Jump to content

designerstubble

Advanced Members
 View Profile  See their activity

  • Posts

    312

  • Joined

  • Last visited

  • Days Won

    1

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by designerstubble

  1. designerstubble
    Thanks for replies... I am still waiting for appointment... not a nice time, but appreciate you replying ❤️
  2. designerstubble
    Hello friends Its been years since I was on year, diagnosed 6 years ago... I had a 2 year recovery but have been well for a long time. For the first time ever, I accidentally consumed wheat starch in a vitamin tonic. I had no awful symptoms (vomiting/diarrhoea) except a very tender abdomen, especially in pancreas and liver area... A week or so after...
  3. designerstubble
    Hi there Just wondered if you found anything out about that lymph node... Is it still there? I have one too... I'd love to know what happened to yours and what docs said if you went?? All the best Kimmy
  4. designerstubble
    Hi all Its been a while since I have been on here... I'm just wondering what the risks are with Lymphoma being Celiac... I have had a supraclavicular node swollen for about 8months now, doctors are being rather useless as usual... And all have dismissed my linking celiac to lymphoma... I have been online to see what the risks truly...
  5. designerstubble
    Hi Kaile Only just seen this, sorry... Its been a stressful few months. How many and how big are your nodes? Are they still there? The supraclavicular ones are the 'worrisome' nodes unfortunately... This is what I have. I am still under testing and watch and wait... All the best Kimmy
  6. designerstubble
    PS. I picked one... "He who fears he shall suffer, already suffers what he fears" Massive thanks and hugs
  7. designerstubble
    Bartfull, thanks so much...Yes, I need some Ostrich! I must be like your mum! Although I am generally pretty laid back, except when it comes to a fear of dying... Which has intensified since I had my little boy. Thank you for the link, I will look tonight :-) And I will keep one to carry with me. Thank you so much (weep)... I am so glad you got corn and...
  8. designerstubble
    Thankyou RMJ... Thats reasuring a little.... I do hope mine is the same....It is sinister because of my age and because of its location, as you are not supposed to be able to palpate these nodes freely. :-( I know it wasn't there before... Its 1cm ish and hard. Hard apparently isn't good either. Ugh! Thanks for replying, everyones support means a lot, fingers...
  9. designerstubble
    Thanks Iceland girl Everyone on here is so lovely, and of course right with advice. I just want to rule out the sinister reasons for this lump in my collar bone, and it all points to malignancy... Apparently 90 percent of those over 40 with enlarged nodes in collar bone are malignant. It really has petrified me. I feel well apart from hiatus hernia symptoms...
  10. designerstubble
    Hi Nvsmom, how you doing?! Oh it's so lovely to talk to guys again (ladies!)... Thanks for replying. Yeah, I guess I have such awful rouble previously with doctors that I search Dr Google to eliminate any sinister possibilities myself, and actually end up going down the dark alleys. Funnily enough, I quit sugar 3 weeks ago! Before any of this. I doubt...
  11. designerstubble
    Bartfull! I remember you from a few years ago! How are you doing? Are you eating maize yet?? Thanks for replying. Send me some ostrich syndrome pleeeeeeaaaaaase. I'm having a real bad one here. I hope you are right about the 99.9999 percent... I have had SO much bad luck since my celiac diagnosis, the latest a diagnosis of a brain fistula bought on by dehydration...
  12. designerstubble
    Thank you for replying! I am sorry you are going through tough times too. Thanks for being so positive, I know I need to try and get on and try to ignore... Being medically minded I am looking for answers on Dr Google... to my detriment. As much as I don't want to die, for myself I want to live! But it is more for my little boy, we are so very close, and...
  13. designerstubble
    Thanks Colleen. Thats a fair response I guess! I can't help myself on Doctor Google... I am quite medically minded (possibly to my detriment)... It's so upsetting as I have tried so hard to stay healthy, I hardly eat any processed food, exercise as much as I can... I'm gutted at the moment... All I can think of is my little boy :-( Thanks for responding
  14. designerstubble
    Hi everyone Its been a while since I have been on here... I have been slowly recovering from my diagnosis of celiac disease... And have had ups and downs, various problems... All of which are sorted or being sorted! However a few days ago, I accidentally discovered a lump on my clavicle. Thinking this was strange and wondering whether it was a swollen...
  15. designerstubble
    I juice my raw veggies, and have smoothies sometimes . Struggled with salads for ages after dx. I also am dairy, corn, caffeine intolerant! Had lots of other intolerances too that slowly disappeared. Sugar used to bother me but I eat dark choc now. And loads of bananas!... If you know you made a few mistakes in the first couple of months then just discount...
  16. designerstubble
    I beg to differ with saying that vitamins are a scam. It's unfortunate that our lands are over farmed and that our foods contain at least 35% nutrition than 50 years ago. Add into that GM and Monsantos chemicals, and modern society's predisposition to eat highly processed food, you will find most diets highly deficient. I would also suggest you research the...
  17. designerstubble
    Gemini, I've been wanting to ask for 'your' celiac story for ages! You seem so well informed, and healthy now. I hope you don't mind me asking, but how did you get diagnosed, and what foods do you eat now? Do you have any intolerances or did you have any problems post dx? Hope you don't mind me asking
  18. designerstubble
    Thanks Gemini... Yes I think you're right. Fortunately I don't catch every germ my son has, just the nasty ones... And probably because we are very close! I like the fact that you said celiacs have an over active immunity... My recent 'flu' lasted only 5 days ( the worst of it) and I felt much better (before catching another infection!)... Everyone said...
  19. designerstubble
    Yes, mine seemed to stop when a started vit d... Coincidence?? I don't know tbh. But I still take it just in case !!! I have a few tufts at hairline but would LOVE an all over growth spurt, love my hair to be thicker again... I wait and hope! X
  20. designerstubble
    Same as me!! I am also corn free (complete nightmare I must say) and have had avoid other food due to sons allergies such as nuts, legumes. All in all a complete pain the....!!!! Keep at it... 8-)
  21. designerstubble
    I am 14 months in gluten free, just has my repeat biopsy (normal), but I still suffer with loose bowels very often... I also juice, and sometimes my guts hate salad... Interesting. I used to have joint problems, and all sorts of strange body pains, thankfully they have mostly resolved although I seem to suffer with tendinitis a fair bit. My diet is very restricted...
  22. designerstubble
    Aw thanks guys. I'm still not where I need to be, but I just thought sometimes it's nice to hear some success. I know when I was diagnosed I looked for any possible success threads! We are all or have been looking for hope that things get better. I just wanted to share, to show that slowly but surely it can be done. It took a lot of green juices and food...
  23. designerstubble
    Thank you so much, wow, no spleen. How did you know there were problems with it? Did you have symptoms? I also am not in favour of vaccinations unless essential. I would never have thought of it until I read this article on the UK website. And then wondered about my own illness this winter. Don't get me wrong I haven't been dreadfully ill, I've had flu...
  24. designerstubble
    Thanks for that, that's interesting stuff, I will check the links out. I didn't know that about Hep B. I wonder why that is then? It's interesting also generally because on the UK website it seems as though they are insinuating that a celiacs immunity IS compromised therefore we need to protect against via vaccination. I guess all of my colds/flu could just...
  25. designerstubble
    Diagnosed 14 months ago Marsh 3b, scalloped duodenum, hiatus hernia. Subsequent intolerances to MANY foods. Severe anaemia, low vit d, major hairloss, severe adrenal fatigue, melasma, night sweats, neuropathy, depression, etc! Repeat biopsy shows 'essentially NORMAL ' Not sure what they mean by essentially but normal sounds good to me. I came back on...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.