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CMCM

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Everything posted by CMCM

  1. CMCM
    Well, I've plunged into a diet that is gluten free. This is the 5th day and I already feel hugely different...for the better! Bloating/gas gone, D gone. I woke up with a mild headache the last couple of days, though, and this morning my head was itching like crazy, plus I had some other itching here and there. Strange. Is this some strange kind of withdrawal...
  2. CMCM
    If you don't have a true diagnosis in hand, it's easy to be somewhat in denial of the siituation, or to think that perhaps a little won't matter, or at worst, just cause some minor upset. My major reaction most recently really knocked me out....I got suddenly dizzy as heck, almost vertigo, felt terribly nauseated, and that lasted about 5 or 6 hours. Then...
  3. CMCM
    celiac disease is just a somewhat of a mysterious thing. My mom was diagnosed at 48 or so. Most of her life she had been "sensitive" but she didn't feel is was anything remarkable. Whatever affected her, she mostly was able to ignore. After a hysterectomy at 42, full blown celiac disease kicked in but it wasn't diagnosed for many years. Whether or not...
  4. CMCM
    I went on the Atkins diet several years ago but didn't put two and two together until now. First of all, for about the last 8 years I've been maybe 15 to20 lbs, too heavy, despite eating fairly modestly. Nothing I did made me lose any weight until I did Atkins for 6 weeks....and the weight just dropped off and I really felt great....it was just a boring...
  5. CMCM
    Speaking for myself, I guess I just have a real desire to know "for sure" about this. Some sort of confirmation. That said, from your own experience, as I've had with mine, eliminating gluten really is the proof--at least, it's proof of something: You feel better without it. You either want to feel good or you don't, it's comes down to that. My curiosity...
  6. CMCM
    I've always had a bit of a high blood pressure, even at age 20. A few years ago I had a very strange episode and my bp was really high....but I'm wondering if a big gluten reaction could have been behind it. I don't ever seem able to get my bp down to a nice low level, even with meds. Right now I'm taking a diuretic for the bp and it mostly helps somewhat...
  7. CMCM
    Guess I'll add my own story....First 6 months of my life I had terrible colic, my as yet undiagnosed celiac mom couldn't even breast feed me, cow's milk didn't work, parents finally gave me goat's milk. I guess later I could handle cow's milk, but my whole life I've kind of instinctively avoided milk....didn't want to drink it, wasn't much into ice cream...
  8. CMCM
    Just kind of curious here....did all of you always have problems your whole life, or did symptoms start at a later date? I know it can get "triggered" by something....my mom, for example, said there had been some weird incidents at various points in her life, but nothing ongoing. Than at around age 42 or so she had a hysterectomy, which would be a traumatic...
  9. CMCM
    So if it's 1 in 90, and you think of all the uncomfortable symptoms....and then people get all these various drugs both prescription and over the counter and they think they are treating their problems, and how much of the time is it really celiac and they NEVER figure it out. Amazing.
  10. CMCM
    When I was at our dr. today with my son, he gave me a bloodwork order in case I want to use it. He just put "celiac panel". So I called a local lab, and they said there are two tests for celiac: The celiac diagnostic panel which tests for Tissue Transglutaminase IgA and Igg, and the Gliadin Antibody test IgA which also includes the EMA (Anti-Endomysial...
  11. CMCM
    So you all feel that the degree of severity of the reaction doesn't necessarily have a correlation to the severity of the diease....and likewise, may not indicate how much damage is being done??? I guess I've been thinking about allergies, which I know are an entirely different animal, but with allergies one person can sneeze a bit, another might get a rash...
  12. CMCM
    Which enzymes do you take???
  13. CMCM
    This whole discussion is interesting to me. I was born to a celiac disease mother, but at the time I was born she wasn't diagnosed yet (not for another 12 or so years!), so of course she was eating tons of wheat products. She tried to breast feed me, but I was in terrible shape with endless colic. Is it possible the gluten was getting to me thru the breast...
  14. CMCM
    Does the speed of reaction indicate anything, i.e. reacting within an hour or two vs. reacting maybe as mucha s 6 or 7 hours later? Or even the next day? For example, would a person with a lesser degree of celiac disease react more slowly perhaps? Just wondering...
  15. CMCM
    I don't get this....I just today bought a bag of wheat/gluten free cookies. The "glutin Free" stuff was plastered all over the package in huge letters. Then you read the fine print on the side and it states "made in a facility that processes wheat." WHY...WHY do they do this? If they're going to make glutin free products, don't they understand cross-contamination...
  16. CMCM
    How's this for a dreary statistic about diagnosis....although it shouldn't surprise anyone here! "Celiac Disease affects 1-in-133 Americans, although only 1-in-4,700 are ever diagnosed. Treatment consists of a gluten free diet for life, which leads to a full recovery in most cases."
  17. CMCM
    I'm wondering about this....if you are regularly eating glutin you have a certain level of reaction. If you go on a gluten-free diet for a long period of time, and then accidentally get some glutin, is the reaction likely to be GREATER than it was before when you were regularly eating it?
  18. CMCM
    All I can say is that my mom is incredibly careful, but on several occasions she has totally unknowingly gotten some small amount of glutin and she got violently, horribly sick (intense vomiting which left her weak and sick feeling for days). She has mostly gotten sick when eating out, and in that situation you just can't know what the exposure is, or how...
  19. CMCM
    Well, the common thread all over this forum seems to be that the MAJORITY of doctors just don't know about celiac disease, not a darn thing. So they take the symptoms and apply them to a disease they DO know about. In this regard, not a lot has changed since 1960-something when my mom was finally diagnosed by a doctor who just happened to know about it...
  20. CMCM
    That's interesting about the BP....mine is regularly in the range you mention, and for YEARS this has been an issue for me. I'm technically not overweight, in good health other than the celiac disease stuff, don't take medicines EXCEPT....I've tried various BP meds and nothing really helped. Right now I take diuretics for BP and that helps a bit and it...
  21. CMCM
    I'm finding a lot of useful info here, but I'm still left unsure of how to proceed. I'm highly suspicious that I could have celiac disease or at least the gluten sensitivity and things do seem to be getting somewhat worse than what I've put up with my whole life until now. Tell me if I'm wrong, but it seems from what I've read that 1) blood tests aren...
  22. CMCM
    Along with the other symptoms of gas, bloating, sometimes nausea, sometimes dizziness, all of which can occur from within an hour or two of eating and then last several days, I've also noticed lately weird feeling in my feet and hands....almost a bit numb, definitely tingling, weird feeling overall. This is new....have any of you observed this with a reaction...
  23. CMCM
    I had my first colonoscopy about 6 months ago, everything was fine. My questionl is, if there were villi damage from possible celiac disease, would the doctor who did the colonoscopy see it, or if he saw it would he know what was going on and alert me? Or since he wasn't looking for this, would it escape his notice or would it be really noticeable and he...
  24. CMCM
    How about the McCanns Irish steel cut oats from Ireland? I wonder if they would have the same contamination as the typical oats you buy here?
  25. CMCM
    I'm curious how many of you can eat oats. I always thought it was a no-no, but there seems to be some discussion about it being tolerated by some celiac disease people.
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