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Fenrir

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Fenrir

  1. Fenrir
    I'm no Dr. but if you have pain that wakes you at night that's something that should be treated or evaluated immediately. Extreme abdominal pain can be a sign of many things including bowel obstruction (can happen with extreme constipation), UC or any number of things that are potentially fatal. Extreme pain without being exposed to gluten isn't normal...
  2. Fenrir
    You have the labs that are pretty specific to celiac disease so I believe you are as sure to have celiac disease as one can be without having the EGD done. I would get the EGD done if money isn't an issue but you could certainly just go gluten-free and if you improve then you are good to go. I had the EGD done because I maxed out my deductible and max...
  3. Fenrir

    Want to read my story on how I was diagnosed? Read it here.

     

  4. Fenrir
    I had similar issues as you before I was diagnosed but also had join issues, headaches, constipation, stomach pain, bloating, and fatigue. Typically, you don't just have one or two symptoms you end up with multiple. No way to really know unless you get tested and you'd need to be eating gluten for the tests to work right. If you want to see what...
  5. Fenrir
    Not enough information to give an opinion, you need to get the full celiac workup if you have a set of symptoms that warrant it.
  6. Fenrir
    I would suggest 2 slices of bread a day. A sandwich a day should keep you positive.
  7. Fenrir
    Doing great! Been gluten-free for two years, now. No symptoms, antibodies are almost nil and certainly where they should be. Been glutened really bad twice (ate 4 slices of bread I thought was gluten-free once, and ate pasta I thought was gluten-free once) was in bed for three days each time and felt like crap for a couple of weeks. Learning experiences,...
  8. Fenrir
    I'm not a doctor or expert but I've done a lot of reading and I believe anything that causes major inflammation for the small intestine can cause false positives for celiac antibodies. Sometimes people with Crohn's will have positive celiac tests as well. I wouldn't be surprised in the least that someone with a bad case of Giardia would come up positive...
  9. Fenrir
    Everything you listed above very well could be Celiac Disease and not Sjogren's, but people with one autoimmune disease are at a higher risk of getting another one. Your GP clearly is working with old knowledge in regard to Celiac Disease. There are probably more people who suffer from constipation from Celiac than loose stools. I know for me I never...
  10. Fenrir
    My TTG was very weakly positive, Deamintated tests were off the charts positive and I had Marsh grade 3b on biopsy. TTG is not the best test, more than likely your biopsy is going to be positive.
  11. Fenrir
    I have had luck at Perkins and Applebees. I know that many would say not to eat at these places but I have educated the two that I go two and they will actually clean the area of the grill before cooking on it now and the Fiesta Lime chicken is otherwise gluten free and the pork chops with salt and pepper is OK at Perkins (if you can get them to clean the...
  12. Fenrir

    ARCHIVED Mexican?

    Fenrir replied to cwnhokie's topic in Gluten-Free Restaurants

    Yeah, I eat at Chipotle for my mexican fix. Not quite the same as a traditional place but it works and it is good. However, care for CC does vary from location to location. I've been to some Chipotle's that will go into great detailed care to avoid CC and others where the people seem completely unaware of the procedures needed.
  13. Fenrir

    ARCHIVED Mexican?

    Fenrir replied to cwnhokie's topic in Gluten-Free Restaurants

    The problem I have found with most Mexican places is that they are not really aware of the problem people can have with gluten. They do have many things at most Mexican places that are naturally gluten free but because there is no care for CC you can't eat there. At most places you should be able to eat hard shell tacos, but you don't know if the spices...
  14. Fenrir
    Namaste sells big bags of gluten free flour at Sam's Club or Costco pretty cheap (for gluten free stuff) and they have a really good recipe for brownies on their website. They are my go to baked sweets now days.
  15. Fenrir
    No, is should not be any different for kids. One thing in a face of several others shouldn't exclude a DX. Has nothing do with being a kid or not.
  16. Fenrir
    Great to hear! Also, now that you know gluten is a problem you may actually see an improvement in your depression and anxiety as a lot of diagnosed celiacs will improve in both areas when they go gluten free. I know my anxiety has improved a ton since going gluten free.
  17. Fenrir
    looks to me like the normal range is 0-19, her result is 4. the "i" looks like a product of copy and pasting from a webpage.
  18. Fenrir
    If you were gluten free for three months these tests are almost useless, unfortunately. Those tests are pretty much negative.
  19. Fenrir
    It took me about 6 months to get over it. Now, almost a year into it, I'm pretty well adjusted to it and it really doesn't bother me to have to eat my gluten free stuff when people are having pizza or other favorites from the old days. Of course, I've gotten a lot better a cooking as well, which helps.
  20. Fenrir
    Before I was diagnosed I had chronic joint/tendon issues. There were times the tendons in my knees were so inflamed that I could literally not get out of my car. I was limping around all the time, it was pretty horrible. Luckily, after about a month of being gluten free that probably went away for the most part. Not sure if gluten is the cause of your...
  21. Fenrir
    There should be a comprehensive metabolic panel that is ordered. It should cover all the micronutrients, vitamins and minerals. Thyroid and liver testing as well, because Celiac can do a number on both sometimes. My Liver enzymes were elevated before I went gluten free. Also, people can get anemic as well so a CBC should be ordered. If anything comes...
  22. Fenrir
    Also, I don't know where you live but if the Twin Cities in MN is closer than Chicago, Minnesota Gastroenterology (MNGI) is a very good place to go as well. They DX'd me very fast and also have several Celiac patients that they monitor and they are very educated on Celiac as well.
  23. Fenrir
    Blood work tends to be extremely sensitive, so like others said a positive is 98-100% chance that you have celiac. One thing I would like to mention is that it would be beneficial to see a GI specialist or another one. Also, may be worth getting the deaminated tests done. For me, my TTG was weak positive (which is still 98-100% chance) but my deaminated...
  24. Fenrir
    Yeah, no matter what the tests or Dr. says if you feel better without gluten, then do it!
  25. Fenrir

    Colonoscopy

    Fenrir commented on moosemalibu's blog entry in moosemalibu's Blog

    That sucks, hopefully they figure out what the issue is.
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