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irish11

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Everything posted by irish11

  1. irish11
    Please help. Been suffering for 10 years prob DH...all the signs.. Been everywhere they say I don't Cant tolerate clothes can't work..blistering constantly both sides...lower back bottom thighs upper arms..endless scratching endless blisters. Who wil help. I give up ever leaving my house. No famIly. Every doc thinks I cause it. No...
  2. irish11
    forgot to add, they refill up the minute I get rid of them, in the same spot. is that typical?
  3. irish11
    I never see this as a symptom from others and wonder about it. Does anyone have balls of fluid under their skin that they can roll around? And are pushing their way out, thus forming the blister? I have burn and itch and balls that then squish right out, but they won't go back the other way. Blood comes out too lotsa times. And both...
  4. irish11
    what is the butterfly effect
  5. irish11
    Is it typical to have it run down both sides of neck and both sides of spine , down middle crack of scalp and on both eyebrows? Does oatmeal stuff come out? my doc thinks its pemphigoid...i still dont. I get full of liquid and i can move the liquid balls under my skin in the forehead or back for example....and the whole thing planes off when i push...
  6. irish11
    wow, thats interesting. I have a lot of cheese and chocolate, crud. What else is high histamine? besides milk products.......
  7. irish11
    Does anyone know if cellcept (immunosuppressants) aggravate DH or help it? I think I should stop them right now if they don't do anything. Maybe go back on pred for awhile (which I had weaned down to 5mg but im in too much pain and itch right now) cant get in to see my unfavorite doc till next week. where he will look at me puzzled and...
  8. irish11
    Thank you for your response:) Its been pure H for me these past few years, and I get angry at all the sideways avenues they have had me down. If they would just LISTEN to what you are saying as far as your symptoms throughout the day (not your 5 minute apt), then maybe with an open mind they can help you. But most of the docs appear not that way. ...
  9. irish11
    Hi there all. I was a poster here about year and a half ago I think. And you will not believe my odyssey. I am sick to my stomach with what I've been through, but I KNOW its DH now. I know for sure, with no positive test and nothing I can do about that. I remember squirmingitch was helping me a lot along with a few others and I could kick...
  10. irish11
    any good dh docs in california? a recommend please
  11. irish11

    ARCHIVED Scalp Problems

    irish11 replied to LauraZ's topic in Dermatitis Herpetiformis

    Omigosh Laura Z. What you described , describes ME perfectly this past year. Perfect description of the scalp. That has been my biggest problem. And it increases late afternoon and night. I couldnt get docs to understand that a 9 am appt would not produce that for them. I have been through h and back. And I am right back to where i started. Its...
  12. irish11
    Hi Ravenwood. On april 23 it will be 3 months gluten-free. Today I was horribly blistered on my back again. I know its not gluten because I am so tired of it, I'm pretty much doing paleo diet right now. In other words NOTHING. no soy, no grains at all, no dairy...nothing....im existing barely on plain unflavored protein and fruit and veggies, and...
  13. irish11
    Hi there. Irish here. I finally got a real dapsone prescription and have been on it for about a week. My question is, is it normal for them to be squishing out as much as ever? Seems like they are softer now, not as hard, but continuing....I have been on 100 mg. for about a week. Maybe too soon? seems the face ones are better, and the back ones...
  14. irish11
    Well I'm here (having a very bad day)....but trying to keep my chin up (well the bottom part of my chin always has bumps ALL over, but the rest of my chin). My outings are over. And nothing much changed, ha. Thanks for all the help. Hi Scott. (good name, it was my brothers). I don't know quite what to make of this thing. Is it normal to...
  15. irish11
    Thanks so much guys...I will update in a few days...THANKS AGAIN....
  16. irish11
    More questions (don't hate me) Well truth be told...I will be away next week...something with mom....and thanks for all your replies:) So i am trying to quick study some of this....yes you are right Raven...it was given with some other stuff for the chest... but being that I'm more terrified of blisters than pneumonia at this point....and i feel...
  17. irish11
    okay....i shall listen to all the wise sage squirm has for me:) and i forgot to add.....about the diagnosis thing? I forgot that the MAIN reason too i want it is because...he has no intention of giving me DAPSONE without it..i know this... from day one he says "well I dont care for dapsone so"....like...so ...what? YOU aren't suffering bud....can...
  18. irish11
    Hi squirm...yeah wasnt that shocking? WHY would i want to get diagnosed? what the hell kinda question is THAT from a doc... After he knows i've been trying for over a year anyway.... He did it wrong cuz as i told other doc he does not have my best interest at heart. he does NOT want it diagnosed, cuz that would make me right and him wrong....and...
  19. irish11
    Monkey girl.... I'm sure you have it....and im new here..... I feel your pain grrrl.. I am a bit long winded....but you can check out MY odyssey....in the DH area.... Im STILL not diagnosed either...and miserable....and just getting off gluten...im still blistering...but not as much.. its going to be trial and error i think.....it will...
  20. irish11
    Hey guys, sorry its been awhile. I got real sick for a bit on top of everything else. Yeah, a year of running around in tank tops in the middle of winter will do that to you. I TRIED to take care of all that sooner, and I knew I would get sick eventually....but there ya go. Well...I won't know official I guess until tuesday the 17th....I had the...
  21. irish11
    I hope you guys aren't sick of me yet...but can I ask one more thing? I can't remember if i asked about this or not, but should I NOT do benadryl? I've heard conflicting...that it could affect the test, or doesn't....I stopped them today , even though its just a few days before, but really, i couldn't take it much longer than that...without any other pain...
  22. irish11
    You guys are awesome:) Colleen...thats IRISH for girl right? heeheehee, cracking myself up. okay squirmy, I'm trying to hold it together.....but sticking to the plan....I'm at work right now (ssshhhhh, as long as I'm not on facebook).. and I just had a HUGE tuna sandwich....tons of tuna on wheat bread (snicker)..I am so going to pay for this...
  23. irish11
    Hey Squirm, or whoever else, hee... my deal is Tuesday....counting down....but of course.... I have done shellfish and everything and I AM producing them....just in all the wrong places...LOLOL They are everywhere UNDER my scalp now....and along my neck hairline and all over my cheek and eyebrows... whereas a month or two ago...it was mainly...
  24. irish11
    Thank you for the links! I will tool around there.....good advice! And thanks for reassurring me about the Utah deal....at first I thought "whaaaaa? the"..... as far as moms anemia...yeah....it was SO bad that she had 2 blood transfusions during a few year period...and its like... it was looked at as "ya know...as people get older" or something...
  25. irish11
    oops meant to say...dec of 13 jan of 14...im tired...lol
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