RMJ
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It sounds like you have a very reasonable GI doctor, who diagnosed you based on family history and symptoms after eating gluten. I would consider you lucky! The other option would be to make yourself very sick by doing weeks of a gluten challenge prior to an endoscopy.
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cristiana reacted to a post in a topic:
Outgrow celiac?
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knitty kitty reacted to a post in a topic:
Outgrow celiac?
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I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and g...
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Gluten free nuts
RMJ replied to Clear2me's topic in Gluten-Free Foods, Products, Shopping & Medications
I think Tierra Farms is a gluten free facility, at least that is what it says on the bag of walnuts that I have. -
Scott Adams reacted to a post in a topic:
Manitol and mri
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I’m so glad they listened to your concerns! I hope you get some answers from the MRI.
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RMJ reacted to a post in a topic:
Manitol and mri
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I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight. My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she...
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I wasn’t clear, glucagon and gadolinium were intravenous. I drank about 5 cups of the prep during 45 minutes. I feel very tired now, probably partly because I was nervous, and partly because I had to fast for 6 hours beforehand and wasn’t very hungry when I got home.
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Scott Adams reacted to a post in a topic:
Manitol and mri
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The solution I had to drink contained sorbitol and mannitol. I was in the MRI, lying on my back, for about 40 minutes. I was given glucagon partway through, and a gadolinium contrast agent. After I got home there was some diarrhea from the prep solution.
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I’m having this type of MRI this afternoon, What specifically do you want to know? From what I’ve read, not all facilities use the same drink prep.
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Scott Adams reacted to a post in a topic:
Follow up endoscopy and biopsy 14 years post celiac diagnosis
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knitty kitty reacted to a post in a topic:
Follow up endoscopy and biopsy 14 years post celiac diagnosis
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A much better suggestion than that of the new doctor!
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Not only is the doctor being ridiculous, having her make herself ill so he can re-diagnose her already diagnosed celiac disease, but one week of gluten, while able to cause GI symptoms, might not be enough to cause new damage visible with a biopsy. So if she follows his advice he might say she doesn’t have celiac disease! She needs a different doctor. ...
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Wends reacted to a post in a topic:
Damage after 13 years gluten free
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RMJ reacted to an article:
The Best Gluten-Free Flours for Baking (And When to Use Each)
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Scott Adams reacted to a post in a topic:
7yo struggling!
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The incidence of autoimmune diseases in general, including celiac disease, has increased. There are various theories as to why. The environment we live in, diet we eat, toxins we’re exposed to, stress levels, activity levels and infectious diseases to which we are exposed are all quite different now. A robust immune system that would have been an advantage t...
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Scott Adams reacted to a post in a topic:
Damage after 13 years gluten free
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Damage after 13 years gluten free
RMJ replied to RMJ's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Update: I have a wonderful new gastroenterologist. She wants to be sure there’s nothing more serious, like refractory celiac, going on. She ordered various tests including some micronutrient tests that no one has ever ordered before. I’m deficient in folate and zinc and starting supplements for both. I’m so glad I decided to go to a new GI! -
It is more likely code for “we think there really was a good response to the treatment, but it was small or in a small percent of subjects so it would take a large clinical trial to try to prove it.”
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It can take longer than 6 months for antibodies to drop to the normal range, My DGP IgA took a few years as I got stricter and stricter about being gluten free But having symptoms again could also mean you’re getting some gluten in your diet.
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RMJ reacted to a post in a topic:
7yo struggling!
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Waiting Gastroenterology review
RMJ replied to Fayeb23's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That means the normal range (i.e. not celiac disease) would be a result less than 14.99. Your result is WAY above that. Some gastroenterologists would diagnose that as celiac disease even without a confirming biopsy because it is more than ten times the top of the normal range.
