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skelly247

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Everything posted by skelly247

  1. skelly247
    I am really similar to you. I went gluten free and felt amazing in under a week. I stayed gluten-free for multiple months and then went back on gluten for just over a week before my test (pasta for lunch and dinner every day to use up my pasta stores, so painful). My serum IgA was lower than it was supposed to be and my IgA tests were just barely negative...
  2. skelly247
    It also depends on what part of gluten your body is making an antibody to. Some people may make antibodies that are better at binding to/finding gluten. They would, presumably, get sick from less gluten than someone who has antibodies that are worse at binding to gluten. Genetics does play a role in this but your bodies initial response in making an antibody...
  3. skelly247
    I feel your pain...A friend brought peanut butter cookies to a party and told me that I could have them because they were peanut butter cookies, not wheat cookies. Same friend told me I could go with her to get lunch at a buffet because they had cake and cake isn't made with gluten. First off, false, second, what kind of lunch is just cake? She kept insisting...
  4. skelly247
    I am! Before pesach I thought that I would basically eat normal and then I realized how many things have kitnyot in them :-( . I'm not sure what is road portable but I've been subsisting off of a lot of hard boiled eggs, potatoes and chicken. My mother-in-law made me potato starch based noodles that I can put in chicken broth for a soup and I've also had...
  5. skelly247

    ARCHIVED Guilt

    skelly247 posted a topic in Coping with Celiac Disease

    Does anyone ever feel guilty for other people having to accommodate their food needs? We're having a party at work and my coworkers are going out of their way to get gluten free food options but I feel so bad that they went through so much trouble to accomodate my needs. Am I just crazy? Does this get any better with time?
  6. skelly247
    Okay, quick science break here :-p Your body makes a number of different Immunoglobulin proteins (Ig_, also known as antibodies), each with their own function. IgG and IgA are the two types of immunoglobulins that celiac patients make against Tissue Transglutaminase (tTg, the enzyme that processes gluten), Deamidated Gliadin (DGP, a processed form of the...
  7. skelly247
    I was in the same boat as you are now, I went "paleo" and felt 100x better than I had. I went out to eat at a steakhouse with friends about 2 months after going paleo and someone ordered one of those delicious deep fried battered onions and I had some. Half way through the meal I started to not feel so good and then I had to find a bench to curl up on when...
  8. skelly247
    I decided to forgo the endo because I react badly to anesthesia and my symptoms and blood work were enough for me. I was mildly positive for 2 of the tests despite being IgA deficient and only on gluten for 2 weeks as well as having multiple vitamin deficiencies, some severe (my vitamin D levels were almost undetectable) in addition to a family history of...
  9. skelly247
    Never mind, I just figured it out. I went to put together my snack for tomorrow of apple cinnamon chex and saw the little cinnamon flecks on my fingers after I had put it into it's baggy that look really similar to what I was seeing but I'm not sure how to take down the post since I've figured it out!
  10. skelly247
    When I went to my doctor and told him I thought the problem was gluten, he said why bother testing, the treatment is the same regardless, if gluten makes you feel sick, don't eat it. I wanted to know for sure if that was the problem or if it was all in my head so he agreed to do the celiac panel but it was more for my own knowledge and to make my family...
  11. skelly247
    I have the same problem, my front teeth (upper and lower) look like they are jelly at the edges because they're a fair bit see through. Without fail, every time I go to the dentist they tell me that my gums are in awful condition and that I need to floss more and should try for at least twice a week. They're shocked when I tell them that I floss daily and...
  12. skelly247
    Okay, here we go. *Ask for copies of ALL your results when you go in, one doctor might analyze them one way while another could analyze that same info differently. Plus, it's always good to have copies for your own records. *Make sure they took enough samples (I believe they're supposed to take 6-8). Celiac damage can be patchy sometimes. If they...
  13. skelly247
    I was diagnosed just over a month ago, went gluten-free and have being making my own food since then and my symptoms have been getting somewhat better. Yesterday, out of nowhere, little black peppery flecks started showing up in my stool (it is normal colored on the whole, just with teeny black spots in it) accompanied by lots of stomach noises (my stomach...
  14. skelly247
    Thank you all so much! The barley malt was in one of those lindor truffles, they were giving away free samples at costco and I didn't even think to check because it was chocolate, why would there be gluten in chocolate....? BlessedMommy, is there really gluten in jams? That's really depressing.....
  15. skelly247
    I was diagnosed about a month ago and have managed to unintentionally gluten myself twice, once with a spaghetti strainer that I thought I cleaned really well and once with foods that have no business having gluten, in my case, barley malt in chocolate as a sweetener. In the interest of avoiding glutening myself (and any new celiacs as well), what are...
  16. skelly247
    I recently got a hold of all the bloodwork my doctor ordered when he tested me for celiac and a whole host of other gastrointestinal problems and noticed he didn't mention was that my TSH levels were elevated but within the normal range (3.8 with a range of 0.5-4.0 being normal). Many of the symptoms of decreased thyroid function are similar to symptoms...
  17. skelly247
    I'm a PhD student in molecular bio so if I could just clear the air about GMO's and make sure everyone's on the same page here! Humans have been breeding together various strains of crops for hundreds of years to obtain more desirable characteristics. Say you want a shorter wheat stalk with the same taste as the current one, you cross various dwarf wheat...
  18. skelly247
    If her intestines were "patchy", then the person doing the biopsy would have had to sample the damaged areas (and preferably more than one) to get a diagnosis. If the sample taken was of one of the healthier areas, then there could be a false negative. Like frieze said, try gluten free for a few months and see if it improves!
  19. skelly247
    It's not surprising that you had a stronger reaction. From what I understand (and someone correct me if I'm wrong), when you go gluten free, your gut has time to heal. When you ingest gluten, you are attacking a healed gut that is more sensitive to glutening than a damaged gut that is used to being attacked in response to gluten so it has a dulled (or no...
  20. skelly247
    Frieze. That's true but D3 and D2 are vitamin D precursors that both get processed in the liver to form calcidiol (25-hydroxy vitamin D, what the vitamin D test actually looks for) and then that gets processed in the kidneys to form both 1,25 dihydroxy vitamin D (the active form) and 24,25 dihydroxy vitamin D. Since the active form of vitamin D can be made...
  21. skelly247
    My doctor didn't give me any reason for why my vitamin d levels are so low, he just said they are obscenely low and you need to get them up with 3 months of once a week megadoses of vitamin d (a loading dose). After the 3 months, I'll get my vitamin d levels retested to see if I can move to a maintenance dose that's closer to the daily recommended dose and...
  22. skelly247
    Thank you guys! I have no problems going gluten free with the results that I have, I feel so much better without it (no bloating, no stomach discomfort/problems, plus I don't feel completely exhausted all the time). When I went back onto gluten for my blood test, I got crippling stomach pains for the first few days that slowly subsided into just discomfort...
  23. skelly247
    I've had problems with bloating and constipation for awhile and after a friend was diagnosed with celiac disease after having similar symptoms, I figured I would ask my doctor to run the blood test for me. I had been gluten free for about 2 months and then went back to eating gluten about 3 weeks before my appointment (my doctor said that I didn't have to...
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