answerseeker

Endometriosis can cause heavy bleeding. Are you on any meds? Corticosteroids cause this, it happened to me when I was taking prednisone for my asthma.

My insurance changed so I now have a new GI. He is very knowledgable in Celiac disease. When we tried to get my records from Kaiser transfered over, they said they didn't have any record of my testing (seriously?) anyway since I've been gluten free for almost 7 months he decided to do gene testing on me for his own records. I came up postitive for DQ...

my blood pressuse was 95/56 yesterday and I was seeing spots and feeling very dizzy and super tired. That is my sign to get some salt in me immediately!

Are the rashes like bright pink/red like someone just took a hunk of your skin and pinched it? That's what I get on my legs and stomach and it's due to blood pooling in my extremities instead of reaching my heart, lungs, and brain.

Can you do a little test? Take your heart rate lying down, 2 min after sitting upright, then 5 min while standing still. If you have an iPhone there is a free app called heart rate which will allow you to do this very easily. I have just been diagnosed with dystautonomia subtype POTS and I have many of your symptoms. Often I will freak out because I...

My electrophysiologist mentioned it. He said it would be ideal but not available here. I'm currently taking fludrocortisone to increase my blood volume and he's hoping in turn that will help with the IST I have a follow up in April

Lol opposite of me. I'm on a high salt diet, but I have hypotension. They had me on a calcium channel blocker but took me off because it dropped my blood pressure even lower

Have you read my post above yours? I was just diagnosed with IST and POTS both forms of dystautonomia. Are you seeing an electrophysiologist?

My Dr told me to start exercising, the article is correct recumbent exercising is best. It's not a cure but it is in my treatment plan. Meds, exercising, salt intake, compression stockings, no gluten no dairy, small frequent meals because POTS effects digestion, no standing for long periods, keep asthma under control because the albuteral will trigger...

You guys have all been so great! Colleen, I will be getting compression stockings as that is one of the things recommended to me. I agree that the unknown is far worse. I know what I'm dealing with, and for the most part have a treatment plan. Treatment is trial and error and doc says it may be a long process but we will work at getting symptoms under...

Most of you know I've been dealing with cardiac symptoms and a host of other problems. I haven't posted in a while but I was finally referred to a special cardiologist called an electrophysiologist. He diagnosed me with dystaunomia: subtype POTS and possibly inappropriate sinus tachycardia. Just thought I would update those who were helping me process my...

I always use McCormick spices. If they add wheat/gluten its in bold on the label. One of the reasons I use them

That is interesting. I do get dry mouth but always thought it was dehydration. Not sure if I mentioned yet but my blood eosphonils are 11% which is high, they shouldn't be over 5%. I asked my dr about it and he said its due to allergies and asthma but at my worst asthma months they were only at 7%. Everything I read says 7% is normal with asthma and allergies...

well that is good news! I don't think they will keep me on meds for long, especially since these meds lower BP and mine is usually low or normal. It does tend to get high sometimes I seem to tolerate whole dairy just fine. I had issues at diagnosis and switched to lactose free but since I feed my kids whole dairy (they are both very thin too) I didn't...

I will take a look. I just started the smoothies and only had 2 so far with oats. The tingling started a month ago and it did come around the time of the thromobophelbitis. Before all this I would get bruising showing up for no reason then it went away for months and then out of the blue came the thrombophelbitits. Can't seem to figure it all out! ...