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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by ezgoindude
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ARCHIVED The Beginning - Good Enough Of A Diagnosis
ezgoindude replied to ezgoindude's topic in Coping with Celiac Disease
lol..... there are days i'd like to take you up on your offer, my shoulders and lower arms are almost down to the bone. So since Sept 22nd I've started a full elimination diet. Avoiding the "top 8" plus others people contest with pain, my foods are down to: Chicken or Turkey Kale, various lettuces, Chard Summer quash, zucchini (steamed) Carrots... -
I'm 25 5'10". Before symptoms were serious last year I was always around 165, I now gravitate towards 138-140 pounds. Im currently on day 4 of an elimination diet, I'm thinkin maybe I'll increase my level of baked sweet potato to twice a day? (Baked sweet potatoes my body apparently handles extremely we'll...)
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ARCHIVED The Beginning - Good Enough Of A Diagnosis
ezgoindude replied to ezgoindude's topic in Coping with Celiac Disease
**********<<<<<<<<<<<BIOPSY RESULTS>>>>>>>>>>*********** (from back in March 2014) Final Diagnosis(es): Duodenum, biopsy: Small bowel mucosa with no histophathologic abnormality. Stomach, biopsy: Reactive/chemical gastropathy. No H. pylori organisms identified... -
ARCHIVED The Beginning - Good Enough Of A Diagnosis
ezgoindude replied to ezgoindude's topic in Coping with Celiac Disease
thanks again Cycling Lady, my intolerances are slowly changing so I'm testing the waters with an elimination diet... so far so good, only on day 3. For anyone out there who is also looking for a diagnosis or knows they're not crazy when doctors are saying its nothing and your young and healthy and making it up..... I would like to provide the colonoscopy... -
I should say muscle but at this point i would even take fat around the edges just so I can say I could. kk, considering I may have an eosinophilic reaction some foods (beyond NCGI), my current day looks like: Breakfast smoothie ( Blueberries, kale, almond butter, almond milk, little honey ) Lunch - grilled chicken with greens or veggies...
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Thanks for the replies guys, With my current dilemma is that I'm actually trying to gain weight, I would feel alot more confident about myself if I could put on about 12 - 15 pounds. makes sense that the sugar and carbs would be broken down quicker and thus quicker to add as fat, I'm completely content with eating large quantities of sweet potatoes...
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Here's my scenario, on my unusually bad days where I feel like I'm a hassle I grab my almond butter jar and go to town. In one of my lower moments I ate an entire jar of almond butter while watching TV movies for several hours.... And no reflection of that into weight gain?!? My theory is the fat is broken down that the fecal fat test doesn't pick up...
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ARCHIVED Question For Any Really Underweight Celiac's?
ezgoindude replied to ronapa's topic in Related Issues & Disorders
I understand everyone on this thread is probably no longer active... But your words are comforting. My diagnosis is unknown, but changing what I eat has made gradual, positive improvements, except for my weight. Similar to others, it can take weeks for me to gain a couple pounds, yet almost as fast to lose it all in one or two days.... Reintroducing... -
Im really hoping Trader Joes brings back their usual gluten free raw, crunchy almond butter, as I walked into the store today and was stuck saying to myself, crap.... Now I know they just pushed on the news all almond butter with experations from I think Dec 2014 to July 2015 were recalled for possible salmonella, goes for Whole foods and MaraNatha? almond...
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ARCHIVED Cost Of Celiac Genetic Test?
ezgoindude replied to hazelnutty42's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I live in Arizona, I was at the time I was still a dependent under united health care with my parents. The HLA genetic marker test was through Labcorp, I only paid $28.73 with my parents insurance, the original bill showed $750.00. -
ARCHIVED How Long Does It Take To See A Difference?
ezgoindude replied to clinchfield33's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'm currently in a similar dilemma, but i've been tested with pretty much everything under the sun. Did they cut pieces of your colon out when they did the colonoscopy? Sorry to pry into your test info but if Gluten isnt just the main trigger you may have several intolerances, or your colon is so inflamed it needs to calm down, I hear some folks go through... -
ARCHIVED How Long Does It Take To See A Difference?
ezgoindude replied to clinchfield33's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Sup clinch! I had wanted to ask, with such violent symptoms the doctor found nothing with all the scopes?!? Did you ask for the biopsy results? There would be inflammation somewhere I'd have to guess... -
Hello elless You beat me to the post with my epic description of woe, ha.. How did you know it was gluten free? The list they give me just describes all the possible things it could do to you, aka disclaimer I think. I'm definitely not constipated, my new gi is very knowledgeable but stubborn, when i see him again this fall I know he'll want to do a...
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Hello coffngrl! Thank you on the reply, yea I can't find the bottle I bought, haven't touched the stuff, bought it at the target pharmacy. As for my testing, I've done a lot, actually was about to post my results on my personal topic page. In the past few months I've done an endoscopy, colonoscopy and ct scan with barium, I received perfect results...
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Whether celiac or NCGI or autoimmune disorders, anyone on the forum have or is currently taking steroids? would it only be short term improvement? did it cause more hurt than good? I ask of this as my new GI has me under the NCGI/eosinophillic disorder assumptions currently, since he's confirmed I don't have crohns he would like me to start taking...
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Does anyone have personal insight on this? Every time my stools are completely solid, yet are very wet and can sometimes smear. I freaked thinking it was a pancreas disorder but the doctor says calm down, your fecal fat test shows completely normal. Anyone here do a fecal fat test which didn't solve much of anything?
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ARCHIVED The Beginning - Good Enough Of A Diagnosis
ezgoindude replied to ezgoindude's topic in Coping with Celiac Disease
My story of symptoms: I've had loose/foul stools since summer of 2010, doctors pointed as IBS mid 2011 - sleeping problems , melatonin/cold dark room helps. Over the next few years I would get a cold every couple of months, my parents would say it was like clockwork. Usually left after a few days. SEP 2014 - violent flu, pink eye OCT 2014 ... -
ARCHIVED The Beginning - Good Enough Of A Diagnosis
ezgoindude replied to ezgoindude's topic in Coping with Celiac Disease
Thanks smri, I will have to look into those tests when my new insurance kicks in.... I would floored if my immune system could cause all this. But then again everyone else thinks I'm ok and a burgers never hurt anyone, sweet lord lol. Yea ladysaved, we'll that was what the gi doc described. He visually saw what appeared as damage, But he only took... -
ARCHIVED The Beginning - Good Enough Of A Diagnosis
ezgoindude replied to ezgoindude's topic in Coping with Celiac Disease
Thanks Beth, No offense taken, the professionals use me as a lab rat, I very public about my unknown disease, gotta take it by the facts! The 5 hiaa test was included with all metanephrines and catecholamines, again to review any possibly of calcium buildup or neuron doctrine tumors. Her conclusion was I was healthy normal person, never seen her... -
ARCHIVED The Beginning - Good Enough Of A Diagnosis
ezgoindude replied to ezgoindude's topic in Coping with Celiac Disease
Hello y'all, Sorry Beth I forgot yes they snuck in a cbc test with C-reactive protein and sed rate when they were prodding at my thyroid. Aside from my platelets being low, my blood is a perfect average . My eos was 2 with reference levels 0-5, and my absolute eos was 0.1 with reference levels 0.1-0.4. Yea smri, my celiac panels are showing negative... -
ARCHIVED The Beginning - Good Enough Of A Diagnosis
ezgoindude posted a topic in Coping with Celiac Disease
I'm sure there will be more to this as I continue to see my new GI this year, but I really want to put all I have learned these past 9 months in the attempt that someone as lost as I am can read this and help piece together what could be happening with their body. I've had loose stools close to 4 years, with doctors always pointing at IBS. Last september... -
Sup guys, I don't have much advice, as I'm a newbie in this realm of chronic inflammatory diseases, but I have one question for luvrdeo... How did you doctor discover you had lymphocytic colitis? Would you mind saying what tests provided evidence of it? I ask because one thing that stood out for my new GI is my biopsy showed mild eosinophil count...
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ARCHIVED 5 Years Gluten Free- Encouragement For The Newbies
ezgoindude replied to sandsurfgirl's topic in Coping with Celiac Disease
As weird as this sounds i am blessed when you guys talk about the "dark times" of your pre diagnosis/diagnosis/recovery times, it helps put my mind at ease that I'm not crazy when its more than just IBS.... I'll be posting on the coping with as a newbie, as of two days ago I got what for a better term is a conclusion to what I've been trying to heal... -
ARCHIVED Did You Have Hair Loss From Celiac?
ezgoindude replied to Prezwilson15's topic in Coping with Celiac Disease
Good evening yall! my question kinda goes out to IrishHeart, I'm a guy but it sounds like my hair loss conundrum is very similar to yours. I've always had fine hair, but as a hairstylist said I have alot of tiny hairs so it compensates? anyways I'm losing a fair amount of hair just in the front, which hasn't done much but give me a bigger forehead...