
zamm0
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by zamm0
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To provide a bit of balance I was diagnoses Coeliac/Celiac Sep 2012 and have had the rash. TBH it pre-dated the diagnosis in a mild form by about 18 months. Anyway, I would say my DH has practically vanished as of 2 months ago. One thing I will say - there are triggers other than gluten IMO e.g. I have a suspicion central heating isn't good for it, and I...
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Or cycling - because it's low impact and you'll be able to do more of it. Running is better for losing weight as weight-bearing but easy to get injured. If I were you I'd mix the two.
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ARCHIVED Low Calcium (After A Year Of No Dairy)
zamm0 replied to Pegleg84's topic in Food Intolerance & Leaky Gut
Went to see a dietician last week and the one thing she picked up on was calcium supplementation now that I've cut right back on dairy (lactose was giving me gastric pain which was higher up than my "gluten pain"). She suggested 1500mg a day but it's pretty hard to hit that with normal diet - I eat alot of sardines and there is quite a bit of calcium in those... -
ARCHIVED Endurance Issues And Exercise Intolerance
zamm0 replied to Jen-1984's topic in Sports and Fitness
I think that's the key point and that you need to give things a few months, possibly even a year or two. I get the impression you are still fairly young? Plenty of time to get fit again and achieve all those goals. -
ARCHIVED Intense Exercise : Good Idea Or Not For Us Celiacs?
zamm0 replied to zamm0's topic in Sports and Fitness
Firstly, I will say that the Elocon corticosteroid I use works brilliantly. However, I don't think very long term use is ideal so I'm trying to wean myself off of it - now trying to use it once a week and very very sparingly. While ice packs relieve the itchiness I would say only the Elocon gets rid of it without waiting a long time for it to go on it's own... -
ARCHIVED Intense Exercise : Good Idea Or Not For Us Celiacs?
zamm0 replied to zamm0's topic in Sports and Fitness
Another point I'd like to make to do with DH - and I think it's more pertinent to put it here than in the DH forum. One of things that does make DH worse is heat and sweat....so here in the UK it's seldom that warm so I've found going out on bike as per usual gets my mind off the DH and as long as you don't overdress the heat is not an issue. Same with indoor... -
Hello people. I have heard colostrum can help heal the gut and can be used as a preventative measure prior to exercise. My questions are: 1. has anyone had good/bad experiences with using it? 2. does it contain the same components as regular milk that cause many people to abstain or reduce milk intake during early stages of gut healing? fwiw i am 5 months...
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ARCHIVED Intense Exercise : Good Idea Or Not For Us Celiacs?
zamm0 replied to zamm0's topic in Sports and Fitness
At no point have I found any difference in how I feel after working out pre or post diagnosis. The problem is the more you read on what can affect the gut integrity the more you think moderation is imperative. I've just been reading about 'Leaky Gut Syndrome' and how being Celiac fits within that context. It would appear that if you are doing absolutely everything... -
FWIW - I'm trying to wean myself off steroid cream for DH by using ice-packs. It's working well so far - a 10min application seems to stave off the itching for ages.
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Well this is one thing Coeliac (sorry Celiac) Disease can't do to me....male pattern baldness got me years ago :-)
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ARCHIVED Long Term Use Of Topical Steroids To Control Dh
zamm0 replied to zamm0's topic in Dermatitis Herpetiformis
First paragraph appeared to confirm my suspicion: Open Original Shared Link i.e. steroids (and the assumption I am making is that this include topical steroids) can reduce white blood cell numbers. -
ARCHIVED Intense Exercise : Good Idea Or Not For Us Celiacs?
zamm0 replied to zamm0's topic in Sports and Fitness
Cheers for the reply. This is the problem though isn't it if you've been used to and enjoyed pushing yourself to see what you can do? My tests don't show lipids but I will bear in mind - I try to eat oily fish at least 3 times a week and other good fat sources too. FWIW - b12/folate are fine and iron is on it's way up so obviously absorbing more (63>7... -
ARCHIVED Long Term Use Of Topical Steroids To Control Dh
zamm0 posted a topic in Dermatitis Herpetiformis
I understand the above work (and in my experience the one I use which is Elocon works well) by supressing immune function to inhibit DH when it flares up. Does this mean over time it can reduce white blood cell count? Mine has gone down since I started using it on a sporadic basis 2.5 years ago. Cheers. -
ARCHIVED Intense Exercise : Good Idea Or Not For Us Celiacs?
zamm0 posted a topic in Sports and Fitness
Hi there, diagnosed 4 months ago and been gluten-free ever since. Only ever had mild symptoms including DH. I've been fairly physically fit all my life but last 3 years I've cycled competitively. This has involved intense training and racing. Often >95% of max heart rate and up to 15hours a week of training. I feel absolutely fine and 2012 was my best... -
Same as the title really....can DH flare-ups be a signal that the body has recently taken in gluten, however small? As per here: Open Original Shared Link FWIW - I've had DH for a couple of years now and found that elocon seems to dampen it down quite well. I tend to use it very sparingly. Lately I'm experimenting with not using the elocon to see if it...
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ARCHIVED Is This Dermatitis Herpetiformis? (Pics)
zamm0 replied to fitnessfreak's topic in Dermatitis Herpetiformis
not like mine -
ARCHIVED Daughter Dxd Dh Celiac, Went gluten-free, But Dh Persists
zamm0 replied to Grace's mom's topic in Dermatitis Herpetiformis
FWIW I've been gluten-free for 4 months (antibodies now test negative) but still have DH. Ive had the latter for more than 2 years but would say it's relatively mild - annoying yes, but doesn't stop me sleeping or anything thank God. -
Yes, could be. Infact I have DH and those pictures look very similar. I've had it for >2 years and it pre-dated my Celiac diagnosis by almost as much. Since going gluten-free four months ago I've now tested negatively for Celiacs i.e. the diet is working. I still have DH though, it's not too bad - elocon used very sparingly calms it down pretty well. I...
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ARCHIVED Blood Test - Good News And Bad News (I Think)
zamm0 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Ok, so had the positive Celiac diagnosis from a blood test around 4 months ago. I decided i needed a follow up blood test as want to see how I'm doing (possibly a bit early I know). My ferritin was low so was pleased to see that has responded to supplementation and I note B12 and folate are fine. Celiac antibodies are now negative. However, red blood cell... -
ARCHIVED Gluten-Free Bakeries - Bit Of A Long Shot!
zamm0 replied to zamm0's topic in Gluten-Free Restaurants
Glutafin fresh sliced bread is now the best I've found. Their long-life bread isn't quite as good ;-) -
ARCHIVED Coffee
zamm0 replied to Mrs. C's topic in Gluten-Free Foods, Products, Shopping & Medications
Sorry this is only really applicable for UK readers but here goes and just for info really: 1. Tried two Costa Mochas over the last two days and did not get a reaction and felt fine (their 'Flat White' coffees have given me a mild lactose-like reaction). See here for details: Open Original Shared Link 2. For the Cafe Nero chain see here for gluten details... -
ARCHIVED Coffee
zamm0 replied to Mrs. C's topic in Gluten-Free Foods, Products, Shopping & Medications
Have to say I have noticed less of a trend for reaction (and it is always so mild anyway with me) with my own coffee made in a cafetiere. I use Starbucks Verona blend from Asda with a little milk. I am more likely to get a reaction when buying a coffee out and particularly with ones with a higher milk content such as lattes and cappucinos (lactose issue rather... -
ARCHIVED Rice Krispies
zamm0 replied to es2443's topic in Gluten-Free Foods, Products, Shopping & Medications
I'm glad this one has been dug up. The Celiac organisation Food Directory List says in the UK that Tesco own-brand Rice Krispies are within 20ppm. I've been eating them and my symptoms are quite mild anyway so hard to detect whether they are OK or not. My instinct is that Asda own brand Cornflakes are more innocuous FWIW. The problem with cereal in the 'Free... -
ARCHIVED Quick Plug For Glutafin Sliced Bread
zamm0 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Diagnosed Celiac about 6 weeks ago and have always been a big bread eater. Tried a range of brands from the big four UK supermarkets - the Genius brand was about the best. However, there is a new king for me - Glutafin brown sliced is even better. I will say though that in my limited experience the Genius branded goods are excellent - their savoury pies for... -
ARCHIVED Updated List Of L'oreal Gluten Containing Products
zamm0 replied to birdie22's topic in Gluten-Free Foods, Products, Shopping & Medications
Sorry what does this mean - I use a L'Oreal shaving balm (like a thick moisturizer) after shaving - should I discontinue use?