Lisa
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Latest Celiac Disease News & Research:
Everything posted by Lisa
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ARCHIVED Diagnosing Celiac W/stool & Saliva Testing
Lisa replied to Lisa's topic in Related Issues & Disorders
"There are well accepted criteria for the detection and diagnosis of CELIAC DISEASE." Keep in mind, that the article only refers to diagnosing Celiac Disease, not a gluten intolerance/allergy/sensitivity. To my knowledge, Enterolabs has never claimed to diagnose. -
ARCHIVED Pillcam In A Week
Lisa replied to Sandi*'s topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This is a recently released study done by the Mayo: Given Imaging Announces New Mayo Clinic Study Concludes Celiac Disease May Be More Severe Than Symptoms Indicate for Some Patients PillCam -
ARCHIVED Diagnosing Celiac W/stool & Saliva Testing
Lisa posted a topic in Related Issues & Disorders
"There are well accepted criteria for the detection and diagnosis of celiac disease. The tests used to fulfill these criteria have been subjected to scientific scrutiny and validation. To our knowledge tests of antibodies in stool or saliva have not been validated as a robust test for the diagnosis of celiac disease. Many insurance companies base their... -
Open Original Shared Link
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Blue Cheese has been extensively talked about here. A search here will find you an answer and a listing to many safe blue cheeses.
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ARCHIVED Malabsorption Issues & Recovery
Lisa replied to mftnchn's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
In the initial phase of healing, vitamins and minerals may not be absorbing. Yes, I would round my healing off to two years. Diagnosed in August of 2005, I now consider myself in total remission. It took me six months to master the diet. There is just too much to learn and too many traps. Any newly diagnosed that claims to be totally gluten free... -
Count me in too. Not worth the risk. My choice of risk would be a VERY expensive french restaurant.
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ARCHIVED Is Lubriderm Moisturizer Gluten-free, Or...
Lisa replied to nikki2008's topic in Gluten-Free Foods, Products, Shopping & Medications
I use it without issue. I do not buy the Lubriderm with Oats. -
ARCHIVED Spaghetti Sauce
Lisa replied to Wakeboarder's topic in Gluten-Free Foods, Products, Shopping & Medications
Classico Red and White Sauces are all gluten free. -
ARCHIVED Newb - Can't I Just Look At The Label?
Lisa replied to Bansaw's topic in Gluten-Free Foods, Products, Shopping & Medications
Here is a listing of US Companies whose policy is to clearly list all forms of gluten, so there's no guessing. Open Original Shared Link Wheat, by law is required to be listed if it is in the ingredients. Barley, Malt and Rye do not need to be listed. Some Companies can be suspect when the list Natural Ingredients or Spieces. That's when you... -
ARCHIVED Any One Else Sitting In The Dark From 8-9 Tonight?
Lisa replied to Judyin Philly's topic in Introduce Yourself / Share Stuff
Yup, I'll be sitting in the dark but the Carolina Game will be on. (does that count ) ..and the computer. Hum, well I guess I'm not in the dark. -
Throw that book OUT! Yes, you are correct Rice Krispies and Corn Flakes are not gluten free. Here is a link that will be very helpful. It lists companies who will clearly list all forms of gluten (as in wheat, barley, malt and rye) so there is no worry about ingredients like Natural Flavors and Species. Open Original Shared Link
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ARCHIVED What Are The Tests I Should Ask For?
Lisa replied to KimmyJ's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Since your tests produced a diagnosis for Celiac you will want to check to see if you vitamin and mineral levels. It used to be called an Executive Panel or full Metabolic Panel. I have found that every new doctor that I have been to, wants to run their own test to verify what a previous doctor told you. What a waste of money. There is no need for diagnostic... -
ARCHIVED Best Websites To Order Food And Favorite Brands
Lisa replied to Dolcenotte's topic in Gluten-Free Foods, Products, Shopping & Medications
Websites and links can be listed for the purpose of sharing collective support/information with Celiac or associated illnesses. Self promotional sites or sites for personal profit are not allowed, as per Board Rules, and cannot be listed in the signature section of the posting. Personal blogs may be listed on your Personal Profile Page. A.M.A.Z.O.N... -
ARCHIVED What Are My Odds Of Gluten Intolerence?
Lisa replied to Glutenous-Maximus's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I don't know where you are located, so this may be relevant or not. www.triumph.dining.com has ethnic dining laminated cards in many languages. It explains the gluten free diet and what to avoid when eating foreign food. I have used mine frequently at Chinese and Mexican Restaurants. They also can be found on this site. -
ARCHIVED What Are My Odds Of Gluten Intolerence?
Lisa replied to Glutenous-Maximus's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Watch out for the soy sauce. Most contain gluten. -
ARCHIVED Ibs?
Lisa replied to blondebombshell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Open Original Shared Link -
ARCHIVED What Are My Odds Of Gluten Intolerence?
Lisa replied to Glutenous-Maximus's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Twenty percent for first degree relatives and then throw in your symtoms and I would say your odds are pretty darn good. -
ARCHIVED Is There A Symptom Check List?
Lisa replied to SweetAmber32's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I don't know why this link won't work, but I copied and pasted, from www.celiac.org Celiac Disease Symptoms Adults Celiac Disease may appear at any time in a person's life. The disease can be triggered for the first time after surgery, viral infection, severe emotional stress, pregnancy or childbirth. celiac disease is a multi-system, multi-symptom disorder... -
ARCHIVED Generic Otc Prilosec (omeprazole)
Lisa replied to shibboleth's topic in Gluten-Free Foods, Products, Shopping & Medications
Thank you for your post. I take Omeprazole and have considered it gluten free. -
ARCHIVED Being Diagnosed Questions: Thanks In Advance
Lisa replied to kystef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Unfortunately, if you do have Celiac or a gluten intolerance, there is no "quick fix". Healing can being to occur within days and it may take up to several years to totally heal. Everyone is different as it depends on the amount of damage done. And the diet is for life. Eating gluten free, as I said, is complex. Old toaster, wooden spoons, colanders... -
ARCHIVED Being Diagnosed Questions: Thanks In Advance
Lisa replied to kystef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
HELLO and welcome to this site. It 's the best source around. There are three ways to diagnose Celiac. 1. Celiac Blood Panel 2. Endoscopy and Biopsy 3. Positive Dietary Response Each on it's own is a diagnosis as well as supportive testing. The only truly accurate test is a positive dietary response (a true and full gluten free diet). The blood... -
I smoked for a long time and never had any gluten reaction. Many other members here smoke and they are highly sensitive. Although, I believe that manufactured cigarettes have an ingredient list about a mile long. As Ursa mentioned, as a non smoker, smoking 3-4 cigarettes would certainly make you nauseated.
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ARCHIVED Websites About Kids With Celiac
Lisa replied to whitbyshores's topic in Parents, Friends and Loved Ones of Celiacs
This is a good site. We have lots of moms with Celiac kids and they are very willing to share their time and experience. Here is information about R.O.C.K. (Raising Our Celiac Kids): https://www.celiac.com/articles/563/1/ROCK-...roup/Page1.html Danna Korn founded R.O.C.K. in 1991 after her son, Tyler, was diagnosed with celiac disease. It has grown... -
Hi and Welcome! Yes, you're right. Hair loss is a common symptom of poor absorption due to Celiac. Many people has had hair loss by the clumps. As you body starts to regulate itself and gluten is removed from your system, hair loss will subside. It may take some time though. After your intestines heal, Biotin can be helpful with hair growth.