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Jays911

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Jays911

  1. Jays911
    Distilling removes the gluten. At least that is what the literature says. But I know some folks who stick to things like potato vodka to be on the safe side. I have never had any glutening issues with bourbons.
  2. Jays911
    Many of us also have thyroid issues. My thyroid shut down about 25 years ago. Looking back, I probably had celiacs all the way back then. I certainly had many of the markers of celiacs disease. If you do have to take synthroid, check out some of the online sites to make sure you get an appropriate type and dose. Good luck.
  3. Jays911
    Lee, CL is right. Get tested, and keep eating gluten until you do. The tests won't work if you are gluten free. Your symptoms track many of mine. Blessings.
  4. Jays911
    There are some good barbecue places. Dickey's is fine, as is Hog Wild, a midwest chain. There are lots of good pizza options, too. I have had horrible experiences at Applebee's. Never again.
  5. Jays911
    Endoscopies are pretty accurate. My blood work was iffy. My Doc predicted I was not a cellac, but did the scope. I am. And am glad he was willing to do the right thing. My life has been transformed.
  6. Jays911
    Lots of restaurants here in Omaha do special procedures for gluten-free offerings. One pizza chain, Uncle Maddio's, asks if it is lifestyle or celiac, and if the latter, does a complete cleanup and uses ingredients kept in separate, dedicated containers. Lots of folks are beginning to "get" it.
  7. Jays911
    Ona related topic, I ran into an old friend yesterday who runs a restaurant featuring gourmet hot dogs and Italian beef sandwiches. The topic turned to celiac disease and gluten free options, and he asked my advice on a good brand of gluten-free buns I could recommend. Anyone have any thoughts/insight?
  8. Jays911
    Target jacked the the price of the Udi's whole wheat bread at our store up to $8.99. So I tried the $5 alternative of Simply Balanced 7 grain. Really good. Tasty, soft. Good texture. Highly recommended.
  9. Jays911
    Just got back from St. Louis. Three more recommendations. LoRussos and Guidos, both on the Hill (the Italian part of town) have plenty of gluten free options, and I had no issues at all. And the folks there were happy to go over gluten-free issues with me. Also, Ted Drewes, the local frozen custard legend, has plenty of gluten-free options as well. I...
  10. Jays911
    Checked out a few places. There are tons of gluten friendly restaurants. One of my faves is Vin de Se. Both Charlie Gitto's. There is even a totally gluten free restaurant in town. Exhale. Enjoy.
  11. Jays911
    Small world department. My wife and i leave for the Lou on Friday. I have been there many, many times. We have family there, and used to go every March for the Missouri Valley basketball tournament. I have not been there since my diagnosis, but the dining scene is sophisticated there. I am sure you can find alternatives. When are you going? I can do some...
  12. Jays911
    Ken is right about talking to the chef. And, by the way, where are you traveling? I have been to a lot of places--I might even be able to give you some suggested restaurants.
  13. Jays911
    First, let them know that you are celiac, not just eating gluten free. Ask if they have dedicated procedures for their gluten free dishes. Ask if they are aware of cross-contamination. Most better restaurants are fully aware of the requirements, and more and more have gluten free menus. If you have specific concerns (e.g., is there a dedicated pot for...
  14. Jays911
    We got one of the electric coolers. It can run off either the car battery or traditional electric socket. A lot cleaner and easier to use. As far as restaurants go, gluten-free Around Me is good. I just got back from two road trips, and found lots of good and safe places to eat in Denver, Boulder, and Minneapolis. But make sure you let them know ahead...
  15. Jays911
    There is a new national chain, started by Dr. Andrew Weil, that has a location at the Cherry Creek Mall. It is called TrueFoods. Wonderful gluten-free and vegan options. Also had gluten-free pizza and salad at Pizzeria Locale (I think), which is in both Denver and Boulder. Salt and Riff's in Boulder were great and good to work with. And the best, in...
  16. Jays911
    Everybody is different. I felt tremendously better after three days. Then after a couple of weeks, I felt worse. That lasted for a few weeks, and now I feel great most of the time. It just varies. Stay the course.
  17. Jays911
    It gets better. You just have to find your own protocols and follow them. I double check everything. But I just got back from a trip to Denver and Boulder. gluten-free menus and food all over. The farmers market in Boulder had six gluten-free bakeries. Life is getting easier.
  18. Jays911
    All MLB teams have had gluten-free options available for some time now. Most offer gluten-free beer as well.
  19. Jays911
    First, don't assume her bipolar is celiac related. But I would have her reevaluated after she has been gluten free for awhile. As to depression, I suffered with it for years (decades, really), and it lifted almost completely for me within a week of changing my diet. But every one is different. Good luck.
  20. Jays911

    ARCHIVED Ouch

    Jays911 replied to darlingnea13's topic in Coping with Celiac Disease

    So many great gluten-free restaurants here. Shucks, M's Pub, 7M Grill, Mark's, Uncle Maddio's, Pie Five, Dante, Modern Love, etc., etc. We are blessed.
  21. Jays911

    ARCHIVED Ouch

    Jays911 replied to darlingnea13's topic in Coping with Celiac Disease

    I agree that it is different for everyone. My last glutening was at a restaurant, a Mexican joint on the road, where I expressly, twice, , explained that I have celiacs, and asked for corn tortillas. I learned, too late, that they had instead given me wheat tortillas. But it was a needless glutening. Oh well.
  22. Jays911
    Soy sauce caN be an issue. Most has gluten, but gluten free versions are available, and most good sushi joints now carry them.
  23. Jays911

    ARCHIVED Ouch

    Jays911 replied to darlingnea13's topic in Coping with Celiac Disease

    I don't understand this aversion to restaurants. Here in Omaha, other than fast food, most every other restaurant is supportive and easy to work with. There are many, many with dedicated gluten-free menus. As to length of time for contamination symptoms to subsiDe, it is generally a couple of hours to at most two days for me.
  24. Jays911
    I think kareng may be right. I got diagnosed this year at 61, and know, in retrospect, that I must have had celiac for at least 20 years. My energy levels are higher than they were before i went gluten-free, and I work a 40-50 hour week. My guess, too, is that there is something in addition going on. I hope you figure it out. Blessings.
  25. Jays911
    And still, no matter what you do, expect to be glutened from time to time. I got hit this weekend, and all I can trace it to is adding some vanilla flavoring to a diet coke. Corn doesn't bother me, but soy hits me hard. Live and learn.
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