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danikali

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Everything posted by danikali

  1. danikali
    Okay, I just didn't know for sure. Hopefully though it's just the gluten or sulfite in these drinks that bothers me. Could it be anything else? I hope not! And is that Rain vodka gluten free as well?
  2. danikali
    Okay, good, thanks! Also, would anyone know if any other alcohol besides wine has sulfite in it? Thanks!
  3. danikali
    Hi everyone! Well, tonight I have 2 work Christmas parites! And I'm just wondering..........I read that rum and tequilla are okay for Celiacs because they contain no gluten grains at all. I'm also very intolerant to the sulfites in wine. So, do you guys know if this is true about rum and tequilla? Could it possibly be safe for me? I'm kind...
  4. danikali
    Okay, thanks for the info. Yeah, I've been having problems so long, with so many foods and drinks that I really can't imagine my life without them. I couldn't imagine being able to have some alcohol without bladder problems and stomach and back aches. I can't imagine going a regular "you know what" every day of my life. I can't imagine being able to...
  5. danikali
    Alright, well, I guess I should really get one of these books for me to start feeling better.........I'm so hungry just thinking about giving up more food...... But thank you. Do you guys know if most intolerances go away after being off of gluten for a while. And if so, how long, usually? Thanks, Danielle
  6. danikali
    OH MY GOD YOU SOUND JUST LIKE ME!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I just got through with all of the testing too, after being off and on and off and on gluten since March! Well, the blood came back borderline like you and the biopsy, NOTHING! Plus I was off of gluten for the week before and of the biopsy! I also did enterolab and got a positive IgA test...
  7. danikali
    I knew it was a joke!!!! hahahahah, kind of........
  8. danikali
    Thank you everyone so much!!! I know that first of all, I need to give my body some time because I WAS feeling better my first week gluten free/dairy free.......the black and blue marks disappeared, the muscle and joint pains subsided and the migrane was gone......... and then Sunday came and POW!!! I'm feeling a little better everyday. Not as...
  9. danikali
    I'm eating crackers and trail mix from whole foods that were on their list of gluten free items. The crackers only have like three things in the ingrediants, and that doesn't include "natural flavor" and nowhere does it have a warning about being made in the same facility as wheat, etc, etc. And it says gluten/dairy free on the box. Anyway, I know, I've...
  10. danikali
    Okay...... I just talked to the doctor. She said that all of my tests came back normal, including the biopsies. She said the only thing that was abnormal was that my colon wall was inflamed. She said that she didn't know what that could be caused from until I told her that I went through enterolab and tested positive for gluten intolerance. Then she...
  11. danikali
    Good! Because I'll probably be drinking that for Christmas dinner instead of wine! Alcohol doesn't go along with my system at allllllllll anymore! By the way, is ALL soda gluten free? Including coke, sprite, diet sodas, etc.? Thanks
  12. danikali
    Thanks! Yeah, that has to be it because it started the morning after.......... I get kind of mad.... I told my fiance and my friends that I was scared to eat anything out and that I would be fine with something to drink and I'll eat later. But they kept saying, just explain it to the waiter, you'll be fine, tell them to make everything really...
  13. danikali
    Thanks for replying everyone! Yeah, I was thinking of a couple of things. 1. We went out to eat at a resturant with friends on Saturday night and I tried to make as sure as possible they understood what gluten was.....but I don't think they ever heard of it, and it was a nice resturant! Well, I got tunafish (I told them plain, but I don't think...
  14. danikali
    Thank you! Can you tell me what you felt like after you had these tests done? Because from Sunday, until today, still, I just feel as crappy as I did when I was on the gluten challenge! And I'm so fed up with being sick! And did the gummi bears company say that they have gluten in their product?..........
  15. danikali
    Thanks for replying! Now does anyone know this answer: Because I only got a weak 16 from my enterolab results (normal<10), and those are supposed to be the most specific tests, that means that my bloodwork from my GI are probably coming back negative. Hmmmm, am I barking up the wrong tree here? Is something else going on with me that...
  16. danikali
    Hmmm.......another question! I got biopsies yesterday, and I'm wondering : Will they be accurate even though I've been on a gluten free diet for about a week before the test? I didn't know that my GI was going to do the biopsies because she said "eventually" we would if my blood tests showed anything........(she hasn't given me the results...
  17. danikali
    Hi, thanks for your replys. The vitaman water I had was that new stuff called "Vitawater" I think. Anyway, I wasn't thinking there would be any gluten in there. Maybe in the life savers chewie snacks? I have no idea. It really started all over again on Sunday and I have been sick ever since! It was shortly after I had some of that lemonade water...
  18. danikali
    Hi everyone. I know I've posted like a million times already today, but my doctor is NOT calling me back, so I don't know where else to turn right now! Okay, so I was feeling REALLY REALLY GOOD for about a week of eating gluten free. But then Sunday came and I had to do the Phoso Soda and dulcolax prep test for my colonoscopy and endoscopy....... ...
  19. danikali
    I don't know how she did them. But I know that I was going in for a colonoscopy and for the upper GI (where they go down your throat) and then when I woke up at the end, she told me she added biopsies to BOTH tests, so upper and lower. But I don't know why she isn't giving me my results on the blood. She seems a little spacey. I asked her yesterday (when...
  20. danikali
    Would a GI doctor perform a biopsy even if the blood results came back negative? I mean, is it common. See, I'm trying to ease my mind in some way because my blood results are in but MY DOCTOR ISN'T GETTING BACK TO ME ON THEM! And when I first saw her, she didn't seem like she believe I had celiac disease, but yesterday I had a colonoscopy and EBR and she...
  21. danikali
    Hi everyone! I need your expert advise on some stuff: I got a colonoscopy yesterday.........and EBR (? is that what it's called, when they go down your throat?) and biopsys on both ends that I didn't even know about. (Of course, I was on a gluten free diet for about a week, so because the doc. didn't tell me, these biopsies are probably useless now...
  22. danikali
    I COMPLETELY COMPLETELY AGREE WITH YOU! GOD CREATED ALL PEOPLE, RIGHT? THAT INCLUDES PEOPLE WITH CELIAC DISEASE......am I right? Or am I right........ Now, with this simple statement in mind, that means God had no intention of secluding people with Celiac Disease-actually, anybody for that matter...... because that is just not the God we are all brought...
  23. danikali
    WOw! Thanks for putting it that way! (the country and army!) -I like that! You HAVE A REALLY REALLY GOOD DOCTOR! Not only did he/she diagnose you from the first little sign, but he actually expalins things to you?? And in such a cute and easy to understand way?! Even better! Where do you live and what is your doctors name?! I live in NYC,...
  24. danikali
    I've had things all of my life, but they would come and go. When I was born, I was hospitalized because I couldn't take any kind of milk (mom's, formula, soy) but then had to have rice milk. At age 6, I had night tremors/panic attacks for about a year; they never found anything and it all went away. High school, I was "diagnosed with IBS and irritable bladder...
  25. danikali
    Thanks guys! Yeah, you know I didn't think about using oil instead of butter and I also just bought rice milk, which I'm loving, and that will sub. for the milk! Great! HAPPY THANKSGIVING!
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