Jump to content

answerseeker

Advanced Members
 View Profile  See their activity

  • Posts

    380

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by answerseeker

  1. answerseeker
    Endometriosis can cause heavy bleeding. Are you on any meds? Corticosteroids cause this, it happened to me when I was taking prednisone for my asthma.
  2. answerseeker
    My insurance changed so I now have a new GI. He is very knowledgable in Celiac disease. When we tried to get my records from Kaiser transfered over, they said they didn't have any record of my testing (seriously?) anyway since I've been gluten free for almost 7 months he decided to do gene testing on me for his own records. I came up postitive for DQ...
  3. answerseeker
    my blood pressuse was 95/56 yesterday and I was seeing spots and feeling very dizzy and super tired. That is my sign to get some salt in me immediately!
  4. answerseeker
    Are the rashes like bright pink/red like someone just took a hunk of your skin and pinched it? That's what I get on my legs and stomach and it's due to blood pooling in my extremities instead of reaching my heart, lungs, and brain.
  5. answerseeker
    Can you do a little test? Take your heart rate lying down, 2 min after sitting upright, then 5 min while standing still. If you have an iPhone there is a free app called heart rate which will allow you to do this very easily. I have just been diagnosed with dystautonomia subtype POTS and I have many of your symptoms. Often I will freak out because I...
  6. answerseeker
    My electrophysiologist mentioned it. He said it would be ideal but not available here. I'm currently taking fludrocortisone to increase my blood volume and he's hoping in turn that will help with the IST I have a follow up in April
  7. answerseeker
    Lol opposite of me. I'm on a high salt diet, but I have hypotension. They had me on a calcium channel blocker but took me off because it dropped my blood pressure even lower
  8. answerseeker
    Have you read my post above yours? I was just diagnosed with IST and POTS both forms of dystautonomia. Are you seeing an electrophysiologist?
  9. answerseeker
    My Dr told me to start exercising, the article is correct recumbent exercising is best. It's not a cure but it is in my treatment plan. Meds, exercising, salt intake, compression stockings, no gluten no dairy, small frequent meals because POTS effects digestion, no standing for long periods, keep asthma under control because the albuteral will trigger...
  10. answerseeker
    You guys have all been so great! Colleen, I will be getting compression stockings as that is one of the things recommended to me. I agree that the unknown is far worse. I know what I'm dealing with, and for the most part have a treatment plan. Treatment is trial and error and doc says it may be a long process but we will work at getting symptoms under...
  11. answerseeker
    Most of you know I've been dealing with cardiac symptoms and a host of other problems. I haven't posted in a while but I was finally referred to a special cardiologist called an electrophysiologist. He diagnosed me with dystaunomia: subtype POTS and possibly inappropriate sinus tachycardia. Just thought I would update those who were helping me process my...
  12. answerseeker
    I always use McCormick spices. If they add wheat/gluten its in bold on the label. One of the reasons I use them
  13. answerseeker
    That is interesting. I do get dry mouth but always thought it was dehydration. Not sure if I mentioned yet but my blood eosphonils are 11% which is high, they shouldn't be over 5%. I asked my dr about it and he said its due to allergies and asthma but at my worst asthma months they were only at 7%. Everything I read says 7% is normal with asthma and allergies...
  14. answerseeker
    well that is good news! I don't think they will keep me on meds for long, especially since these meds lower BP and mine is usually low or normal. It does tend to get high sometimes I seem to tolerate whole dairy just fine. I had issues at diagnosis and switched to lactose free but since I feed my kids whole dairy (they are both very thin too) I didn't...
  15. answerseeker
    I will take a look. I just started the smoothies and only had 2 so far with oats. The tingling started a month ago and it did come around the time of the thromobophelbitis. Before all this I would get bruising showing up for no reason then it went away for months and then out of the blue came the thrombophelbitits. Can't seem to figure it all out! ...
  16. answerseeker
    I believe type 1 is the one seen with celiac. Could you have developed it due to high blood pressure or weight issues? Maybe type 2 has an autoimmune component but I'm not sure
  17. answerseeker
    I've been making protein smoothies with full fat yogurt, pb, banana, whole milk, and gluten-free oats. I'm really trying! My GP doesn't want me on meds either, he wants me to include salt in my diet as well. But, at my stress test appointment my hr was 140 before even stepping on the treadmill and that's why the cardiologist put me on the calcium blocker...
  18. answerseeker
    It doesn't juice it's an extractor which is much healthier than juicing because you get the pulp, skin , etc of the fruits and veggies
  19. answerseeker
    *drooling over spinach and bacon dip* or taziki dip with cucumbers......or homemade salsa.....oh my
  20. answerseeker
    "i wish i had one just to play with and see what it will chop up before it breaks" Buy from the website you get 2!
  21. answerseeker
    I am going to make salad dressing very soon! I even have my hubby and kids drinking their greens, and that says a lot :-p
  22. answerseeker
    The past month or so I've been getting tingling and numbness in my hands, they also get very cold and my legs turn weird colors in the shower. I've also had thrombophelbitis this past month--never had it before My Dr thinks its Raynauds. Is it usual for this to show up after being gluten free for almost 6 months? I would get the tingling before at the grocery...
  23. answerseeker
    I bought a nutribullet. They are less then $100 or you can buy from the website and make payments if $19.99 per month. It takes less than 5 min start to finish to make my nutriblast. I use 50% spinach, 50% fruit, and add chia seeds, fill to the line with purified water and blend for 1 min and your done. It would be cheaper in the long run then buying green...
  24. answerseeker
    Dried fruits also have sulfates. That's a huge issue for me. It's the reason I don't drink red wine.....I get sick every time.
  25. answerseeker
    I can easily down a whole bag of the chocolate covered ones in one sitting. So expensive though and the gluten eaters eat my chocolate covered pretzels!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.