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RMJ

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RMJ last won the day on September 15

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  1. RMJ started following Is tTG 9 normal after 4 months gluten-free? , 7yo struggling! , Kan-101 and 7 others
  2. RMJ
    The incidence of autoimmune diseases in general, including celiac disease, has increased. There are various theories as to why. The environment we live in, diet we eat, toxins we’re exposed to, stress levels, activity levels and infectious diseases to which we are exposed are all quite different now. A robust immune system that would have been an advantage t...
  3. icon Scott Adams reacted to a post in a topic: Damage after 13 years gluten free
  4. RMJ
    Update: I have a wonderful new gastroenterologist. She wants to be sure there’s nothing more serious, like refractory celiac, going on. She ordered various tests including some micronutrient tests that no one has ever ordered before. I’m deficient in folate and zinc and starting supplements for both. I’m so glad I decided to go to a new GI!
  5. RMJ
    It is more likely code for “we think there really was a good response to the treatment, but it was small or in a small percent of subjects so it would take a large clinical trial to try to prove it.”
  6. RMJ
    It can take longer than 6 months for antibodies to drop to the normal range, My DGP IgA took a few years as I got stricter and stricter about being gluten free But having symptoms again could also mean you’re getting some gluten in your diet.
  7. icon RMJ reacted to a post in a topic: 7yo struggling!
  8. RMJ
    That means the normal range (i.e. not celiac disease) would be a result less than 14.99. Your result is WAY above that. Some gastroenterologists would diagnose that as celiac disease even without a confirming biopsy because it is more than ten times the top of the normal range.
  9. RMJ
    To evaluate the TTG antibody result we’d need to know the normal range for that lab. Labs don’t all use the same units. However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. Y...
  10. RMJ
    When you say the endoscopy showed potential flattening and atrophic villi, Is that the visual result and you’re still waiting for the pathology report on the biopsies? It is quite possible to have the endoscopy look ok and the biopsies show celiac damage. That happened at my last endoscopy. It is also quite possible to only have damage in some areas. ...
  11. icon Scott Adams reacted to a post in a topic: Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history
  12. RMJ
    I think keeping the information to yourself is a good idea. In fact, many doctors won’t give an official diagnosis without a biopsy so if someone asks if you have celiac disease and all you have are blood test results a “no” answer wouldn’t be totally wrong🙂. Until I had a biopsy my medical chart just said positive celiac antibodies, not celiac disease. ...
  13. RMJ
    Be sure to have her continue eating gluten before the biopsy. Reducing gluten now could lead to healing and false negative results.
  14. RMJ
    Reference range 0.00 to 10.00 means that within that range is normal, so not celiac. There are other antibodies that can be present in celiac disease and they don’t all have to be positive to have celiac. I’m sure someone else will post a link to an article describing them! Plus, if you are IgA deficient the celiac IgA tests won’t be accurate.
  15. RMJ
    What is the normal range for your TTG IgA test? The units are not standardized so they can vary from lab to lab. The normal range is usually listed as <# (less than a number), so anything less than that number is considered negative. TTG IgA results should never be presented as 0 U/mL because this type of test has a lower limit of detection - i...
  16. icon RMJ reacted to a post in a topic: Help with genetic testing
  17. RMJ
    HLA-DQ2 is NOT a continuum 2.01 to 2.99, but I don’t understand HLA genetics well enough to explain it further. It is not just one gene that is either this or that.
  18. icon RMJ reacted to an article: The Gluten-Free Detective: How to Track Down Hidden Contamination in Your Own Kitchen
  19. RMJ
    Gluten free flours can be very different, even from one manufacturer. For example, King Arthur has two certified gluten free flours that act quite differently in some recipes. I find that it is best to use the recipes on the website of the manufacturer of the flour, although I often bake for a shorter time than listed. I like this recipe for chocolate...
  20. RMJ
    The test result will never be shown as zero because the most negative the result can be reported as is less than the lowest amount the test can detect. For example, you might see <2. What is the normal range for your daughter’s test? Antibodies can hang around in the body for a while. Even if her result is not yet in the normal range, going from m...
  21. icon Zuma888 reacted to a post in a topic: What should tTG IgA be if Gluten Free?
  22. icon Zuma888 reacted to a post in a topic: What should tTG IgA be if Gluten Free?
  23. icon RMJ reacted to a post in a topic: Damage after 13 years gluten free
  24. RMJ
    @Wends Thank you for your thoughts. I am going to go to a different GI in September (first available appointment) who will hopefully give me more guidance than my current GI, who has given me none. I would call my antibody levels super sensitive, but not symptoms. Eating purity protocol certified gluten free oats does not affect my antibody levels. ...
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