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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Jays911
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I travel a lot. Get one of the gluten-free locator apps. I have had a few bad experiences, but most of the time, if you use common sense and ask questions, it is fairly easy to find safe food. The hardest places are most fast food restaurants, but they are mainly junk, anyway,
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ARCHIVED Coping Emotionally With Not So Recent Diagnose?
Jays911 replied to darlingnea13's topic in Coping with Celiac Disease
The only time i miss anything is on road trips, where almost all food choices are fast food--i.e., nothing for us gluten-free folks. So we bought one of the iceless coolers and take along our own food. It has been seven months for me, and I find it gets easier every day. -
ARCHIVED Does Symptoms Come And Go While Eating Gluten?
Jays911 replied to tammyinwv's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I would agree with Beth. Towards the end, though, just before I got diagnosed, I would get very sick every single time. From talking with others, it varies from person to person. -
ARCHIVED Depressed Over Celiac And People's Reactions
Jays911 replied to LucyGoose's topic in Coping with Celiac Disease
Most folks get it. If someone acts like that, they are not worth worrying about. Interesting how character isn't revealed. -
The depression. I can only imagine what my wife and family endured. All I know is how much better I feel now.
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I, too, find that the higher end the restaurant, the better your chances. Luckily, Omaha has a great many good to great restaurants with gluten free menus. As others have mentioned, however, it is always good to specifically address gluten-free issues with staff and to let them know that is not a choice for you, but a requirement. In addition to the other...
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ARCHIVED Not Sure If I Have It Or Not... ?
Jays911 replied to kadege's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Go back on gluten and get the scope. It is the onl way to be sure. My labs were inconclusive, but the endoscopy confirmed it, -
I am lucky. My wife went gluten-free to support me (and ended up feeling much better). But it is your life. You need to be resolute. And you can find safe food and restaurants. This ain't rocket science. God bless.
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ARCHIVED Struggling - The Hardest Part
Jays911 replied to webbooo's topic in Coping with Celiac Disease
It is a struggle, but one well worth undertaking. I have been gluten free since the beginning of the year, and feel so much better now. It takes a while, but you will find foods that are good for you and that you like. Same with gluten-free restaurants and menus. Keep the faith. -
ARCHIVED Newly Diagnosed And Hoping To Learn From You All.
Jays911 replied to kerrygirl15's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome. You will learn a lot following thIs forum. Glad you are feeling better. -
Thyroid medicine us my guess. Maybe try a substitute.
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ARCHIVED Can Somebody Confirm Something For Me
Jays911 replied to paranoid's topic in Coping with Celiac Disease
Paranoid, take a deep breath. Actually, breathing correctly helps in many ways. You will be fine. But you will still experIence sensations "normal" folk do not. Worry less . Being happy is only part physical. Count your Blessings. -
ARCHIVED Someone Gave Me Gluten By Mistake
Jays911 replied to sella's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Sorry if indeed you are that sensitive. I, too have other autoimmune issues, but a glutening episode usually takes from 2 hours to a half day for me, alThough, on occasion, a day or two. And that is what most of the folks I have talked to observe as well. But this a strange and confounding disease. Blessings to those who endure more distress. -
ARCHIVED Someone Gave Me Gluten By Mistake
Jays911 replied to sella's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You got glutened. It happens. Usually a one or two day issue. Then back to normal. -
ARCHIVED Levels Of Celiac Sensitivity
Jays911 replied to kimchrista70's topic in Gluten-Free Restaurants
Best to be careful. I sometimes think I am not that sensitive, but other times get glutened when I don't think I should. Some friends who run one of my favorite restaurants, a farm to table place, told me last week that my soup and salad were gluten-free. I got very sick after eating, and asked them to double check. Turns out there was some soy or soy sauce... -
ARCHIVED Depression, Anxiety And Low Energy Testimonials
Jays911 replied to symphonyofdreams547's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Depression was gone within three days, anxiety is 99% less, and energy is much higher. -
ARCHIVED Anxiety?
Jays911 replied to CurrantCottage's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I also dealt with anxiety and depression while on gluten. Now that I am gluten-free, that is all gone. What a blessing. Hang in there, get tested, and then go gluten-free. -
ARCHIVED Thinking You Had Cancer
Jays911 replied to Matsparks's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Some people I work with thought I might have cancer because of my horrible and persistent cough. Which went away almost immediately once i went gluten free. -
ARCHIVED Recently Diagnosed
Jays911 replied to webbooo's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
The easiest way is to go gluten-free with your whole household, and as CL observed, give others gluten with packaged goods or while eating out. You will feel better once the diet kicks in. Keep the faith. -
ARCHIVED Starting Diagnosis Process - Need Opinion For Questions To Ask
Jays911 replied to JohnMcLane's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Get the celiac checked. Might be something else, but your symptoms are consistent. -
ARCHIVED Feel Like I'm Going Crazy
Jays911 replied to pikkulintu's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Almost certainly celiac. Hang in there. -
ARCHIVED Three More Days Of Gluten...
Jays911 replied to dopaminegirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
What i miss most since going gluten free is a crusty baguette. Just my two cents. -
I am blessed my wife went gluten-free with me. I did not ask her. But she says she feels much better. Read "Wheatbelly" to understand why. It is simply a healthier diet.
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If you think the medical community understands celiac disease or gluten issues, I have a bridge in Brooklyn to sell. What I do know is that since going gluten free, my life has improved immeasurably in manifold ways. No more depression or anxiety. I sleep better. No more snoring. No more gut aches. No more coughing.
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I came at it the other way. I have had thryroid disease (hypo) for 15-20 years, and just got diagnosed with celiac early this year. Both under control and feeling much better. I think I may have had undiagnosed celiac for a number of years.