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Christina.V

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Everything posted by Christina.V

  1. Christina.V
    I'm sure we will wait, but the reason I ask is because he thinks this is nothing more than a "witch hunt" (his words) and keeps delaying the testing over and over again. I just wanted to find out if there was any validity to his claims. If anyone DOES have a study they can point to, I would appreciate it!
  2. Christina.V
    Can anyone point me towards a legit source that would state that blood work can be affected by strep? I have asked our GI doc to run bloodwork for my daughter but the co-parent is saying he won't do it because she was diagnosed with strep recently. The Dr. says in writing that they aren't related.
  3. Christina.V
    Thank you SO MUCH for those statistics, and the reports to back them up. I feel like my mothers intuition is saying that he has it, so I'm not willing to walk away from this and say he's all clear. Even though my intuition tells me this I realize it needs to be a data driven decision. I would be happy to go gluten-free for a year and see how he does...
  4. Christina.V
    We are trying to figure out if my 5 yr old has celiacs, any advice would be super helpful! The indicators that he may be positive: I have celiacs (and did not have any GI symptoms prior to Dx) 250 Ttg/iga elevated liver enzymes diarrhea and stomach pains when eating gluten at my house, Ex-H claims that he is symptom free at his in...
  5. Christina.V
    I was asymptomatic prior to Dx, so my will power does fail me from time to time. Last week I was at a football game and incredibly hungry. Of course stadium food is the worst so I caved and at a piece of pizza. Then, this past weekend I ate one of my mom's homemade flour tortillas (they are the #1 thing I miss the most). Both times I did wind up having...
  6. Christina.V
    I was told today that the Red Robin seasoning has gluten. I'm fairly new to gluten-free so can someone tell me which of the listed ingredients (if any) is the culprit? The label doesn't indicate gluten... Salt, Spices (incl black pepper, celery seed, cumin, oregano, sage), dextrose, dehydrated garlic and onion, paprika, autolyzed yeast, dehydrated tomato...
  7. Christina.V
    Per the docs it's "slightly elevated" -- they are looking at >100 as being "highly elevated" It's all in the interpretation I suppose!
  8. Christina.V
    Labs have different ranges. In this case <15 is a negative. So the 27.6 number on the TTG IgA is not "highly" elevated. The recommendation is coming from two of the top specialists in Colorado. I think I said this before, but the worry is that we actually have caught it too soon to tell, and that long term a false negative diagnosis will be more detrimental...
  9. Christina.V
    I am one of the "silent" cases for sure, so I did voice the same concerns as you all are pointing out. Not only is she not showing severe symptoms, but she is also on track for her growth charts and her numbers are slightly above normal (not in the 100s). The decision to hold off was not made lightly! The hope is that her numbers may normalize. The co...
  10. Christina.V
    My diagnosis came a couple weeks ago after bloodwork and a biopsy (a hepatologist performed those). I have a referral to a GI doc but not until Mid-july. I have an appt with my PCP in a couple of weeks, though, and I'm planning on asking about additional bloodwork that might need to get done. Recommendations on what tests to get? I don't prefer waiting...
  11. Christina.V
    These sound SO GOOD! We took a trip to whole foods last night and found WAY too many yummy goodies and stocked up. The creme brulee, chocolate pot de creme, and coconut macaroons are probably my top three favorites. Everything in moderation of course. Fortunately 1/2 of the small creme brulees is plenty for me.
  12. Christina.V
    Fortunately she doesn't feel sick every day. And I don't intend to have gluten in my household. She's pretty vocal about when she's not feeling well! In fact, she was the one who prompted the initial dr visit. If her symptoms do get worse, then I'll persue the EGD and biopsy for sure. The doctors at Children's were in agreement in spite of the opposition...
  13. Christina.V

    ARCHIVED Starbucks

    Christina.V posted a topic in Gluten-Free Restaurants

    Obviously 90% of their food is not safe, but what about the drinks? Their corporate answer is that due to the nature of "handcrafted" beverages they could CC, but what has been your experience? Do any of their drinks have gluten ingredients?
  14. Christina.V
    I'm finding that I'm fine throughout the day, but nightime snacks are hard for me! I keep craving cookies and cakes. Last night I grabbed an apple and put some nutella on it but it didn't quite hit the spot.
  15. Christina.V
    Yes, we did discuss that. I should have said that at home we will eat gluten-free, but not strictly enforce it when at friends and families or eating out. I am simply not going to have gluten in my house so therefore she won't get it there.
  16. Christina.V
    Thanks for the advice! The doctors at Children's think that we should hold off on any endoscopy/biopsy until her symptoms either worsen or for 6 months when we will repeat the TTG IgA. They fear that if we do the procedure it will come back with a false negative. Although she is currently testing positive (27.6) it's not elevated enough to worry. So for now...
  17. Christina.V
    Which article are you referring to?
  18. Christina.V
    Thanks for the reassurance. My daughter has her initial consult with a pediatric celiac specialist tomorrow. I pray that the Doctor can talk some sense into him.
  19. Christina.V
    Today the Co-parent told me that if I'm not having GI symptoms then there is NO REASON I should be gluten-free. (I was diagnosed just a week ago). He went on to say that there's some study out there that supports this. Does anyone know what he could be talking about? I personally think he's making it up, but again I want to do anything possible to support...
  20. Christina.V
    I was recently diagnosed thanks to a fluke test ran by my doctor. I have ZERO GI symptoms but definitely have the disease. I don't want to cheat, but I have to admit it's tough to maintain my willpower! I've read over the posts on why not to cheat and so far I'm still motivated to maintain gluten-free. Fortunately my community has many many grocery store...
  21. Christina.V
    Heard from my doc this morning! Biopsy results came back consistent with celiac sprue. ** sigh ** Oh well! FORWARD MOTION IS EVERYTHING! On to a healthier lifestyle!
  22. Christina.V
    thanks!
  23. Christina.V
    I had my endoscopy/biopsy yesterday. Visual findings were for "mildly scalloped mucosa" and a small hiatal hernia were present. Awaiting biopsy results. Wondering how long it can take to get those back? Anyone have other info they can share while I wait for a solid conclusion?
  24. Christina.V
    She isn't in Denver, but in Northern Colorado The Cake Lady is AMAZING! www.thecakeladyshop.com She's a personal friend of mine and can definitely do gluten-free. Since she's a small operation you don't need to worry about cc. I've had many of her cakes *although none gluten-free* but I can say they are delicious and absolutely GORGEOUS!!!
  25. Christina.V
    WOW Thanks!!! I have seen the first link but not the others. The one on changing protocols for diagnosing children is great.
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