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joolsjewels

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Everything posted by joolsjewels

  1. joolsjewels
    Dissappointing Day: i went to my fibro dr today and told her about the last 6 weeks. She looked right at me and said, "Well, I am sorry that things have been going so badly, but there is nothing else I can do for you. Just continue looking for the medical causes."!!!!!?????? No advice, no general direction, just continue with what you are doing. Thanks! ...
  2. joolsjewels
    What kinda of reaction did you have to peas? Bloating, extreme gas? I had those problems a few summers ago with peas, but also with carrots and tomatoes. It turned out to be sugar and more specifically yeast overgrowth. The sugars, even natural sugars in fruit and veg, caused a painful explosion in my digestive tract. Even soy milk and rice milk have sugar...
  3. joolsjewels
    I have an appt with my fibro dr tomorrow. I have several questions for her. Maybe i can make some headway as well as an upcoming sleep study.
  4. joolsjewels
    Hopefully, the sleep study will be this week. I think i am going batty. What probably compounds the problem is that we only have one car. My husband uses it for work and is working alot. So he gets done with a job, calls me to see if i need anything from the store, picks up a few groceries, and like tonight got home at 8:15. This is pretty normal so i am...
  5. joolsjewels
    Feeling like crud today. I can not decide if its just pms or i am just having one of "those" days. I am still having problems sleeping. I went to sleep at 8 pm then woke at 11pm. I tried to go to sleep at 2am, but emotions got the better of me. Now who knows if i will sleep and who knows what this is really about. Maybe i am just exhausted and overwhealmed...
  6. joolsjewels
    I also contacted Biolage about their hair products. Some contain soy. Some clearly state on the website that they contain wheat. I have asked about other specific products that i use via email. They are prompt in their responses and give concise answers. The ones i use do not contain gluten. Hope that gives you another hair care option.
  7. joolsjewels
    Julesglutenfree.com has a great thanksgiving cookbook. My first thanksgiving was intimidating, but this cookbook helped so much. I make all the fixins, but pick up the turkey from Boston Market. It saves so much time.
  8. joolsjewels
    I just got back some more bloodwork. My creatinine which was originally mildly elevated came back normal this time. Yeah no kidney probs. I have had stones in the past, but nothing since 2005. However, my cholesterol is extremely high. Starting cholesterol meds asap. I also have a stress test wed. Then another sleep study later on. Crazy things have been...
  9. joolsjewels
    In general, do not waste your time on olive garden's Gluten-Free pasta and sauce. It is so nasty! My dad was in the navy for 24 yrs and i have had better pasta on the ship when we visited him. OG's pasta was mushy and the sauce tasted of ketchup. They do prepare it separetly in the microwave and i did did not get sick from the few bites i ate. The manager...
  10. joolsjewels
    If your girlfriend has to change makeup, clinique is a good option. I call them and ask about each individual product that i use. They always tell me what allergens are present in each product. They do not claim to be Gluten-Free, but none of the things i use have turned out to contain gluten. Some do have soy, but that does not bother me. The hotline numbers...
  11. joolsjewels
    My gp is waiting to change any of my meds until after my stress test and then another sleep study. But i will keep those meds in mind. Gottaski, you asked about exercise- i was able to walk 4 mi everday until feb. All of a sudden my fingers turned blue. That night i woke up in the worst pain of my lfe and my feet were swollen. Since then, i can only wear...
  12. joolsjewels
    CeliacAndCfsCrusader, Thanks for the info. I currently take ambien and feel like i have been beat up. I have had fibro for about 13 yrs, but it intensified a few years after having walking pnuemonia. Recently, the symptoms stepped up again. In the past year, i had two severe sinus infections ehich require strong antbiotics and steroids to clear up. I am...
  13. joolsjewels
    Oh, someone asked how long i have been Gluten-Free-3 1/2 yrs. I am very consistent about it. The only times i have been contaminiated are accidental. About different foods eggplant-the oil makes my stomach sick. I use to eat sweet potatos a lot, but now there is something about them i just do not like.
  14. joolsjewels
    I do have fibromyalgia, but this is weakness rather than just pain. Other conditions include: pcos/infertility, sinus probs, migraines, high blood pressure, joint pain, dry eyes, photosensitivity, acid reflux, nights sweats and chills, swelling in my feet and pain without redness, endometriosis, low vit d, low iron, gluten intolerant, lactose intolerant,...
  15. joolsjewels
    I just had my thyroid tests done last week. They ran a full and complete set of tests. Everything was "normal". I am bed bound. For instance, its takes me hours just to work up the strength to take a bath. I just did that. Now i feel worse than before. I can not get off the couch and it will take hours before i can do anything again. My arms and head feel...
  16. joolsjewels
    Does anyone have CFS? What are your symptoms? Who long did it take for you to get diagnosed? What other health problems do you have? Have you seen any improvement? One by one, my dr is ruling out problems and adding minor things to my ever growing list. In researching CFS, it sounded eerily familiar. The symptoms are naerly word perfect. Please share...
  17. joolsjewels
    Oh forgot, someone asked about hobbies. That made me smile. I cross stitch. I think that is gluten free;)
  18. joolsjewels
    I found out from my lab work that my iron is low. Dr wants me to take 325 mg/day. My vit D is low. I need to take 1000 IU/day. Finally, my A1C is being run and i need to go back in a week to get my kidney function retested as it is running a bit high. To the other questions, i am very strict about using Gluten-Free hba products and meds. My husband, not...
  19. joolsjewels
    My dr did change my med to pristiq and take labs. So time will only tell if this works and what outcome there is from the blood work. In the long run, i just need to work up the courage to get some counselling.
  20. joolsjewels
    I tried wellbutrin before and let me tell you i will never do that again. I had every side effect you can name. I am going to ask my GP for a couple names for psychiatrists when i go in.
  21. joolsjewels
    What are your endo questions? I have gluten intolerance, endo, and polycystic ovary syndrome. A gluten contamination reaction comes quickly after the offending food is eaten. The symptoms are stabbing pain in the stomach, stomach cramps, diarreah, nausea, body aches similar to the flu. Whereas endo symptoms are more lower back pain, (sorry for the next few...
  22. joolsjewels
    Wow this thread goes way back. My mom and i both have fibro although she has never been diagnosed officially. I also have gluten intolerance, lactoce intolerance, insomnia, migraines, and restless leg syndrome. There are some other problems, but that is what relates to this post. My experience with fibro started in college. Over the winter of my junior year...
  23. joolsjewels
    I think it is difficult for others to see what we have had to go through and do not want to admit that they might have a similiar problem. Both my parents and my brother have auto immune disorders which are associated with celiac diease. I too have suggested that they get tested just to be certain. Of course they will not. I really do hope your family get...
  24. joolsjewels
    I tried Biotin for a couple of months after several hair dressers recommended it. It actually made the situation worse! I too have PCOS and of course the thinning hair goes right along with that. Since my GYN put me on metformin two months ago, my nails are growing like crazy and are much stronger. I have not seen a difference in my hair.
  25. joolsjewels
    MitziG, thanks for the advice about the vit deficiencies and horomonal levels. I have not had these checked in a long time. I made an appt with my gp for thurs. I already take prozac, but something else is going on as i adhere to a strict Gluten-Free diet. The depression has been going on so since June and i have rarely left the house. I am exhausted all...
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