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alesusy

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  1. thank you. This is what I've been thinking - going grain free, possibly keeping in rice and quinoa for now, and apart from that, meat, poultry, olive oil, veggie but no nightshades, fish. I want to keep eggs in because I love them, but... who knows. Fruit and nuts. Then I talk about it to the new doc who scoffs and says THERE IS ABSOLUTELY NO SCIENTIFIC...
  2. I've just made two years gluten-free as a certified celiac and lactose intolerant, and five months ago after a bad bout of diarrhea I had a bloated and painful tummy. The bloeating eventually went away but the pain persists. Normally concentrated in my upper right quadrant but can also move around to upper right and lower right and lower left; it can be a...
  3. thank you for the infos. I'm trying... will have a go at it
  4. Hi there. I've been here as Alesusy but cannot find my account... I am now 2 years into gluten free and in the last six months my GI distress (never totally disappeared) has deepened to constant colon pain - never huge but always there. A virtual colonscopy showed diverticulis but apparently they are not inflamed. Question: anybody got definitely better on...
  5. Andirubes, it still happens to me.. after 18 months gluten-free. To be fair, I have actually been glutened, I think, but it was on my FIRST day of holiday (and then I got glutened again as soon as I got back to Rome having steak and roast potatoes in a restaurant I've been to before. How do I know? well--- the explosive consequences coming in one hour later...
  6. Unfortunately not much. I'm writing to say that it happens to me as well; very stiff neck/shoulders together with intestinal distress, particularly on the left side, with awful jaw stiffness and tension headaches around my teeth and my lfet eye (right side achey too but not the same way). I've had massages, physioterapy aimed at the jaw, and both help. best...
  7. Well, this is VERY interesting. Since going gluten free, my periods have become irregulars - either 20 days, or 35/38 -. Since I was 47 when DX, and 49 now, I thought "perimenopause" and tried to live with it. Now I think there are all sort of links between hormones and gluten. There is at least one study about celiac disease and hormones which I heard...
  8. Hi there everybody. I want to thank Sandsurfgirl... I am Italian too and I am gluten-free since December 2012. it's been a long road and I am still sick - not all the time, but often enough to bring me to my knees, or rather to have a feeling of malaise, even if my antibodies have long been in the normal range. My gut is very delicate (I was a 3B marsh...
  9. hi there! I'm getting tested for vitamin D but I don't know about B12. I will ask this doctor I'm going to see to prescribe me a full panel. My GP - the public health system one - is nice but I think he can't stand to see me around any more. I did keep a food journal for quite a while. I know my staples are rice, chicken and apples - and some vegetables...
  10. Hi guys! I've been absent lately because... I felt much better all in all. I measure my health by the number of medical searches I do on Google and by the number of specialistic visits I book. The question is: do your symptoms after a glutening vary? I am not certain that I have been glutened. I was dx in December 2012 and all last year until August...
  11. so I'm on holiday and doing, I think, fairly well and being pretty careful after 9 months gluten-free and thinking that actually I do not know how strong a reaction can I get from gluten and maybe I'm one of the lucky who don't get any reactions at all. Then I go out for dinner (normally I eat at home or in carefully selected places) in a very popular place...
  12. I don't know about the huge clots, I'm afraid. DilettanteSteph thanks for the input about aurea migraines. I suffered from migraines as a teen and around my 20s but then they tapered off. This aura thing is totally new and came on AFTER I was off gluten. My gastro doctor declared they have nothing to do with each other. Maybe after going off gluten I've...
  13. I think I am blessed with several friends who took the time to learn what I can eat and cook it special. Also, I'm not the only one. I have invited people over for dinner quite successfully too. Frankly things are much easier when you start feeling better, which in my case happened about 7 months after gluten-free, and I can tell you, I'm not HEALED yet...
  14. Hi Dilettantesteph You are the first person to tell me about an aurea migraine with no pain from gluten trace exposure. Are we taking about the same thing? Colored haloes all around object, fragmented vision lasting for about 20-40 minutes? thanks
  15. You're making me think that my extreme sun sensitivity is not a matter of age but of depleted skin resources due to celiac disease... who knows! It would be a nice thing...
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