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rehh05

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by rehh05

  1. rehh05
    If your blood tests do come out as negative, and they might, you can ask for genetic testing to rule out celiac and an endoscopy to check for damage. I was in a similar situation years ago. I was gradually getting more and more tummy problems, a friend suggested cutting back on gluten and bam, I felt better when I did. So, when I finally was able to...
  2. rehh05
    Right side pain under the rib can also be gall bladder. I had problems with that before finding out about my celiac and thyroid issues. It can be extremely painful.
  3. rehh05

    ARCHIVED Overwhelmed

    rehh05 replied to Mortiis's topic in Coping with Celiac Disease

    Well, first of all, self diagnosis is tricky at best. It is possible you may have other food sensitivities or allergies or something else is going on with your digestive system. Did you have the celiac panel run before you went gluten free? Did your GI doctor do an endoscopy and take several samples to test? There are lots of things that can cause digestive...
  4. rehh05
    My thoughts, as a non-medical celiac person who has the genes, is talk to your doctor... And don't do anything right now based only on the genetic test. People can have the genetic markers and not develop the disease or symptoms until they are middle aged or more. The genetic test, as I understand it, tells us who might develop celiac not who definitely will...
  5. rehh05
    Well, if I were you, I would go see your doctor and talk to him/her about all this. Tell your doctor about your anxiety. When I finally did, my doctor prescribed a low dose of an anti-anxiety med and it has made a world of difference in my life. About the whole thing with the B12 and the weird symptoms . Keep taking the B12 in the meantime to...
  6. rehh05
    I agree with the previous posts. Get some reliable info. Also, have you had your thyroid checked? Might be something to think about. Just don't panic, breathe... Keep your blood sugar where it needs to be. Good luck figuring it all out!
  7. rehh05
    Could your child be being exposed at school? Maybe sharing snacks? Or crumbs from someone else's lunch getting into your child's lunch? Exposure from play dough? I teach pre-k and know I have to be super super careful with myself with all the crumbs from the children's wheat based snacks all over the place. And play dough gets into everything once it gets...
  8. rehh05
    That seems kind of backwards to me. Usually they use the biopsy to confirm the blood tests, I think. I know one can test negative on the blood tests and still be positive on the biopsy and have celiac, so ... Hmmm... It will be interesting what they end up saying about you.
  9. rehh05
    Believe me, no preschool teacher wants to deal with D if it can be avoided by something as simple as providing gluten free alternatives... You may need to send in gluten-free bread and crackers for your child, and possibly play dough, but if you are not able to get a 504plan, try working with the school's administration, teachers, assistants, and nurses...
  10. rehh05
    For what it's worth I tested negative on the ttg blood test as I had been gluten free for a long time prior to being tested for celiac. I had the genetic marker test to rule out celiac but those were positive, so we did the biopsy. The biopsy was positive even though I had been gluten free. I am now extremely carefully gluten free and can tell I am healing...
  11. rehh05
    I am a teacher in a public school preschool program and I have celiac. Yes, you can ask for a 504 plan. But make sure that you talk to everyone who has anything to do with your daughter. The preschool will be vigilant but will not eliminate wheat products from the school. You will need to politely and pleasantly advocate for her and educate the staff....
  12. rehh05
    Thank you, Kitty... I had not thought of that difference... I think what I had was stomach flu, but since my reactions are changing now, I was wondering how to tell.
  13. rehh05
    Thank you all! I suspect it was flu, but got to wondering how I would tell.... The only accidental cc episodes I knew about were very minor ones and I got nauseated and then mild pain and D later, but no fever. Since I have not purposely eaten gluten for such a long time, I am not completely clear how my body would react to a bunch of it :-) I think...
  14. rehh05
    How do I tell whether I have come down with stomach flu or am suffering the consequences of accidental gluten exposure? Last week, one night, I started vomiting in the middle of the night, and kept it up until everything was out (from 1-7 AM).. then had chills , head ache, and body ache... started with D around 10:30AM and had that until evening until...
  15. rehh05
    I would take a proven drug in a heart beat... but I would not participate in a drug test.
  16. rehh05
    interesting abstract, thanks! Fortunately, they did not find any evidence of crohn's in the pathology report. it is interesting to me that his first impressions, based on what he saw during the endoscopy and colonoscopy changed dramatically when my pathology report showed villous atrophy. I am glad that that at least now I can say that a doctor has told...
  17. rehh05
    got my test results back today. I have the DQ8 marker... so can't rule out celiac... he didn't really say I have celiac disease, but wants me to go see a registered dietician to follow a gluten free diet... I explained again that I have been gluten free for 4 years and have been very scrupulous (as much as I can be) for 2 years... he told me to humor him...
  18. rehh05
    Thanks for the comments I had not previously heard of SIBO... that is a good idea... also, I am reading all I can to learn more so when I go in again I can ask better questions. I knew you folks would help
  19. rehh05
    Hi, I am new here, but thought you all might have some insight. My great grandfather died of Sprue. I have 2 cousins who react to gluten. I have been having problems for years and 4 yrs ago a friend suggested removing gluten from my diet. I felt better, and have become quite vigilant about remaining gluten free and mostly dairy and soy free. I was dxed...
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