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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED Swanson's Broths?
tarnalberry replied to jds22's topic in Gluten-Free Foods, Products, Shopping & Medications
You might consider making your own broth the next time you make a chicken and freeze it. It tastes better too! -
ARCHIVED What Were Your First Symptoms
tarnalberry replied to a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It was nothing big enough that I realized it in particular. It was a suggestion of someone else and a connection of bloating, hemmhroids and being tired. -
ARCHIVED How'd You Inform Family & Friends?
tarnalberry replied to dbuhl79's topic in Coping with Celiac Disease
I just told them "I found out I'm gluten intolerant, so I can't eat wheat, rye, barley, or oats - or anything that has that stuff in it. It'll make me sick and damage my intestines." And then answer any questions that come up. -
Don't go back for seconds of something that can make you sick. Be confident that you're doing what you need to do to keep yourself healthy - and convey that confidence. Just saying "This is all I feel safe eating" should be sufficient. When they try to tell you otherwise, realize that they're opinion about your diet is irrelevant. They don't have to live...
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ARCHIVED Developing Symptoms Post Diagnosis?
tarnalberry replied to sclarkey2003's topic in Introduce Yourself / Share Stuff
I wasn't very sick either. But if you're celiac, you're celiac. Getting "the runs" means that you're not going to be absorbing nutrients. It also indicates you are indeed reacting to gluten and damage is being done to the intestines. Over the long run, untreated celiacs - even those without significant symptoms - are at higher risk for intestinal cancers... -
ARCHIVED Energe Brown Rice Bread
tarnalberry replied to lilliexx's topic in Gluten-Free Foods, Products, Shopping & Medications
the tapioca bread (and likely the rice bread) work fine for stuffing. ;-) -
ARCHIVED Swanson's Broths?
tarnalberry replied to jds22's topic in Gluten-Free Foods, Products, Shopping & Medications
Imagine's broths are ok. (Do check on the soups that have soy sauce in them, though - the labels are quite clear.) -
ARCHIVED Is It Celiac Or Something Else?
tarnalberry replied to acemommy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Don't forget that normal IgA's don't tell you a thing if you don't also have a total IgA test to find out if you're IgA deficient in general. -
ARCHIVED New Lactose Problems?
tarnalberry replied to FreyaUSA's topic in Related Issues & Disorders
while lactose shouldn't contain casein, if you have a very strong allergy to casein, I would avoid it until I contacted the company about contamination. (I'm not sure if lactose is synthetically derived.) -
ARCHIVED The Iga's
tarnalberry replied to GregB's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
gliandin is the protein in wheat that's reacting. antibodies are amino acid specific (or very nearly), so it's an antigliandin antibody is not going to appear for anything other than something that is very similar to gliandin. -
ARCHIVED James Definately Has Celiac
tarnalberry replied to mommy2james's topic in Parents, Friends and Loved Ones of Celiacs
Give yourself more than a week, though start the process now. It's a learning process, and you'll need time for it. Stick with the basics - no processed foods, just natural whole foods (they taste just fine and are healthy!). As for hardware - non non-stick pots and pans and other materials that won't absorb things don't need to be replaced, but I would... -
ARCHIVED Conflicting Diagnoses?
tarnalberry replied to gigimom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
the link to enamel defects is fairly well known... amongst the educated dentists/doctors. ;-) you might send the biopsy results back to the doc who didn't think he was GI, just to let him know. -
ARCHIVED What If My Dd Was Misdiagnosed With It?
tarnalberry replied to emmahasit's topic in Parents, Friends and Loved Ones of Celiacs
I understand that testing that young is quite difficult. I hope the docs can come to some agreement on the best course of action. Good luck! -
Congrats on the successful experience!
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Do realize that cheating monthly puts your risk of developing intestinal cancers and other autoimmune diseases and dying early right back up to that of untreated celiacs.
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ARCHIVED Amusing, If Painful, Restaurant Experiences
tarnalberry replied to anglepoise's topic in Gluten-Free Restaurants
I've gotten the "I couldn't live without" statement from people I'm eating with - even understanding people - and I think it's mostly a comment about how they don't feel they could cope with the changes. Eventually, though, we all can adapt. :-) -
ARCHIVED My Blood Tests
tarnalberry replied to pixiegirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Likely you simply don't have enough damage for the blood tests to come up positive. But the diet is a test in and of itself. If eating apples always made you feel sick, would you keep eating apples? No. If you're comfortable and confident in the results of the diet, stick with it. (You can also look into other testing methods like York's tests and Enterolab... -
ARCHIVED Are There Different Kinds Of Gluten Intolerences?
tarnalberry replied to lilliexx's topic in Coping with Celiac Disease
because "gluten" is really a generic term referring to the protein in a grain, any grain. we often use "gluten" however, to refer to a specific amino acid sequence that is found in the proteins of wheat, barley, and rye. (the amino acid sequence of the oat protein actually is somewhat similar - similar enough that a few celiacs do seem to react to it, but... -
ARCHIVED Weight Watchers And Gluten Free
tarnalberry replied to a topic in Related Issues & Disorders
Deep breath! Remember that a gluten-free diet is often easiest on natural, whole foods. These are nutritious as well, and since you're doing your own cooking (it doesn't have to take long or be hard at all), you control the calorie content of what you make. I find it far easier to keep my calories in control eating gluten-free. -
ARCHIVED Question About Food Stamps...
tarnalberry replied to littlemonkeys's topic in Gluten-Free Foods, Products, Shopping & Medications
I've got to agree with Richard. Whole foods that are naturally gluten-free are naturally cheap as well - many of them, anyway. Rice and beans are cheap and filling, nuts aren't dirt cheap, but also very filling and go a long way. Fresh produce and meats can also be inexpensive (if bought in season or on sale) and can be stretched as well. -
ARCHIVED Gluten-free And Sugar-free
tarnalberry replied to sunflower's topic in Related Issues & Disorders
First, figure out if you really need to go that strict, or if you can have _some_ fruit each day. (As for soymilk, Unsweetened Silk has something like 2g of sugar, and I like the taste. ;-) ) -
ARCHIVED Family Gatherings At Restaurants
tarnalberry replied to SofiEmiMom's topic in Coping with Celiac Disease
Honestly, in situations like these, I eat ahead of time, and simply don't order. They can think what they want to think, but all I need to know is how to avoid getting sick. Of course, it's easier to do that after being on the diet for a while and getting past the initial anger. ;-) Don't let her get to you too much - remember that what they cared most... -
ARCHIVED Angryy 20 Year Old
tarnalberry replied to WSLIZ's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Give yourself a good three months to start feeling comfortable with this. -
ARCHIVED Gluten Related Neurological Conditions
tarnalberry replied to FreyaUSA's topic in Related Issues & Disorders
Yep. It'll be nice when they've gotten some medical-community acceptance of tests that can identify GI before significant damage to the intestines has been done - or in cases where it doesn't seem to be happening. -
ARCHIVED Share Thanksgiving Recipes!
tarnalberry replied to OhNoes's topic in Coping with Celiac Disease
I posted my planned Gluten-free Casein-free menu for Thanksgiving earlier on this site (I think it was under a Christmas dinner titled post, and another Thanksgiving dinner titled post) and will try to get the recipes (sort of... I don't really cook from a recipe) up as soon as I've got the time. So many foods are naturally Gluten-free Casein-free (particularly...