RMJ
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RMJ's Achievements
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Xravith reacted to a post in a topic:
Do Gluten Enzymes actually work?
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Scott Adams reacted to a post in a topic:
Do Gluten Enzymes actually work?
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If you successfully digest gluten with enzyme supplements so it won’t give you side effects, your challenge won’t be worthwhile because the digested fragments of gluten also won’t stimulate antibody production or cause intestinal damage.
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They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means. However, the way the result is presented does look like it is below the limit of what their test can measure, so that is good.
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Celiac disease symptoms
RMJ replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree with @trents, they should have run a total IgA. What was the normal range for the DGP IgA test? Different labs use different units thus have different normal ranges. -
Scott Adams reacted to a post in a topic:
Positive biopsy
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Positive biopsy
RMJ replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Your total IgA is normal. This test is run because if you are deficient in IgA the celiac specific IgA tests might not be valid (might not detect celiac disease). Hopefully some of those other tubes of blood will include other tests for celiac antibodies which might include Tissue transglutaminase (TTG) IgA and IgG, Deamidated gliadin (DGP) IgA and IgG,... -
Positive biopsy
RMJ replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree with @trents that the IgA you listed sounds like a total IgA, not celiac-specific, if 114 is normal. Were any other antibody tests run? -
RMJ reacted to a post in a topic:
heaps of hope!
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knitty kitty reacted to a post in a topic:
Thoughts? Non-endoscopic Celiac diagnosis in two year old
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RMJ reacted to a post in a topic:
Disaccharide deficient, confusing biopsy results, no blood test
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So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1. Genetic testing. Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With...
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The normal ranges can vary for the tissue transglutaminase and gliadin antibody celiac tests because the units aren’t absolute. Could you please tell us what the normal ranges are for the laboratory used? If her tissue transglutaminase results are 10-fold above the normal range some would diagnose her on that alone. Endomysial antibody ranges are m...
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Scott Adams reacted to a post in a topic:
gluten free cookie recipes
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Is there any xanthan gum in your recipes? I find that it can have a funny aftertaste, depending on the brand used, I like this one xanthan gum. I also have not had much success just substituting gluten free flour into my old recipes. I’ve had much better success using recipes from the company that makes the gluten free flour I’m using. I can now mak...
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DebJ14 reacted to a post in a topic:
GI DX celiac despite neg serology and no biopsy
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knitty kitty reacted to a post in a topic:
GI DX celiac despite neg serology and no biopsy
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RMJ reacted to a post in a topic:
My only proof
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RMJ reacted to a post in a topic:
CT with contrast.
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Are you sure that is the TTG IgA? Based on the units (mg/dL) and having an upper limit to the normal range, it looks like a total IgA result.
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RMJ reacted to a post in a topic:
Related issues
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Scott Adams reacted to a post in a topic:
Going for upper endoscopy today
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Going for upper endoscopy today
RMJ replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I’m glad you have a clear answer. Some endoscopes have enough magnification for the doctor to see the damage during the procedure. -
CT with contrast.
RMJ replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This is not standard when looking for celiac disease. Is it CT enterography? That type of CT can be used when looking for Crohn’s disease or IBD. CT will see more of the small intestine than can be seen during an endoscopy, as well as the large intestine. -
It sounds like you have a very reasonable GI doctor, who diagnosed you based on family history and symptoms after eating gluten. I would consider you lucky! The other option would be to make yourself very sick by doing weeks of a gluten challenge prior to an endoscopy.
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cristiana reacted to a post in a topic:
Outgrow celiac?
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knitty kitty reacted to a post in a topic:
Outgrow celiac?
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I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and g...
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Gluten free nuts
RMJ replied to Clear2me's topic in Gluten-Free Foods, Products, Shopping & Medications
I think Tierra Farms is a gluten free facility, at least that is what it says on the bag of walnuts that I have. -
I’m so glad they listened to your concerns! I hope you get some answers from the MRI.