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RMJ

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RMJ last won the day on April 27

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Community Answers

  1. icon RMJ reacted to a post in a topic: Help with genetic testing
  2. RMJ started following Latent celiac, need to go gluten free, advice on kitchen "reset?" , Help with genetic testing , Flour 1to1 Mixes never ending lol and 3 others
  3. RMJ
    HLA-DQ2 is NOT a continuum 2.01 to 2.99, but I don’t understand HLA genetics well enough to explain it further. It is not just one gene that is either this or that.
  4. icon RMJ reacted to an article: The Gluten-Free Detective: How to Track Down Hidden Contamination in Your Own Kitchen
  5. RMJ
    Gluten free flours can be very different, even from one manufacturer. For example, King Arthur has two certified gluten free flours that act quite differently in some recipes. I find that it is best to use the recipes on the website of the manufacturer of the flour, although I often bake for a shorter time than listed. I like this recipe for chocolate...
  6. RMJ
    The test result will never be shown as zero because the most negative the result can be reported as is less than the lowest amount the test can detect. For example, you might see <2. What is the normal range for your daughter’s test? Antibodies can hang around in the body for a while. Even if her result is not yet in the normal range, going from m...
  7. icon Zuma888 reacted to a post in a topic: What should tTG IgA be if Gluten Free?
  8. icon Zuma888 reacted to a post in a topic: What should tTG IgA be if Gluten Free?
  9. icon RMJ reacted to a post in a topic: Damage after 13 years gluten free
  10. RMJ
    @Wends Thank you for your thoughts. I am going to go to a different GI in September (first available appointment) who will hopefully give me more guidance than my current GI, who has given me none. I would call my antibody levels super sensitive, but not symptoms. Eating purity protocol certified gluten free oats does not affect my antibody levels. ...
  11. icon knitty kitty reacted to a post in a topic: Toddler recently diagnosed with Type 1 diabetes and need help understanding coeliac screening test results
  12. RMJ
    I’m frustrated with celiac disease and my current gastroenterologist (GI). I’ve been gluten free for almost 13 years, with normal antibodies for almost 8 years - except for one excursion of my DGP IgA 5 years ago which returned to normal when I changed brands of gluten free flour. All 4 celiac antibodies were positive 13 years ago but I didn’t h...
  13. RMJ
    Celiac testing often includes looking at total IgA levels, because if someone is deficient the IgA tests for celiac disease may not be accurate (false negatives). Did her doctors say anything about how much gluten she should consume? If you change that it could affect her next test results.
  14. RMJ
    Can the rest of your household eat the food with gluten instead of getting rid of it? Can you create one shelf, or partial shelf, for your new food in the pantry, in the fridge and in the cabinets as a start? My husband is not gluten free so we each have a cabinet, and separate shelves in the fridge. If we have to share space the gluten free foods...
  15. icon knitty kitty reacted to a post in a topic: Waiting on biopsy after positive bloodwork, but also not really believing this is real
  16. RMJ started following Father, it's been some time since my last hookworm larvae innoculation
  17. RMJ
    Dixonpete, I thought of you when I saw this article, although it may not have anything new for you. Worm inspired treatments inch towards the clinic
  18. icon knitty kitty reacted to a post in a topic: High IGA antigliadin, everything else normal, what does this mean?
  19. icon knitty kitty reacted to a post in a topic: Virus, celiac disease or both?
  20. icon RMJ reacted to a post in a topic: Virus, celiac disease or both?
  21. RMJ
    I can’t imagine eating 4-6 slices of bread per day, either. You just need wheat, it doesn’t have to be bread and it doesn’t have to whole wheat. If a piece of cake or a doughnut is about the same size as a slice of bread it’s probably roughly equivalent. Or you could do what Trents suggests and just buy powdered gluten. Gliadin X can help by “digest...
  22. RMJ started following Refractory Celiac disease - what to do , Virus, celiac disease or both? and Waiting on biopsy after positive bloodwork, but also not really believing this is real
  23. RMJ
    Damage with silent celiac exists. I am a silent celiac. I was tested because I have the gene predisposing to celiac disease and migraines. All of my antibodies were high (TTG IgA, TTG IgG, DGP IgA, DGP IGG, EMA). I had a biopsy which showed damage. After going gluten free I felt better overall and have more energy. Unfortunately it didn’t help the migraines. ...
  24. RMJ
    I had an endoscopy where there was no visible damage but biopsies showed damage. I even asked beforehand if the endoscope had good enough magnification to see the villi! I hope you get a clear answer from the biopsies.
  25. icon knitty kitty reacted to a post in a topic: Refractory Celiac disease - what to do
  26. RMJ
    Antibodies to Deamidated gliadin peptides. It is another celiac antibody test. The main test is the one you had, TTG, But a full panel will also include DGP IgA and IgG. I was positive on all of them!
  27. RMJ
    Sometimes it can take a long time for antibodies to get into the normal range. My TTG IgA was normal after a year, but just barely and it bounced in and out of normal range for a few years. It took five years to get the DGP IgA normal. You may want to reevaluate your gluten free diet. I started by not eating anything with gluten ingredients. All antibodies...
  28. icon RMJ reacted to a post in a topic: 4 Years and very little progress
  29. RMJ
    Yes, it would make sense to go mostly gluten free, since it gives your troubles.
  30. RMJ
    Yay for the normal biopsy! Thanks for the follow up. Were you eating gluten prior to the endoscopy?
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