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veryami1

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by veryami1

  1. veryami1
    Sorry, I wrote in such a hurry I didnt realize my grammar was so awful. Of course I have DNA. At least, I sure hope I do! I meant, negative for Celiac DNA. However, I'm wrong. The paperwork says I'm positive for one allele but not another. Paperwork explicitly states "Extremely low likelihood" - but given my positive other tests, the doctor today was...
  2. veryami1
    Thanks for the replies. Not looking to sue the doctor or anything, I'd just love to give some cautionary advice to others seeing them. I posted on Yelp, that should be enough. I might write the doctor a letter as well and be done with it. To answer your question, I tested positive for EMA and had high levels of DGP antibodies. (I think that's the correct...
  3. veryami1
    Hi! I finally have my positive diagnosis of Celiac and while I know it's a tough road ahead, i'm so happy to have it! I'm ready to start feeling better. The first doctor who tested me for Celiac misread the blood paperwork, told me I did not have Celiac, and ordered more tests for me. She wanted to check my gallbladder next, and even prescribed me drugs...
  4. veryami1
    Thank you for all the replies and the ballpark suggestions! Much appreciated! ~Ami
  5. veryami1
    I'm new to eating a gluten free diet, due to possible celiac. I'm doing my best to stick to a very strict no gluten diet to confirm my suspicions (if i keep feeling better, i'm not going back!). I've had a few encounters with some close ones recently, and I'm not sure how to navigate them without getting upset. My initial reaction is to just walk away...
  6. veryami1
    I have positive for celiac blood work and an incompetent GI who said I was negative for celiac. (the DNA test was negative, but positive antibodies and EMA) Waiting for my appointment with another GI. Decided to go gluten-free anyways, have been feeling better for about a week.
  7. veryami1
    Hi, I've been eating gluten-free for just over three weeks. Last week, I had japanese food including sticky rice and imitation crab. I had no idea these had gluten! I found out today. However, I was fine last week when I ate them. Is it possible that I glutened myself but did not outwardly feel glutened? Like maybe I just did slight internal damage without...
  8. veryami1
    Thank you all SO much! What do the allelle results mean? Do you think that she interpreted the results as negative simply because I did not test positive for both genes? How can she be so stupid, to put it not so mildly? With these results, is there ANY WAY I can not have celiacs, not taking into account possible testing errors or such? Looking...
  9. veryami1
    Hi Lisa, Thanks for the quick reply. These are the ranges listed on the paperwork, in parenthesis. Deamidated Gliadin Peptide Antibody - IgG - 43.0 EU (<4.9 EU) Deamidated Giagin Peptide Antibody IgA - 9.3 EU (<6.1 EU) Anti-hunman tissue transglutaminase igA - 75.0 EU (<10.3) Anti-endomysial igA IFA - positive (range, negative) total...
  10. veryami1
    Hi, I just returned from an appointment with my GI. She said I am negative for celiac, however, the copy of the test results I received said "supports a diagnosis of celiac." I am obviously confused. I went back to ask her why she said it was negative, and she didn't have time for me. Suffice to say, I won't be going back. But I do have these results...
  11. veryami1
    Hi Shellie, I went to the doctor for a routine check-up, mentioned my stomach symptoms, and she did a blood allergy panel. As far as I could tell, the blood test did not test for celiacs, but it did test for common food and environmental allergies. This was about two weeks ago. The results showed a wheat allergy, so I've given up wheat. I basically decided...
  12. veryami1
    Hi everyone, this is my first post. Every time I do a search on celiac, the most helpful responses seem to be this website/forum, so I figured I would sign up. I am recently diagnosed with a wheat allergy. I've dealth with years of gastrointestinal distress. I went to a few GIs in the last two years. One called my problems IBS without running any tests...
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