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floridanative

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Latest Celiac Disease News & Research:

Everything posted by floridanative

  1. floridanative
    I have not met with a nutritionist yet but listened to one speak at a Whole Foods gluten seminar recently and I was appalled that I knew more than she did about celiac disease anyway, and I hadn't even heard of it a week before! Feeling like this was just a fluke I was sure I'd find someone locally (live in large city) that would know more about celiac disease...
  2. floridanative
    Yes - my instruction sheet says no green salad OR veggies for three days before the test (started that today) and no red or purple juices or jello. Drinks listed are Gatorade (nor red), apple juice, sprite, gingerale, black tea and coffee. Food is jello and chicken or beef broth. I'm not to have anything else all day Wed. Then my test is at 7 am the next...
  3. floridanative
    [ Up to four hours before the procedure you can still have something to drink??? Sheesh, I was told nothing after midnight, not even water. Bummer. I'm going to be fried. I didn't post that about 4 hours before the test. I can not have anything including water either after mindnight Wed. I also can NOT have anything red or purple including juice or jello...
  4. floridanative
    Good! At least you don't have shingles or any complication from being misdiagnosed. Thank goodness! Tiffany M.
  5. floridanative
    They looked at them for shingles (problem was by the time I saw a doctor I had scatched them open with my hairbrush). Doc decided it was some kind of scalp infection so gave me an antiobiotic. I had to go to the doc three times (each time saw a different doc at same office) to get diagnosed for my shingles last year. But I didn't know to ask if I could...
  6. floridanative
    Stephanie, Good luck to you tomorrow and thanks for your post! While reading your notes I decided to call my Outpatient Center where I'm having my colonscopy this Thurs. too. They said they could do the biopsy when I was out with the other test. That will save me $250 so I'm thrilled! Another anti-body level came in three times higher than normal so now...
  7. floridanative
    [Colonoscopy showed extensive collagenous colitis. Karen - what does that last thing mean? My colonoscopy next week and I thought that could not show me any signs of Celiac disease. Now I'm really confused. Tiffany M.
  8. floridanative
    Hi Paula, Looks like our experts haven't posted to your inquiry yet. Most of them know more about Celiac than most doctors do. Anyway, from reading their prior posts about testing, I understand that you have to be eating gluten to test with blood work or the biopsy. But eating a gluten-free diet is also a valid test to show if you are affected negatively...
  9. floridanative
    Hi Nancy, Where did you order the restaurant cards? I haven't heard/read anything about them. I will need them too if my tests come back positive for celiac disease. Best of luck to you with your diagnosis. Tiffany M.
  10. floridanative
    Well all that would definitely be able to trigger your celiac disease gene if you have it. Or really just one of those things could have done it. So sorry for your loss. I too want an answer. I certainly can't take iron pills forever. Plus now I found out there are other things I'm not absorbing correctly. Of all the things that could cause malabsorption...
  11. floridanative
    I'm new too and waiting on testing myself. But I was wondering if you had anything particularly stressful happen before the time you noticed your symptoms. About 38% of us have the Celiac gene but it's not necessarily active. Something can trigger it and walah - you get sick - sometimes even without symptoms. I had shingles at 40 and never felt right after...
  12. floridanative
    My B12 level was low normal according to test from three weeks ago. By the way, what is a sublingual supplement? Tiffany M.
  13. floridanative
    No - I am not confused now and do feel better. I did think my doc was making sure something really bad isn't wrong re: the colon and then if not, we'll do the biopsy next. I guess I just hate the waiting part. One of my worst traits is my impatience. Thanks to all who responded and take care - Tiffany M. p.s. I just found out today from reg. doc...
  14. floridanative
    Thanks Lisa B. So far only one anti-body level is way too high, causing me to have malabsorption issues. This at least explains my anemia which was to date unexplained. Now after reading about Celiac disease I'm hoping maybe I have a parasite infection which can also cause malabsorption and seems like the best thing I can have that does. My husband and I...
  15. floridanative
    I am very perplexed. I'm glad on my second visit to the GI doc he told me about Celiac Sprue but he explained that it was an allergy to wheat and didn't even mention the word gluten. So now after reading up on the condition I feel like I know more about it than him. So the same doc is making me have a colonoscopy before doing a stomach biopsy. I'm sure there...
  16. floridanative
    Sorry this post has no helpful information in it but I just had to share. It seems as though most of my make-up/toiletries must be tossed and replaced with gluten-free things. So I have e-mailed and called a slew of companies to inquire about their products. So one company got back to me via e-mail. Their letter was very professional and it was signed 'The...
  17. floridanative
    Just to share what I'm going through. I have unexplained anemia and so finally got to at gastro doc a couple of weeks ago. He took blood/stool samples and I went back last week to discuss the results. My blood tests revealed I am not absorbing nutrients correctly which explains my iron deficient anemia but now he's making me have a colonoscopy next month...
  18. floridanative
    Thanks everyone for the lists! This is so overwhelming but I know I"ll get through it with great support I see on this site. I see there is already another Tiffany so I'll now sign as Tiffany M. p.s. L'Oreal got back to me today. In case anyone else cares (read: isn't willing to walk around with whitish gray hair at 42) here is what they said. Quoting...
  19. floridanative
    What about regular Coke?
  20. floridanative
    Berneses - thanks for the tip on L'Oreal products. I will give it a try. As far as reading labels goes, I'm having a hard time finding the word gluten in most of my toiletry items, even in things I know others say have gluten in them for sure. Are there other words for 'gluten' that I should be looking for? Tiffany
  21. floridanative
    Where do you get the Collective Well being shampoo? I've never heard of it?
  22. floridanative
    Carolyn, I'm using Clobetasol too and I love it! But I'm not off gluten yet, waiting on more tests.... In any case, I read the insert for the Embeline brand I have and it says not to use it for more than two weeks at a time. Well that isn't very helpful for me since if I stop using it my scalp dermatitis comes right back. I called the pharmacy and they...
  23. floridanative
    Now I'm totally panicked! At first when reading all this info about getting gluten-free toothpaste and make-up I was bummed but I'm 42 and my natural hair color is now ungy white-ish gray which is why I've been dying it forever. I know a henna rinse won't do anything for me and I can't go without coloring my hair unless I wast to start wearing a wig and I...
  24. floridanative
    Hi Kaiti, Could you also send me the list? I'm just starting to get ready to go gluten-free regardless of what my biopsy shows. My inability to aborb nutirents is enough proof for me. This problem showed up in my bloodwork. Thanks!
  25. floridanative
    Finally!!!! Someone else having exactly the same thing I have had for almost two years now. I have not had the redness on my face but in Jan. 04 I went to the derm. to get some rx shampoo for my severe dandruff which cropped up all of a sudden. The derm. gave me a prescription of one of the two main types (Loprox I think) of rx shampoos and sent me on my...
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