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Darkfire Ann

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Latest Celiac Disease News & Research:

Everything posted by Darkfire Ann

  1. Darkfire Ann
    Here is my right hand on September 25th 2012. It is clean. Now as of Dec 11, 2012. I look like a leper.
  2. Darkfire Ann
    For visual folks here is a picture of the compound I tweaked from my derm. To one 15gr tube of steroids I use 1 bottle of moisturel and 3 grams of menthol crystals. That's right THREE GRAMS. That is ALOT of menthol, trust me. The alcohol is only to melt the menthol as it is soluble in alcohol. It is partially soluble in glycerin as well but it was easier...
  3. Darkfire Ann
    I am 100MG a day. I am really scared right now it looks like four or five are wounds like infected. I am calling the derm tomorrow but i'm kinda freaked out right now. My first Dapsone dose was Nov. 27th 2012, 25MG I titered up to 100MG. This rash started in August, My right hand, the one pictured was clear on Sept. 27th. I have a nail polish picture of my...
  4. Darkfire Ann
    Thank you.
  5. Darkfire Ann
    Hand in October 2012 Leg Oct 2012 . Biopsy 1 with a bruise, then contact dermatitis around that and more DH around that. Oct 2012. Skin shedding in two hours Nov 2012. This came from a nap and drying out during said nap. I have more pictures, worse, oh so much worse but this is about as brave as I am right now.
  6. Darkfire Ann
    hidradenitis suppurativa is what I was dxed with and it is totally different than my DH. Take a google gander and see if it matches your symptoms. When Glutened my reactions are worse. I have been hospitalized for an abscess that went necrotic.
  7. Darkfire Ann
    I was dxed with this long before Celiac. Apparently MANY Celiac patients have this issue with blood sugar. I was also told alcohol makes it worse. I was a social drinker at the time. No more. I do not do much sugar and the only real starch I can eat is potatoes but I do not get sick of them ever. It used to make my SO's so sad/upset/scared. I would be starving...
  8. Darkfire Ann
    I had blood tests, all negative, I was 9 months clean. My Endo was a idiot. BUT he did send me to the allergist/immunologist. I was found to be allergic to: Wheat, Corn, Rice, Banana, Cantaloupe, Peaches, Carrots, Crab, Tuna, Fish, Shrimp, Barely, Oats, Hops, and Rye. Patch tested for Nickel, PPD, Black Rubber, Latex, Tylenol and ALL household/environmental...
  9. Darkfire Ann
    From what I understand Celiac and maybe even NCGI makes it harder for us to absorb iron. I am a red meat eating fool with a load of vitamin C to help it go down and still have to take iron pills to keep from cramping so bad I wake up screaming with leg cramps. Plus I load on Black Strap Molasses too.
  10. Darkfire Ann
    I have Panic Disorder. I am on SSDI because of it. So I was terrified of having the endo. My anesthesiologist was a godsend. He knocked me out cold and I felt nothing and woke up right as rain and thirsty. Got dressed, got a nice frozen bottle of water from the nurse and Hubby took me home where I slept all day because the extra Xanax the doctor had me take...
  11. Darkfire Ann
    Celiac disease can help along early menopause. I have read so many studied on the connection of reproductive issues and Gluten problems I cried for days. I do not have them saved because it is simply too painful. But do some Googling and if you are female there might be a connection for you. I am not sure if you are female and what your state of life is...
  12. Darkfire Ann
    According to my baby records I was born on Sept 21. I was given oats and barely in formula on Oct 25th and Oct 26th I developed a severe allergic rash. That was 39 years ago so the connection was sketchy. That is the first reported reaction I had to Gluten. So it's safe to say I was drawn this way.
  13. Darkfire Ann
    Gluten makes me tired. Or it can make my heart race and make me swell and still tired. These are immediate reactions. Now if you are dealing with pain and sugar and wheat are making you better it is because you are getting high off of it. I believe it's more a Dopamine issue than a Serotonin issue but I am not a doctor. I do know you can become addicted to...
  14. Darkfire Ann
    I have a few more. I have a compound w/ and w/out steroids. Using Moisturel, Menthol, Triamcinolone, Jojoba, Tea Tree, Aloe and a tad of 91% alcohol to melt the menthol. Take out the Triamcinolone and it's steroid free. My Derm added Phenol and charged me $50 bucks. I made a gallon for about $15 bucks minus the Phenol. I keep some in the fridge, some at...
  15. Darkfire Ann
    Mine is worse at night and when I wake up. Waking up may not be morning, it may be night, noon or even 8pm. I do not sleep on a regular schedule. Right now it's keeping me up. I tried to sleep. I am three hours after my first upped dose of Dapsone to 100MG. The itch seems to get worse about 3-4 hrs after a dose.
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