Jump to content

designerstubble

Advanced Members
 View Profile  See their activity

  • Posts

    312

  • Joined

  • Last visited

  • Days Won

    1

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by designerstubble

  1. designerstubble
    I know, an utter martyr! Gluten free, cigarette free, dairy free (snivel weep), caffeine free (slit wrists), processed and sugar free almost! ( waaaaaaaaa!) My poor poor body doesn't know what's going on. And I used to be so rock n roll! Unfortunately I'm not alcohol free. Red wine... Not a lot.. But a bit! And I look worse than I did before? Go figure...
  2. designerstubble
    I forgot that I've actually had 3 teeth removed too! Ha! So long ago. Because they crumbled. Hmmmmm. Interesting. I hope I haven't been celiac that long, though the more I read and research the more likely it's looking. Sorry for being dense but what is gum surgery? (I quit smoking 3 months ago after dx and have receding gums.)
  3. designerstubble
  4. designerstubble
    Oh that's fantastic, I'm so pleased for you. You must be very happy. Have you had any other celiac symptoms? I've also had big hairloss. I feel like Cinderella ugliest sister! So does the enamel look 'thicker'? Have you healed easily with gi symptoms? I've been looking at my teeth today! I've only been gluten-free for 3months... But my gums are pinker...
  5. designerstubble
  6. designerstubble
    Well now GFinDC, must admit you've made me laugh!!! Thank you! Google university!! I'm there now, it's a tough course! Anyway, you saw Dr Fasano? Thanks for the link btw, I've got major brain ache as I have just spent the last 2 hours reading up on him via my cell, and my eyes are crossed now. Very verrrry interesting indeed! The pregnancy fits for me...
  7. designerstubble
    Wooah, 43 years undiagnosed? That's rough. Is that perhaps why you are taking longer to heal?? You are so positive, actually an inspiration... How did you get through that first endo being told that you hadn't healed. Its my nightmare ( I've become a real pessimist these last few years, prob celiac related). Respect to you, seriously. So is this why you...
  8. designerstubble
  9. designerstubble
    GFinDC... That was really interesting. How do you know so much?! Experience I guess? and tons of reading?! So. It's basically down to immune system. And whatever it is that triggers the response in the first place. I've read that pregnancy and the rotavirus are common, does that seem right? Do you believe stress could be an indicator of how quickly...
  10. designerstubble
    GottaSki, am very glad to hear you are finally starting to heal. Do you have any idea why it's taken so long?? Really interested to know. Where undiagnosed for a long time before? Do you have any other endos coming up or was that a recent one on the marsh scale 3? I guess 3 months is a lot to ask in terms of complete healing. I'm annoyed I guess that...
  11. designerstubble
  12. designerstubble
    Skysmom! Thank you so much. Your husbands story really is quite awesome. Amazing infancy that he has no other problems with food. Was he like this from the beginning? I am wondering if he eats the usual gluten-free stuff available or if he adopted a whole foods diet. I am still struggling with bloats and gas and new allergies and ezcema. Your son Skylar...
  13. designerstubble
  14. designerstubble
    Omg. These stories are freaking me out. I have had virtually all my teeth root canaled (the molars), I have one implant and other fillings. It started as a child. I never truly thought I have had celiac since I was a child... Now I'm beginning to wonder. I have always had weak teeth... And didn't understand why as I took care if them. Like they were going...
  15. designerstubble
    What a story Skysmom. I am so pleased he's getting better. It's strange because I had some of it happen similar. Though my bouts lasted 3 weeks each time. And I was going to the toilet 20 times per day. Lost lots of weight. But it came back on in between bouts. Also I had the terrible foul smelly gas for about 2 years before... Lots of tummy rumbling and...
  16. designerstubble
    Omg! This predictive on my phone! Sorry for all the typos! I typed in 'thanks gluten-free' and it changed you to gluten free (which is probably what it stands for?!)
  17. designerstubble
    Thanks gluten-free. Hope you're right, it's quite upsetting to think I am seriously damaged I have a suspicion a am damaged throughout the small bowel as I have pains in various same places. If I get irritated they hurt. I think this is the damage. I dunno, could be wrong but feel quite tuned into it. Even if I have villi wipeout in some areas it's still...
  18. designerstubble
    Wow, your poor husband. I had bouts of severe illness too and extreme anaemia (ferritin 2.4), I was like a zombie. My doctors didn't allow me to go gluten-free, it was a risk I took. Gut instinct. (No pun intended!). They told me to stay on the gluten until endoscopy in 2 weeks. I waited 4 weeks, and watched as my notes were faxed emailed, to various consultants...
  19. designerstubble
    Chat hong??? Should've said 'charging' lol! Gotta love predictive!
  20. designerstubble
    Yes, I see! I did wonder if I'd get a false neg. but to be honest I was SO ill, and my useless doctor and local hospital spent nearly 4 months organising my endoscopy that I had to go gluten-free. (They couldn't organise teddy bears picnic honestly complete waste of space!)....(Secretly glad I did tbh). Maybe I had total villious atrophy before? And I...
  21. designerstubble
    Awesome, thanks for that... (You certainly know your stuff. More than my doctor that's for sure!!) Worrying then that there is still so much damage... ?? Should I have healed then by 3 months? I have been very strict. I have even been dairy free for last 2 months in my attempt heal. Not sue what to do now... (If my diet doesn't seem to be working...
  22. designerstubble
    Hello Jillian Where about in the UK are you?, I'm in the south about to move to Bournemouth. Sorry you're having a crap time, you're in the right place though, these guys on here are wonderful. I've just been diagnosed, gluten-free for 3 months. I had a rash very minor though compared to other pics. Mainly on hairline down the sides... A little bit in the...
  23. designerstubble
    Wow, love 2 travel! Your teeth have strengthened?? That's awesome. How long did that take being gluten-free? I have had weak enamel these last few years (obviously didn't know why), and had lots of cavities etc... Be nice to know I could possibly regain some dental health back! Also have sensitive teeth! Thanks for your story
  24. designerstubble
    Hello again Received my biopsy results finally. My useless doctor could not interpret them for me properly and glossed over it by telling me I am now confirmed coeliac. Yep! Ok, thanks for that, lovely. If any one could help... I'd just like to know what degree of damage I have. I have an idea of what it all means but being new just like some other opinions...
  25. designerstubble
    Kamma you are so very right, by far the worst symptom. My confidence plummeted. I didn't realise just how much of me relied on my hair as I've always had lots of long strong hair. I feel very vain admitting it, that losing my hair is so upsetting, I wish I wasn't so vain. It's a shame we rely so heavily on our looks eh?!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.