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Latest Celiac Disease News & Research:
Everything posted by CMCM
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ARCHIVED Jelly Belly Jellybeans
CMCM replied to debmidge's topic in Gluten-Free Foods, Products, Shopping & Medications
Yahooie! I love those things...especially the cherry, tangerine and cinnamon ones! They're the only ones I get! -
ARCHIVED Undiagnosed
CMCM replied to Niteyx13's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree completely! Never underestimate the resistance within the medical community (fueled by big pharma concerns) to admit to a solution that involves dietary/lifestyle changes and not meds. And when you consider the reach of the grain industry (where do you start? Almost everything we eat is wheat based or contains some form of glutin!) which would... -
ARCHIVED Tested Once, Doubting The Results
CMCM replied to the57motz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This is really quite revealing about the nature of GLUTEN....that you could be diagnosed as NOT having celiac, yet you feel better not eating gluten! I'm thinking intolerance could just be the precursor to a full blown and identifiable condition of celiac disease, all you need is some sort of trigger at that point to set it off. After reading Dangerous... -
ARCHIVED Do I Really Have To Be That Careful?
CMCM replied to bluckii's topic in Coping with Celiac Disease
I just wanted to add a bit more....my mom was diagnosed 40 years ago at a point where she was probably fairly close to dying...she weighed 80 lbs. and couldn't keep anything down and was sick continuously. Even today, if she inadventently gets some gluten somewhere, she gets unbelievably sick....vomiting for hours, and sick for a day or two, so she is hypersensitive... -
ARCHIVED 2nd Month Gluten Free And Terribly Constipated
CMCM replied to Nancym's topic in Coping with Celiac Disease
I've got my Enterolab pick-up scheduled for noon tomorrow, and I'm half worried that I won't be able to produce a stool sample by then....I seem to be constipated at the moment. I took a couple of magnesium, maybe that will help. I'm sure I will also turn out to be casein intolerant....I've had trouble with dairy as long as I can remember, and in fact,... -
ARCHIVED Going Fructose Free
CMCM replied to ILOVEOMC's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I avoid fructose like the plague, and it's actually not that hard.....but mainly just be aware that it's in an incredible number of sweet things. You just have to read every label, basically. You can't eat a lot of prepared foods. Avoid sodas, they are chock full of it (cokes etc. used to be made with sugar, now they are made with high fructose corn syrup... -
My mom had some Ener-G gluten free pretzels at her house on Xmas....honestly, I never would have known they had to wheat! My husband couldn't tell the difference.
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ARCHIVED Anyone Else Do This At The Grocery Store?
CMCM replied to voyager's topic in Coping with Celiac Disease
Could you send me the delphi list too? I've searched everywhere but can't find it... Thanks, Carole mcm3@infs.net -
ARCHIVED Question About Symptoms
CMCM posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I've got the Enterolab test kit, but won't be sending it in until probably tomorrow. So I'm highly suspicious about things, but don't have anything confirmed yet. So here's a question for you all, because now I'm puzzled. I've been mostly gluten free (the obvious stuff) since Thanksgiving. On Friday I broke down at my favorite restaurant and had quite... -
Soy sauce kills me.....do you think it's the soy, or is there wheat in it too? I don't have a bottle here to check ingredients. I was thinking I read that Tamari sauce is similar but no wheat.
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Dan, for YEARS I thought I was just lactose intolerant. I bought the lactaid pills, but always ate dairy moderately....and whenever I did, big digestive upset etc, same stuff you mentioned. I didn't know about the casein sensitivity, and I never suspected celiac disease because I wasn't losing weight or skinny, which I thought always happened with...
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ARCHIVED Son Embarressed
CMCM replied to dwaters800's topic in Parents, Friends and Loved Ones of Celiacs
People who don't have allergies just don't get it. My son has a life-threatening peanut allergy. We'll tell people about that, and they'll say things like "OK, but can he eat peanut BUTTER??" Jeez..... My mom has celiac disease and since the day she found out she has been reluctant to mention it in restaurants, almost as if she were announcing she... -
I think a lot of it has to do with making peace with yourself about embarking on a different way of eating. Rather than focusing on all the things you can/should no longer eat, focus on creating a list of things you love and you CAN eat. For myself, I'm mainly eating fresh fruits and veggies, meats I cook myself, I find chocoate I can eat (big weakness...
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ARCHIVED Am I Being Ripped Off? Please Advise.
CMCM replied to julie5914's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Sorry, but all this stuff would really ring warning bells with me. -
ARCHIVED Prelim Tests - What Are The Chances I Have celiac disease?
CMCM replied to btf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm not a person who has a whole lot of faith in the knowledge of doctors when it comes to celiac disease. The truth is, most doctors know little or nothing about it and they haven't treated/diagnosed it before, either. If most of them even know what the heck it is, they probably only know what llittle they know because they read a few paragraphs about... -
ARCHIVED Is It Possible To Create New Food Intolerances
CMCM replied to danikali's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
CELERY?? I've never heard it mentioned before as problematic!!! -
ARCHIVED Ever Pass Out From Eating Wheat?
CMCM replied to bigapplekathleen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I had been eating really minimal gluten before Thanksgiving, and then one evening and next day I had a major gluten fest, and late afternoon that second day I suddenly got unbelievable dizzy and nauseated, and I had to lay down for about 5 hours before any of the dizziness lifted. I was so dizzy I was even spinning with my eyes closed, and it was horrible... -
ARCHIVED Test Results Are In From Biopsy
CMCM replied to Rae's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
This is really outrageous, that insurance co's would make a stink about a dx of celiac disease!!! I've never heard of that before, but now I'm having second thoughts about testing my 19 year old son. He had met his deductible this year and I was going to get the test since it wouldn't cost much at this point, but maybe I won't. If I decide to test him... -
ARCHIVED Confused About What I'm Reading...
CMCM replied to Rachel--24's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
In addition to my suspected problems with wheat/grains, I know I have problems with dairy...whether or not it was connected to the untreated gluten issue remains to be seen. Soy is something I've really never eaten at all. However, I've been dairy free since Thanksgiving, and I was horribly missing my cappuccinos, so I read on a coffee site about how to... -
I am still trying to sort out all my sensitivities, but I can tell you for sure that I am also highly sensitive to sugar and I feel so much better when I keep it out of my diet. I basically do not eat any at all any more, just on very rare occasions, and once it's out of your system staying away from it isn't such a problem. I still want certain sugary...
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ARCHIVED Another Question About Reactions
CMCM replied to CMCM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That's really funny about the belching ...my mom was just telling me a story about when I was around 6, and we had all been sick with some sort of flu, and we were all better including me, but I starting belching LOUDLY and violently to the point they took me to the doctor about it, and it went on for quite a long time. I don't remember that, and haven't... -
ARCHIVED Anyone Newly Diagnosed Starving?
CMCM replied to danikali's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
The valuable thing I have found about losing weight, gluten-free or otherwise, is that SUGAR is the devil for hunger, as are carbs without protein to modify and balance them. As soon as I cut sugar pretty much totally out of my diet, and I made sure to always eat a good carb item WITH some kind of protein (for example, an apple and a piece of string cheese... -
ARCHIVED Front Page Of Wall Street Journal
CMCM replied to 4getgluten's topic in Publications & Publicity
The article said celiac disease can lead to Type 1 diabetes....that's wrong, isn't it....shouldn't it be Type 2 diabetes?? -
ARCHIVED Another Question About Reactions
CMCM replied to CMCM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
And I noticed last night, in addition to the nausea, I just felt really weird....my lips were almost numb, fingers and feet tingling, felt weak, definite palpitations, mildly dizzy. But no real D or digestive distress at that point. In the past I've had that horrible pain, not exactly in the stomach but higher up. I always assumed it was some sort of heartburn... -
ARCHIVED Another Question About Reactions
CMCM posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Just wondering here....if you have been gluten free (or relatively so) for a few weeks, and then if you get some gluten (small amount, not intentionally) accidentally....would the reaction be GREATER and more noticeable than it would have been when you were eating gluten all the time? I'm sort of feeling that since I've been gluten free, I'm suddenly more...