when it comes to being gluten-free. The slightest CC can put me in a tailspin for a good 2 weeks, I think I'm overly sensitive now. I am a total freak about it to be honest (aren't we all)! Everything has just gotten so much worse since going gluten-free, which seems so backwards. My rheumy has tested me...
  18. luvrdeo
    yep, tried them all with no luck hadn't tried a combo of them all though, maybe I'll give that a shot!
  19. luvrdeo
    I've had to go to a rheumatologist due to my joint pain - in the last year my wrists/hands have gotten so bad! I live off of DoTerra's Deep Blue rub, because no x-rays or blood tests can explain why I'm hurting so bad.
  20. luvrdeo
    I've been gluten-free for a good 2 years now since being diagnosed with celiac, and I still have major major symptoms - everything runs through me like water. My doc has tried numerous pills on me to help (mostly for the colitis) and nothing has worked. I went strict paleo about 6 months ago hoping that would help...but no. I feel like this has all gotten...
  21. luvrdeo
    Thanks for all the good advice, and support! I know we all try hard to be super careful...but sometimes it happens! I really need to get back on a good probiotic...I used to take it religously, but have slacked lately. Hadn't heard of the slippery elm...I'll look into that too! I am just sick of having to run to the bathroom 100 times a day...gets old...
  22. luvrdeo
    I let a friend cook an extravagant dinner for a group, she knows I have celiac...but something slipped in there obviously. This was LAST Sunday...as in, the 13th. It took a few days before I knew what was going on...but then it hit me, and hit me hard. And still is. I've been gluten-free for over a year now...this has to be my biggest unknown slip-up...
  23. luvrdeo
    Just last night...I dreamt that I made a PB&J sandwich on normal bread...looked at it, then threw it in the trash. I think this is a result of me having been glutened a week or so ago, and reacting TERRIBLY to it! Made me laugh though...the things that stick in our minds!
  24. luvrdeo
    soooo....is the gum I'm chewing - both kinds with soy lecithin on the label - gonna get me? For whatever reason I decided to read what all was in my gum, looked up the soy l - and of course was brought back to my favorite celiac board
  25. luvrdeo
    The "BAD" #'s 1, 2, and 3...oh how I feel your pain on those!!! "I don't know how you live without gluten"...well, it's pretty easy after you figure out it makes you sicker than sick! I soooooo miss the convenience of just grabbing something for lunch while out and about. I have days where I most definitely feel deprived. I spent 10 days in Italy where...
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