designerstubble
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Latest Celiac Disease News & Research:
Everything posted by designerstubble
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ARCHIVED Help. Pain In My Gut & Not Digesting, Probio's
designerstubble replied to designerstubble's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks my lovelies. Your all great help, it's just nice to know I'm not on my own. I thought by now I would have picked up a bit... gluten-free for over 6 months. I'm down in the dumps today, I want to reply to you all individually but I'm so cross and upset with this new 'pressure hives' situation that has been coming on slowly (and peaked today with most... -
ARCHIVED Pressure Hives Now? Can't Take Much More
designerstubble posted a topic in Coping with Celiac Disease
Pressure hives anyone?? Has a few minor incidents the last 2 months around my wrists and inner forearm when carrying shopping... And the other day from my sons head laying on me... I just thought it was dust or something... But today... Welts on inner arm from carrying a basket around the supermarket? I looked it up and pressure hives seems to fit the bill... -
ARCHIVED Help. Pain In My Gut & Not Digesting, Probio's
designerstubble replied to designerstubble's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks for that... thats a good idea about trying more of something...these elimination diets are so exhausting. Interesting that the probiotics havent made much difference for you, i have just read a thread where everyone was saying how good they are...it's so confusing, i thought they weren't doing much but maybe they were? Aaaaaaaagh! My strict diet is... -
ARCHIVED Help. Pain In My Gut & Not Digesting, Probio's
designerstubble posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi... Any ideas... I have been on my strict diet a while now, all going ok, was feeling... dare i say it... good! But slowly, my BM are not good, undigested food EVERY time, VERY loose, not formed at all. And I have a pain in my top right corner of my abdomen... right by the lower rib. Somethime achey, sometimes pinchy. I dont want to worry (I'm... -
ARCHIVED Celiac And Food Allergies
designerstubble replied to durrsakja's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I become allergic to all sorts of things after going gluten-free. Spices Eggs Tomatoes Herbal Tea Celery Squash All citrus Pumpkin and Sunflower seeds Intolerant to corn & quinoa & dairy & soya & caffeine (digestive symptoms only) Asthmatic, hives, eyes swelling, ezcema. Its an upward struggle for me at the moment, i'm survivng... -
ARCHIVED My 6 Year Old Son, Worried
designerstubble replied to designerstubble's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yep, getting the forms for a new doctor today... seriously... i had a telephone 'chat' yeaterday with him... he said it's nothing to worry about, but we'll keep a close eye on him.... huh??? why do you need to keep a close eye on him if he's fine? he spent 10 minutes telling me it was completely normal. So. EE. Interesting, what are the symptoms?? I will... -
ARCHIVED My 6 Year Old Son, Worried
designerstubble replied to designerstubble's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you for that, really appreciated. And useful. The whole allergy thing is a nightmare, my son has multiple food allergy. And funnily enough, as he was being tested for celiac i tried to get more gluten into him everyday (not much gluten in our house), and his lips started swelling on bread rolls??? What a nightmare. Im SO exhausted by it all, it's... -
ARCHIVED My 6 Year Old Son, Worried
designerstubble replied to designerstubble's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
thanks for that... what was the outcome may i ask? has she got celiac? or eosiphiniloc thingy? (can't spell it either!!) it's so worrying, i know my son does have allergies but hasn't had any reactions to anything recently... i can just about cope with all the crap that i have just been through, but now for my little angel, i really can't bear it. ... -
ARCHIVED My 6 Year Old Son, Worried
designerstubble replied to designerstubble's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks Diana for answering. This is all so stressful I live for my little boy, this has really knocked me down. I hope you are right and someone knows something helpful and calming -
ARCHIVED My 6 Year Old Son, Worried
designerstubble posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello everyone It's me... again! Anyone out there know about kid's blood tests? I'm still waiting for my son's celiac panel to come back but in the mean time he's had his FBC done. Most of it is normal... except his lymphocytes are REALLY down 2.4 (range 5.5-8-5) and eosinophils are up 0.7 (range 0.0-0.4) My doctor said its all fine, not to... -
ARCHIVED Sore Lymph Nodes?
designerstubble replied to PRG's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hello Just wanted to reply to you as you described exactly what I went through 3-4 months ago. I freaked out too, worried, scared myself stupid on google, but all the time knew deep down inside it was probably my body overloaded with toxins and just trying to flush the rubbish out! My symptoms lasted a few weeks and slowly disappeared over another week... -
ARCHIVED I Have A New Allergy! Frustrated!
designerstubble replied to pretty in paleo's topic in Food Intolerance & Leaky Gut
That was really helpful just wondered... What kind of allergic reactions did you get to food??? Also how long before you started reintroducing these foods? It's an amazing thing to have gained them back like that, what luck to fall on such a good consultant! Well done to you... I hope I get there too, I have hardly nothing to eat due to real allergies and... -
ARCHIVED I Have A New Allergy! Frustrated!
designerstubble replied to pretty in paleo's topic in Food Intolerance & Leaky Gut
I am 5 months gluten free, recently started reacting to corn. Amongst my many other allergies and intolerances. I get worse gi and toilet symptoms with corn it seems?! But no massive fatigue just feel a bit crappy. I have days when I don't care I just wanna feel well. I have days when I simply have had enough... Especially when I wonder' if I am healing... -
ARCHIVED Cheese Again
designerstubble replied to designerstubble's topic in Coping with Celiac Disease
I understand your pain!! I am dairy and gluten free. And corn free (almost worse than gluten cos it's everywhere and in everything)... Caffeine free, citrus free, egg free, processed free. Also asthmatically allergic to dates, quinoa, seeds... Paprika, celery gives me hives... Etc etc, so on and on. It's a nightmare. But it's doable as Irish heart says and... -
ARCHIVED Cheese Again
designerstubble replied to designerstubble's topic in Coping with Celiac Disease
Hi I always had a diarrhea episode (4weeks long) when I ate too much pizza! And had the classic pale stool thing too! I think it was too much cheese, it was always on a fat overload day that it tipped me over... I love cheese and ice cream too. I dream of cheesy baked potato, followed by green & blacks dark choc ice cream.... Oooooooo yum! I'm serious... -
ARCHIVED Cheese Again
designerstubble replied to designerstubble's topic in Coping with Celiac Disease
Thanks Irish. I too was also quite shocked which is why I came on here to ask... I thought it over a few days, looked it up... And thought exactly what you said ... If that the case, wouldn't everyone that ate cheese be malnourished! I have to go back for pee analysis (payed money for it!)... So will seem it to be my last appt with her. I am going to show... -
ARCHIVED Cheese Again
designerstubble replied to designerstubble's topic in Coping with Celiac Disease
I cannot say if word for word this is EXACTLY what she said but I'd say my rendition is 85% there. The meaning however is completely there! She even drew me diagram to show how dairy 'coats' the lining over the villi. She asked me if I'd ever heard the old wives tale, 'drink a pint of milk before you go out drinking alcohol'... Obviously I have. She said... -
ARCHIVED Cheese Again
designerstubble replied to designerstubble's topic in Coping with Celiac Disease
I will order the book tomorrow thanks for the link. Yes, I know we touched on the subject before, it's just that I saw this new doc, I had high hopes for her and actually she has the been the best so far! I think she meant that as a celiac we never recover all of our villi, especially if we have been severely affected. Therefore eating dairy coats the villi... -
ARCHIVED Cheese Again
designerstubble replied to designerstubble's topic in Coping with Celiac Disease
Thanks takala! You made me smile, thank goodness for people like you!! I am in the UK. I personally believe we are a little behind on the times with regards to celiac. I lived in London until recently, I had a great doctor, but useless gastroenterologist. This consultant told me I should have healed in 9wks! I was gluten free for 9 weeks before biopsy... -
ARCHIVED Cheese Again
designerstubble replied to designerstubble's topic in Coping with Celiac Disease
Thanks, that's what I thought! I am just interested because of all the conflicting advise ! Ugh! I was marsh 3, dunno what I am now... I tried once then decided to leave it for a year, but this nutritionist doctor stumped me! -
Other opinions on cheese requested My nutritionist doc (a new one) has just told me never to have cheese again as I am celiac. She said being celiac I will never completely heal my gi tract, and that cheese or dairy more specifically was detrimental to the absorption of vits and mins! Ok, kind of get her... But! Really??! I know of celiacs that eat...
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ARCHIVED Silly Question 3 (Ra)
designerstubble replied to designerstubble's topic in Related Issues & Disorders
Hope you feel better soon, poor you. Thanks for reply, I used have bouts of fibromyalgia previous to diagnosis, and my classic symptoms only appeared 6-12 months before diagnosis too. I think I had latent celiac before or silent (can't remember which one), but I was diagnosed with marsh scale 3, and had been gluten free for 3 months when they biopsied... -
ARCHIVED Silly Question 3 (Ra)
designerstubble replied to designerstubble's topic in Related Issues & Disorders
Thanks Lisa, and guess what... I've just signed myself up to train at a taekwondo class and found out the guy is England Team Captain?!! Aaaaaaagh! First class tonight oh my god what have I done. Walking up a flight of stairs is bad enough!! Anyway, docs later, fingers crossed they take me seriously. Takecare, keep the running up, I used to run 4 miles... -
ARCHIVED Silly Question 3 (Ra)
designerstubble replied to designerstubble's topic in Related Issues & Disorders
Ladies. Omg! I have not had Internet connection until now. I have been desperate to reply and thank you both for such detailed replies. Thank you so much. You've both been SO helpful. I hope you both continue on the right road with this dreaded RA. You seem to have gotten somewhere with it all... My update: joints and muscles in arms still hurt. Hot baths... -
ARCHIVED Silly Question 3 (Ra)
designerstubble replied to designerstubble's topic in Related Issues & Disorders
Thanks mushroom I will get tested, I have organised a docs appt next week. I will request these specific tests and let you know. My SED rate was low a few weeks ago but I can't remember if I had started with this flare up or not. I'll be gutted to eliminate nightshades... There'll be nothing left then to eat! May I ask a question about the pain?......