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tarnalberry

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Everything posted by tarnalberry

  1. tarnalberry
    but celiac, being an IgA/IgG reaction, not an IgE reaction cannot cause anaphylactic shock. of course, you can ALSO be allergic to wheat, and run that risk, in which case I _would_ think a med alert bracelet would be a good idea. (I also think that if you already have one, it doesn't hurt to add on to it. ;-) )
  2. tarnalberry
    'Cause doctors are pedantic that way. I think blood test results and positive response to the diet should be enough, but some want to know how much damage there is. I'm not sure that it changes anything in the treatment, though.
  3. tarnalberry
    For most of us, gluten is not immediately life-threatening, the away an anaphylactic allergy can be, so I don't think that - for most people - it warrants a med alert bracelet. But it's a personal decision.
  4. tarnalberry
    yeah, if she's already DX'ed, I'd give it a while longer. I haven't had a follow up test myself, but my levels were inconclusive, so I go by symptoms.
  5. tarnalberry
    get plenty of fat? (avocados, oil, coconut (if you can have it)) I say that as a hypoglycemic, where too much starch bothers me. other than that, I'm not a big help... if you can have rice, you can get powdered rice proteins that you can use in baking to help increase the protein in your diet...
  6. tarnalberry
    1. communion: it's a personal call. the official church stance is that transubstantiation means that it is no longer wheat, but the body and blood of Christ and hence contains no gluten. I personally don't believe in transubstantiation that can turn grain into human flesh, literally. (symbolically, fine; literally, no.) some people decide to "trust in...
  7. tarnalberry
    That's good that you've got so much information about what bothers you. I found that the best way to not get bored with my foods is to alter the spices. Italian spices, chinese spices, indian spices, and mexican spices all taste very different. Are you limited by what spices you can have?
  8. tarnalberry
    The biopsy at that point is a personal choice. Some doctor's won't give a real DX without it, but some will. You may or may not care if you have a real DX, but if she's going to go through school and if you need an 504 (under the ADA, that makes a public school legally follow rules for avoiding cross contamination and the like), you may be required to have...
  9. tarnalberry
    When I was 22 or so.
  10. tarnalberry
    wow! I'm glad you've got all that covered, but once the easy things are already taken into account, it sure does get hard! If you've got the minerals, fiber, and water covered... hmm... exercise? I believe hardcore runners sometimes have issues, but don't quite remember. man, that's a tough one. I hope it's not another food intolerance, and good luck...
  11. tarnalberry
    barbara - you might consider whether or not you're getting enough magnesium, or perhaps too much calcium, in your diet. the two minerals affect the constipation/diarrhea spectrum (calcium binding you, magnesium loosening)
  12. tarnalberry
    While I generally shy away from packaged products because I'm a food snob, I try to learn the following information on things I buy: 1. type of food (plain anned tomatoes/beans/pumpkin, I generally don't worry about) 2. type of plant it's produced in (dedicated or not) 3. type of testing the company does (if they batch test or not) 4. type of reaction...
  13. tarnalberry
    I'm sorry to hear it's going so rough for her. If she got really sick from it, it may be a psychological block to eating - she doesn't want to feel sick, and eating is what made her feel sick, and now she doesn't feel anything is safe. I think "slowly but surely" is the only way to go here, and perhaps keeping plenty of PLAIN whole, nutrient dense foods...
  14. tarnalberry
    well, she needs to be eating gluten for tests to find gluten intolerance. so, if you want to test her, she needs to be eating plenty of it. then, really, since your doctor is providing you with a service, you can go in there and demand the blood tests. you have hired him - while in his office, he works for you, you are paying him. if you really don't...
  15. tarnalberry

    ARCHIVED Kissing

    tarnalberry replied to a topic in Coping with Celiac Disease

    wave.... ok, I'm a bit... "strong" on the issue but I say "he doesn't have to believe". if you say 'not until you've brushed', and stick with it, he may not believe, but it doesn't much matter. (of course, I take it you've already tried to talk to him about it, and tried to get him to understand. I wouldn't suggest that if you hadn't already talked...
  16. tarnalberry
    Yeah, I didn't make it to the one in San Diego this year, but they've been holding it annually for a little while.
  17. tarnalberry
    richard, you can also do a dietary challenge the way allergists do them and that is just seeing if the food causes a reaction. no, it is not a quantitative lab test, but it is accepted for many purposes. (and is what allergists do in their office if all other testing fails to identify a food allergy.) you can do this as well with a food intolerance. of...
  18. tarnalberry
    If you're just doing a dietary challenge - not necessarily a lengthy gluten ingestion that will allow for blood testing and biopsy - then you just need to eat gluten (and quite a lot of it) for a few days and see how you feel.
  19. tarnalberry
    Because lactose doesn't cause damage in a pure chemical reaction. (It gets left in the digestive tract to get broken down by bacteria which release gas as a byproduct.) Because it's all a basic chemical reaction in the gut, you've got to "neutralize" _every_ molecule of gluten. That's a huge chemical dynamics challenge, particularly in the human body...
  20. tarnalberry
    While I wasn't so sick nor experienced misdiagnoses, the _average_ length of time before a diagnosis is made in the US is 10 years. Part of the reason is that doctors don't look for it because they were taught that it's very rare, that it's a children's disease, and that you've got to be thin as a rail, having constant diahhreah, and nutritionally deficient...
  21. tarnalberry

    ARCHIVED Kissing

    tarnalberry replied to a topic in Coping with Celiac Disease

    Yep, my husband and I deal with it. If he's been eating wheat recently, he'll let me know and there will be no kissing beyond a quick, dry-lipped, closed-mouth peck. Other than that, "it's to the toothbrush we go!" :-)
  22. tarnalberry
    I almost forgot - depending on where in the country you are, you might be able to find Nutty Rice. It's like GrapeNuts, but made with rice. I'm a fan of it. Very crunchy/hearty and definitely not sweet.
  23. tarnalberry
    There are a few makers of corn flakes that are gluten-free - check out the health food stores. In fact, I like Nature's Path corn flakes better than the standard Kellogs. There's another company (I forget which one, but I saw them at Wild Oats) that makes gluten-free corn flakes as well. And Erewon's Rice Crisps with freeze dried berries are good too ...
  24. tarnalberry
    That's one of the biggest bummers about being casein intolerant - no more kefir. (And I really haven't been able to get into goat's milk enough to get past the nausea at the taste to see if I tolerate it. ;-) )
  25. tarnalberry
    I definitely didn't say that there isn't a connection to mental symptoms with celiac - I get the foggy headedness (though that's not really a psychological thing) and trouble concentrating. I think we can all agree that these are pretty common symptoms for some of us. But the extent of the mental state "like a zombie" and "blank look in his eyes" and...
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