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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Questore
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ARCHIVED More Progress
Questore posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Today is my 2 year anniversary from going gluten free, and I am better. Of course, I am not as better as I would like to be...58 years of diminishing nutrition has taken it's toll. I am now on Insulin for the Diabetes that hit two years before the discovery of those nasty alleles in the family genetics when my Niece was diagnosed. It seems that not... -
I have been wondering the same. For the first time in my life, I have 1) not been suffocating all the time, and 2) my body temperature went from 97.4 average lifelong, to NORMAL at 98.6! I have found that it is very strange to be getting more healthy as I age. I went off wheat, and starting taking a lot of missing minerals. I got better. On...
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ARCHIVED How Do You Describe Celiac Disease When People Ask You "what's That?"
Questore replied to HavaneseMom's topic in Coping with Celiac Disease
Oh, Bethie...you made my day! I am still laughing!!! All fun aside, I say "I have a disease that makes wheat, rye, barley and oats burn the lining of my somach like acid, and makes me sick for weaks over one crumb. Can you help me?" I don't even need to name the disease. -
ARCHIVED Spacey/disconnected All The Time?
Questore replied to Inki's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
And I'm #3...I have had severe Brain Fog for the last 19 years, Chronic Fatigue, Fibromayalgia, IBS, Anxiety, Depression, and a dozen other things going back 53 years to when I was 6 years old! I have been Gluten Free 14 days, and have the best, most alert mind, and feeling of happiness since day 4. Not having the Fog, the Tireds, make it worth living... -
ARCHIVED Digestive/urinary Problems
Questore replied to Francis's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Dee, I've been trying to find a list of the 300 symptoms, but can't get more than the obvious, standard ten or so list. Can you tell me where to get the list? Thanks, Q -
ARCHIVED Endoscopy And Diagnosis. Why Or Why Not?
Questore replied to user001's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Having just turned 59, and being alone...no spouse, kids or family...I am looking at having to get healthy enough to live on my 5 acres in SoCal, and raise my own food indefinately, and hopefully falling over in my greenhouse, and not being found until it's far too late to do anything for me. That means a living trust, orders to be taken of at home..... -
I take something similar, and really feel my allergies galloping back in just a week, yet it takes a good six weeks to really take hold...you will need to call your pediatrician to find out how long your son's medication takes to get out of the body...it may have a higher half life than mine does. Just be ready for a heavy eyed snuffly and miserable boy...
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ARCHIVED And The Torture Begins...
Questore replied to Georgia-guy's topic in Coping with Celiac Disease
I haven't been having as much trouble as I thought I would...then I remembered, I had had intensive training for this years ago...with just oatmeal and potatoes! I did however need to go shopping this week at a normal market...you know, where they put all the pastries just inside the entrance door! Talk about wanting to holler at someone for being so... -
Red Hill Products are available on line and in quantity, and there are many online stores that speciallize in all the grains, flours, nuts, and seeds that make no-gluten breads tasty. I've ordered in several things to try in small amounts, and am relearning to bake my own breads...isn't that what bread machines are for? After I get some bread made today...
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ARCHIVED Dq Genetic Test
Questore replied to gonza8's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My apologies, KarenG. I responded to what I saw in the post...I must have been very tired. I have corrected the word stomach to upper intestines as per your correction. Thank you for your corrections. -
ARCHIVED Round Up Of Symptoms
Questore replied to UK2004's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I heard that the pain was the last to go...but that's probably for those of us with Fibromyagia - muscles stiff and cramping everywhere! Ha! It's probably what ever you need fixed most that will go away last. -
ARCHIVED What Supplements Do You Take And Why?
Questore replied to sidelined's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I take all liquid vitamins...ionic everything, plus ionic minerals of Postassium, Magnesium, Zinc, Calcium, and an Ionic Blood Sugar Support blend of Manganese, Vanadium, Chromium, Fulvic Acid, and all 72 trace minerals...four times a day in one cup of raw homemade veggie juice. Can't taste them, and they absorb before they hit the Upper GI tract. I... -
ARCHIVED Anyone Out There With Burning Diarrhea?
Questore replied to Questore's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you all! I love having a good laugh over anything. It seems to burn pretty far up, rather than at an "exit" point...but before they told me I had IBS, they told me I had Colitus, so I am not really surprised...! When I think back over the years and all the problems, and diagnoses I've gotten, I get so mad that someone didn't just think to check... -
ARCHIVED Correct Diagnosis
Questore replied to rimsch's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
CyclingLady...where can we find the list of the 300 symptoms of Celiac? -
ARCHIVED Advocating For Yourself
Questore replied to Steph1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I am glad to have you! I am not diagnosed yet...I am older and alone, and it hurts no one if I do not get diagnosed...not even me. But I am gluten-free for 6 days, and it's already worth it. I can't wait till I get to 6 months to see how much difference it makes. The difficulty for me with advocating for myself is that people do not want to pay attention... -
ARCHIVED Dq Genetic Test
Questore replied to gonza8's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Agreed. You are a classic non-symptomatic Celiac. Your stomach will degrade without you knowing it...you will get less and less nutrients from your food. You are eating a poisonous protein called gluten...you cannot escape damage if you continue to consume it. The protein acts like an acid, burning your villi off. The food slides by, and you get... -
ARCHIVED Blood Transfusion And Blood Panel
Questore replied to afitgirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
When my niece was first diagnosed after years of suffering...that was so similar to mine, that I wondered what she was complaining about...I only heard that she had to change her whole diet. One of my friends has been going gluten free because her sister had issues...not celiac disease, but gluten sensitive...I have not wanted to listen. I have not wanted... -
ARCHIVED Gallbladder Issues Related To Gluten Intolerance?
Questore replied to Aviiii's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
What scares me to death is how much we have going wrong with us, and the Medical Community barely knows what is going on! So much pain and suffering on this board...I keep praying for all of you! -
ARCHIVED Sound Like Gluten Sensitivity?
Questore replied to kshell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Who will be hurt if you do not get tested? Since auto immune is genetically linked, your family might need to know. If my niece had not been formally diagnosed, I would not even be here, and already doing well...but there is no one I can hurt by not getting diagnosed, and no medical/insurance to be compromised by not having a diagnosis. I value doctors... -
ARCHIVED The Likelihood Of Me Having Celiac Disease?
Questore replied to mbaxter2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I decided not to wait...your history is much like mine, although my early Immune Disorders are different. My niece was diagnosed, and I finally checked it out after hearing how much better she was in only a bit over a year...Fibromyalgia gone, pain, anxiety and depression, intestines doing well after only a year or so gluten-free. I'm already on Medicare...- 3 replies
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- auto-immune
- candida
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(and 3 more)
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ARCHIVED Anyone Out There With Burning Diarrhea?
Questore posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I've been noticing this for a while...a long while, but finally nerved myself up to ask...is any one having or had burning lower bowel/diarrhea unconnected with hot foods or additives? Think Chile Peppers, not that I indulge, but I've heard!!!! -
ARCHIVED Symptoms - Starving All The Time
Questore replied to Monkeygirl1337's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Has anyone heard of having type II Diabetes, and becoming normal after cutting out the gluten? I've dropped about 15 mg/dl's on average in 5 days....after being stable for ages on my previous glutenous diet! -
ARCHIVED Round Up Of Symptoms
Questore replied to UK2004's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My, you are stubborn! I am glad you are feeling so much better...have you found a pasta brand that works for you? -
ARCHIVED Igg Against Ttg 18 Month Old Babies Results....
Questore replied to brit16's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The blessing for the very young is that they heal VERY fast once you know what is wrong...I know it's hard, but keep the gluten in until all the tests are done! -
ARCHIVED Heard It On The Radio, So It Must Be True!
Questore replied to Georgia-guy's topic in Related Issues & Disorders
I guess that makes me a lefty forced to be a righty...my right handed writing leans over soooo bad to the left! Otherwise, I seem ambidextrous...I use everything on the body to avoid straining the opposite side! I have 2 AI's...waiting to see on Celiac, but niece got diagnosed as celiac disease. Day 5 of non-gluten, and actually feel more awake and less...