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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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There's not doubt it's tough. And you've found a great place to vent when you need to! It probably won't really change anything now, but know that it does get easier as you learn, and easier still if you are determined to make doing what you need to do simply not a big deal and you find a way to go with the flow. What life looks like may be different...
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So I'm going to be the fly in the ointment and say that it's fair to take a look at how you're contributing to the problem. If you ARE complaining a lot - back off on that. You don't want to be around someone who harps on the same thing over and over and over and over again, so don't be that person. Even though this is a life long thing, and we have to...
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ARCHIVED Going Gluten Free Before Biopsy
tarnalberry replied to Farmer Brown's Cow's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Ask yourself why you need more than a positive blood test. Ask your doctor to. (The biopsy is going out of favor as "the gold standard" and more and more doctors are making final diagnoses on blood test panels alone.) Ask yourself if YOU need the biopsy over what you know to be true from experience. And if you do need it - and that's a perfectly fair... -
ARCHIVED Different Levels Of Intolerance?
tarnalberry replied to Alz's topic in Coping with Celiac Disease
If you have celiac, you have celiac. There are NOT different levels of intolerance. It's easy to be fooled that there are, however, because we all manifest symptoms differently. Unfortunately, our body's symptoms are NOT a good predictor of whether or not we are reacting to gluten. Even very small amounts of gluten trigger an immune response in the... -
ARCHIVED Mercury Poses Health Risks...
tarnalberry replied to Rachel--24's topic in Food Intolerance & Leaky Gut
yay for having never gotten amalgam fillings. (not many cavities, and always composite.) -
ARCHIVED Struggling To Think Of Work Lunches!
tarnalberry replied to Aussie Peg's topic in Gluten-Free Recipes & Cooking Tips
plenty of leftovers can be eaten cold - I do it all the time with soups and chili. -
ARCHIVED Airplane Food/taking Food On Airplanes
tarnalberry replied to leadmeastray88's topic in Coping with Celiac Disease
You can't bring liquid, but you can bring food. I fly a couple times every year, and it's not a problem! A gel pack in a cooler might be a problem, but food, no. -
ARCHIVED Need Diet Soda, No Aspartame
tarnalberry replied to MyMississippi's topic in Gluten-Free Foods, Products, Shopping & Medications
Why not make your own? Sparkling water and juice. (Not calorie free, but lower than a regular soda, and has some vitamins.) -
ARCHIVED Low Vitamin D
tarnalberry replied to Worriedtodeath's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
no tanning and no burning w/ fair skin is a pretty atypical reaction. sure - not tanning (I don't get very tan myself; definitely on the fair side; it's the norther european in me) - but that *and* not burning without sunscreen indicates an non-typical skin reaction. of course, I know next to nothing about kids, so I'll take your experience over mine on... -
ARCHIVED Low Vitamin D
tarnalberry replied to Worriedtodeath's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
If she's not using sunscreen, but is out that long, and is not tanning, I'd talk to a doctor (dermatologist) about that. There be a more serious issue if she can't produce more melanin. That not only makes our skin darker, but protects us from damage from the sun and the DNA effects it can have. Has this always been the case? -
ARCHIVED Low Vitamin D
tarnalberry replied to Worriedtodeath's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
and not in the shade? (which cuts available UV by more than 60%) (it's the UVA that's necessary for vit D production) and "exposed skin" doesn't mean "face and hands" if you're deficient. it pretty much means as little clothing as possible - short sleeves and shorts, definitely, without any sunscreen applied (which would block the UVA), for at least 1... -
ARCHIVED Low Vitamin D
tarnalberry replied to Worriedtodeath's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
There are some researchers who are suggesting supplementing with very high doses of vit D to simulate what the sun provides. The RDA for vit D is 200IU for everyone under 50 (which plenty of researchers think is too low). 30 minutes of sunlight is about 20,000IU. The skin in meant to produce vit D for storage through the winter, where - in latitudes above... -
they don't say that they can't ship internationally, so you may well still be able to order online. if you use a credit card, it will do the currency conversion for you. my husband and I have purchased things from companies based in other countries online and had them shipped a few times, and it works fine. if you're uncertain about the shipping, email...
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While I haven't received my grade yet, I just finished my yoga teacher training! (I'm pretty sure I passed. ) I've been doing practice teaching for three months, and plan on going official in July! (Part time, since I'm not yet giving up my day job.) Woohoo!
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ARCHIVED Low Vitamin D
tarnalberry replied to Worriedtodeath's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
a multivit isn't such a bad idea, but the best way to get vit D is sunlight. you can get FAR more sunlight from 10-15 minutes of exposure every few days than almost any sort of supplementation (without sunblock). (there are some theories that relatively chronic lowered levels of vit D in the country.) -
ARCHIVED Food Labelling And Poor Eyesight
tarnalberry replied to brainfood's topic in Coping with Celiac Disease
I have to go with the personal responsibility one here. I wear glasses, but don't generally wear them around the house. I've gotten into the car and while I can drive without them, if I get pulled over, a cop's gonna cite me for it. If I'm light sensitive a particularly day, I have to remember my sunglasses on my own (and that's hard to do in Seattle,... -
ARCHIVED Gluten-free Hypoglycemia Diet?
tarnalberry replied to mattj's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I had a blood draw, with was referenced as mg/dl. While my test ranges from 80-120mg/dl (compares to the 4-6 that I see online for the other test), I always tested around 85. That's a negative (for low blood sugar), but a low 'normal', and my doctor's advice was to go more on how I feel than some test. So if my symptoms match it, and and treating it with... -
ARCHIVED Everyone With Fibromyalgia...
tarnalberry replied to lizard00's topic in Related Issues & Disorders
I can be fairly close to pain/fatigue free regardless of the foods that I eat (respecting other intolerances, of course), and can track my symptoms to other triggers (primarily stress and sleep patterns). I've got no empiric evidence to suggest it's a food/chemical intake for me. (That's the *really* short version of it. And I don't take pain meds - well... -
ARCHIVED Everyone With Fibromyalgia...
tarnalberry replied to lizard00's topic in Related Issues & Disorders
heh... I must be the odd duck - my food intolerances don't exacerbate fibro symptoms (they cause other problems, but not specifically the distinct fibro ones). for me, fibro came four years after going gluten free, three years after going dairy free (and I really don't have accidental ingestion very often at all - two/three a year; and never intentional... -
ARCHIVED Everyone With Fibromyalgia...
tarnalberry replied to lizard00's topic in Related Issues & Disorders
yes, something with no *known* cause can be a disease, because we do not have perfect knowledge. colds are a "disease" (infection, anyway), and at one time, the cause was unknown. it's not because it wasn't a disease, but rather because we didn't have knowledge of bacteria. I'm quite sure there are plenty of other non-healthy states that we just don't... -
ARCHIVED As Promised, A Few Recipes
tarnalberry replied to tarnalberry's topic in Gluten-Free Recipes & Cooking Tips
Nutty Rice and Lentils Serves 2-4 Ingredients ----------- 3 cups cooked brown rice (cooked in boullion is great, but not necessary) 1.5 cups cooked black lentils (trader joe's sometimes has precooked bags that can be cooked in the microwave) 2-3 tbsp hemp seed oil 1 tsp dried onion 1/4 tsp powdered garlic 1/2 tsp salt Directions ----------... -
ARCHIVED Everyone With Fibromyalgia...
tarnalberry replied to lizard00's topic in Related Issues & Disorders
While we may not have the same vision of the details of the background (and who does ), I think this point of agreement is something that should be brought more to the forefront. My concern is that when one says "the root cause needs to be found", our society of quick-fixes says "oh, once I find the root cause, I'll be better", which isn't necessarily the... -
ARCHIVED Everyone With Fibromyalgia...
tarnalberry replied to lizard00's topic in Related Issues & Disorders
In some cases, I don't think you're going to find a bacteria, virus, fungus, food, or other physical factor that is causing fibro, however. (Not all, some. Please read on before responding to this sentence.) From what I've synthesized in my reading, it seems that it's most likely an issue of an overspent system. Think of a big tank of water, with... -
ARCHIVED Protein Shake Mixes
tarnalberry replied to roxie's topic in Gluten-Free Foods, Products, Shopping & Medications
I also often use hemp protein powder. I love the stuff in my heartier smoothies (ones with lots of berries, in particular). Sometimes I use rice protein instead. -
the location is on the website. looks like a great option. I look forward to it.