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megsybeth

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Everything posted by megsybeth

  1. megsybeth
    I've been gluten free, confirmed Celiac for about eight years now. I have a feeling another AI disease might be starting. A few times in the last few months I've had an inflamed gland in one or the other armpit, aches, and a really sore spine. I often have canker sores at the same time. Right now I'm dealing with sciatica as well. My aunt and cousin both...
  2. megsybeth
    Kareng, Thanks for that info.! I hadn't realized they were labeled gluten free. I will stock up at Costco =). I have good luck with so much luck at Trader Joe's (waffles, bread, etc.) that I was worried it might be corn in general. Cyclinglady, that was always my thinking. That if you buy the exclusively Mexican brands they wouldn't have much reason to...
  3. megsybeth
    I do a lot of shopping at Trader Joes and have found I have celiac like pain after eating their corn products. I don't think this has happened with Mission brand chips and I don't have issues at Chipotle or Mexican restaurants that don't share fryers. So I don't think I have an allergy to corn. But I'd like to try eating corn that I know is gluten free...
  4. megsybeth
    According to my bloodwork, I seem to be taking quite a while to heal though I've been strictly gluten free and am aware and vigilent about cross contamination (eg I don't do fries in most restaurants, don't do most restaurants actually, don't do generic oats, etc.). I think I've had celiac since I had mono at six and was 35 when diagnosed. It's now two years...
  5. megsybeth
    I appreciate this and I am scared but trying to get in to see my doctor and do the follow-ups. The DGP did come down. I can see how I might seem defensive about the cc aspect but probably you get that when your health is uncertain and you are in the process of testing, it isn't really helpful to be told to listen to your body. I mean I'll probably listen...
  6. megsybeth
    I scored the coveted dessert spot on 5yo DS's Thanksgiving party at school. I want to make some fun gluten free Turkey topped cupcakes because it's his rare chance to eat the "real" treat. Dont' have time for experiments so I was wondering what the best, moistest yellow cake mix is. Was thinking of going with Barbara's since I use other products and like...
  7. megsybeth
    I live in California so there are a lot of lifestyle gluten free people, which is mostly great but I get a lot of: -"So I hear you're going gluten free?".."Actually I done GONE. I don't really have a choice" -"You know if you have nice sour dough bread it cancels out the gluten" -"It's only the GMO wheat that you have to worry about" -"I'm trying to...
  8. megsybeth
    ...this is actually what I'm most worried about. I know celiac is serious but if it's "just" from gluten exposure I wouldn't be worried. It's that combined with the low blood cells. My levels were low last time she did a cbc as well. I just realized I wrote elevated white blood cells (my son had elevated platelets and I got mixed up), it was low that flagged...
  9. megsybeth
    I've never cheated, I think I'm pretty knowledgeable about what I eat. I'm not super strict about possible CC outside the home, for example at chipotle I don't usually ask them to change gloves, because I've found my son (more sensitive) and I both are symptom free. But I limit how often I eat out and only have a certain list of places, I kind of go with...
  10. megsybeth
    It sounds tough for all of you. I totally agree that it's normal to be sooo picky at that age, but to actually refuse food all day is a bit more intense and suggests he cares about this a lot. There are feeding therapists and group programs. It could be a combination of things, where he associates some food with pain or has motor issues from the celiac. But...
  11. megsybeth
    I'm about ten months post-dx and gluten free and lately I keep getting sooooo bloated. It looks and feels like I gained fifteen pounds but I barely eat. Right now I'm so bloated my back hurts. I'm going to eliminate dairy to see if it helps but I thought lactose intolerance was usually early in the recovery, not later. Levels in blood work being tested tomorrow...
  12. megsybeth
    Last year we used the Discount School Supply play dough at home and at DS's school. I don't belive we've had any reactions. But I noticed when I needed to reorder that they don't list gluten free on their website. So to be safe I tried another officially gluten free brand. I'm not happy and am sending it back (Scented "wonder Dough", sticky, sticky, stains...
  13. megsybeth
    Something keeps giving me stomach cramps and DS diarrhea. His babysitter swears it's the M&Ms because she thinks he has diarrhea every time he gets them. I give them every day as a reward for going #2 on the toilet. But I don't notice that he gets D directly after. Mars lists them as gluten free. In general I would say we're not extraordinarily sensitive...
  14. megsybeth
    I think you could suggest to them that they label them "wheat free". For me, this is clearer that they are going for health-conscious people. Peet's Coffee carries a wheat free muffin and when you ask them about it, same thing, shared facility, bumping all around with gluten products. But there is a market that just wants to avoid wheat, so I get that it...
  15. megsybeth
    I feel like I'm really careful but lately a couple times a week I'm getting pain and brain fog and he's getting D and grumpiness. I know I need to go back to basics but a couple things that I thought might be causing issues, though it's hard to say when we get triggered: -Think Think Bars, I have one a day and try not to let ds have them but he always nags...
  16. megsybeth
    I promised my 4yo I'd finally crack open my deep fat fryer to make donuts this weekend. Any advice for someone who's never used a fryer before? Also, any good recipes?I don't like the cake style (krispy kreme), prefer old fashioned or cruellers. Would also appreciate freezing tips. Thanks! Megan
  17. megsybeth
    Thank you for this. It's so hard because it impacts (no pun intended) where and for how long he can go to school. He hides the staining from his teachers even though he's in a preschool that's supportive. He's going to a new school in June for summer camp and then full time in Sept. I'm worried if we can't fix this he'll be asked to leave..
  18. megsybeth
  19. megsybeth
    I wouldn't retest if you mean putting her on gluten. Not at this age. So much of the brain is forming and do you want to deprive your daughter of a little bit of fat and nutrition for that brain? I have a nearly five-year-old with developmental delays, delayed growth that I believe are strongly linked to my celiac and his gluten issues. I just find the thought...
  20. megsybeth
    He's definitely being followed by a pediatric gi. I haven't done anything not recommended by them. I do think there's also a misunderstanding about what I'm giving him to drink. We drink seltzer which is pure water, sometimes add a little lemon. I also had some Martinelli's sparkling cider which had some juice in it. I think fructose can soften stools but...
  21. megsybeth
    One of my most recent symptoms before diagnosis was cankers sores. I've had them all my life. Other celiac symptoms went away over the years but these stuck. Since going gluten free I get them occasionally and mentioned to my celiac specialist and she says the symptoms can last a while. But they're getting a lot better and less comon. Today my son, who...
  22. megsybeth
    Thanks, Irish Heart. I do give him probiotics every day. I'm not able to adjust when he gets them (some do better a few hours after eating) because there is just too much on my plate. And I'm not really sure if I should adjust the dosage beyond what is prescribed. I guess sugary soda isn't accurate, it's not high fructose corn syrup, just these sparkling...
  23. megsybeth
    My son has non (?) celiac gluten sensitivity. The main symptom before diagnosis was explosive, horrible, horrible diarrhea. Well this is not a crowd that probably needs me to explain =). But he also has this other extreme. His most recent doctor recommended a book "The Ins and Outs of Poop". Great book with gross name and even grosser pictures. The book makes...
  24. megsybeth
    Oh no, this is not a good idea. I can understand the appeal of testing young, for some procedures that does make sense. But do you know what makes a brain? Fat. Cholesterol, fat. Your child is doing some of the most important neurological growth right now. This is why nutrition and high calorie diets are so critical. You cannot consider depriving your child...
  25. megsybeth
    Hi Everyone, I thought it might be nice to post how we're doing, especially those of us newlyl diagnosed. I haven't posted here much lately because DS and I are both well on our Gluten free way but this board was so great for me when I was first getting tested, diagnosed and dealing with symptoms that I wanted to report back. I think I've had celiac for...
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