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ezgoindude

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by ezgoindude

  1. ezgoindude
    SEPT UPDATES: Wow, life has been busy! I did all 3 SIBO breath tests, they came back negative. Beta Carotine tests and B12 came back extremely high above normal?!?!??! I am NOT supplementing any vitamins this year except for vitamin d since that has shown very low several years ago when this all started. Doc word for word tells me "congrats...
  2. ezgoindude
    MAY UPDATES: Alright, so I'm back talking with the doc I got the CT scan from last year. The doctor who just prescribed me the two weeks of steroids wants to wait three months and in between go to a hematologist? for skin testing for allergens. Yea, I'm not wasting my time on that. I have dysbiosis, IBD, SIBO, something..... hell I only eat around...
  3. ezgoindude
    Afternoon folks, as an advisory I am still undiagnosed, possible eosinophillic disorder, possible food allergies, possible leaky gut, possible celiac, it just keeps going..... But anyways, I feel this is similar to all but how have you helped slow the hair thinning? I'm not balding, I still have a solid hairline, HOWEVER, its so light and thin that...
  4. ezgoindude
    Went to the GI, considering everything is normal and my vitamin b12, beta carotene came back more than normal he's trying to tell me severe food allergy. I finally got him to open his mind when I asked why that would give me a calprotectin result of 150, which is not crohns level but definitely a lot of inflammation last year. He has perscribed me a 90...
  5. ezgoindude
    evening googles! If you dont mind I had a question about your story..... I see a few years back you were on this forum with a diagnosis of celiac. So there was also inflammation in your colon at the time of your diagnosis? Have you every taken medications to reduce inflammation? I only ask as reference to my own struggles, I've been undiagnosed...
  6. ezgoindude
    Thanks nvsmom! I'll have to suck it up and call it getting "well"... I'm still frustrated how I could eat something, get no reaction whatsoever, and 3 days later it comes out as foul odor, rotting wet just bleh formed blob.... yes TMI but dude, if my enzymes are good why is it not being absorbed? frustrating yes I do feel much better than when I first...
  7. ezgoindude
    APRIL UPDATES: Been awhile my friends! Still undiagnosed but feeling much better, for reasons also unknown? I as usual am in no pain, I sleep well, and other than what I eat I for the most part feel normal again. My only complaints are my stools are formed but a long way to go before perfect (they float, sometimes pale, foul odor sometimes) and my...
  8. ezgoindude
    Ugh! I wish she was still posting on this website!! I have a low level of inflammation as well, I'm frustrated to the point of taking immunosuppressants! But what if its gut flora? then do I take prednisone? Even the intro stage of SCD is frustrating because that's how I found out I can't tolerate carrots, even if cooked for hours. ANY carbs are a problem...
  9. ezgoindude
    waddup! Thank you for your honesty, it is comforting in a way your blood results were negative, I have the second highest genetic probablility of having celiac, blood results were negative the doc is redoing my endoscopy as they have fears they didn't go far enough down for my sample, as my first endoscopy was clean even though visually the doc was...
  10. ezgoindude
    Sup john! I don't have too much to add in considering Im undiagnosed and probably have several unknown autoimmune conditions, but I had two questions for ya: 1) How did they find out you had celiac? was it from a combination of testing? 2) When you eat these bad foods, how do you know you can't have them? Is it neurological pains or do you get malabsorption...
  11. ezgoindude
    MARCH UPDATES: I'll be posting this in separate sections, as I feel i'll need my own suptopic just to vent my frustrations over the past month and a half. To summarize I pretty much spent $200 to say hi to a doctor....but back to that later.... I've been on an autoimmune paleo/scd like diet since the holidays last year with mixed results, I finally...
  12. ezgoindude
    sup CFS Crusader! yeah even in my case my new GI is interested for restesting into celiac/IBD/IBS panels again, but after we get our results he feels more comfortable I still go to an allergist. If I can ask how long would you know after eating a banana or pepper your voice close? Depending on how you look at this, fortunately I dont get any respiratory...
  13. ezgoindude
    EXCITING UPDATE: My insurance kicked in, I saw a new (third) GI today, he is VERY interested to get down to at least an idea of what I have. It's funny because he didn't seem too interested until he heard my first GI doctor was in intern in the same program back when he first started. I think the competition is on! which I don't mind, it doesn't change...
  14. ezgoindude
    Sup everyone! yea, I relate alot with Mycasmommy. My blood tests were negative but I have the genes for it..... and the docs KNOW gluten is a no. But just a few weeks ago I tried to have corn tortillas for a couple days and BAM, its been two weeks and I'm just slowly getting over that decision (loose stools, insomnia, low energy). As I'm reading more into...
  15. ezgoindude
    hhhmmm.... I'm restarting my SCD diet this week and was going to follow more of Dr. Haas's recommendations of bananas being a lower source of carbs, bananas are tough as they don't seem to make me any better, but one of my top foods id love to keep around. Anyways, maybe I'll try cooking an extra ripe one! My GI Appt is this monday, well get a better...
  16. ezgoindude
    Another dude in the house, sup mang! Not like I'd wanna curse you or anything, but being a guy with a gut problem my friends think I'm a wuss, IF THEY ONLY KNEW, ha. Anyways, I know it's not the answer you're gonna wanna hear, but maybe your answer is all of the above? I'm not confirmed with celiac but inflammation and food intolerance is present...
  17. ezgoindude
    FEB 2015 update: Although probably clearly obvious for most of you, I have from my own experience realized my body cannot handle fats. As to the quality of fats and how much, I'm still in the works lol. The reason I bring this up is almond butter has always been a go to food for my smoothies, but recently I've been eating it by the spoonful and BAM...
  18. ezgoindude
    Good Evening! It was my day off this week, lots of errands and.... laundry. Congrats on two really good things tho! The tacrolimus seems to really put a mellow down on your lab work levels, but it sounds like it physically is giving you improvement as well. I had to google the weight for age papers.... surprisingly I'd never seen one before! It probably...
  19. ezgoindude
    OMG, I absolutely needed this topic in my life. Foam, we may in some ways be one in the same. I have been battling weight loss, loose sticky stools and generally reactive to a large amount of foods now for a year and a half. Although visual flattening of duodenal mucosal was sighted, going gluten free did not help. My last colonoscopy showed minor patches...
  20. ezgoindude
    Good morning! Thought I'd pass along my new 2015 update! Things have reached a plateau, I have not seen much improvement the past 6 months. Not getting any worse, but I'd wish I could gain some weight! My obamacare just got approved so I get to find a new GI starting on the 15th. My plan is to check specific vitamin deficiencies, along as trying to...
  21. ezgoindude
    Evening! Just my two cents, I don't fit the criteria for celiac so they've been hesitant to give any diagnosis, but i'll tell you what, with the smelly gas and diarrhea (which I almost always have) I started taking Pancreatin from Twin Labs (several with every meal, a few for snacks) and if you eat the right foods my diarrhea has almost entirely resolved...
  22. ezgoindude
    sup GFDC! yea i bought the hippy approved Enjoy life chips, which was soy,dairy,gluten free. My reaction must have been from either the chocolate, shredded coconut, or honey. Carob sounds great but the one at the store had soy in it, and at this point I give up on the baked sweets for now...... So depressed carrots are on your no list, lol, I need...
  23. ezgoindude
    alright mini update in my elimation diet: I've stuck with whole foods at home only, different kinds of meat and low carb veggies. I made coconut chocolate macaroons and homemade almond butter cups with chocolate during thanksgiving, I think my body DOES NOT appreciate chocolate at all because my health has been fluxuating the past two weeks. I had...
  24. ezgoindude
    sup guys! Yeah I was surprised that my body reacted so quickly, the only other ingredient that makes me scratch my head is I had ate a small cup or two of Enjoy life's chocolate chips, but that was nearly 4 days prior. Since I have cut both out of my diet, and since the l glutamine wasn't cheap, ha, I will try again in a few weeks. My last "Glutening...
  25. ezgoindude
    sup julissa! yea I bought the powdered Jarrow brand, also nothing in it but pure l-glutamine. I COMPLETELY agree on always feeling ill, but instead for me its usually what leaves my body is how I know I've reacted, such a slow torture game so far, it helps me to keep on a whole foods diet where I can mess with the variables. I don't think I was...
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