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frustratedneicey

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by frustratedneicey

  1. frustratedneicey
    Hi everyone. All summer I went to cookouts, couldn't eat 99% of the food of course, but what made it worse was watching everyone drink cold, frosty beer. Where can I find gluten-free beer and is it any good? Thanks, Denise
  2. frustratedneicey
    I myself get very painful pimple-like blisters on my scalp,back of my neck, upper back, and forehead when I use shampoos that contain wheat. They become almost like boils, but when I asked my doctor about it, he looked at me like I am nuts (what's new) So, I took it upon myself to stop using those shampoos. Cover girl blush gives me those blisters on...
  3. frustratedneicey
    I DEFINATELY get more sick now that I am gluten free. I would NEVER, EVER, purposely eat gluten because I know how I will react. Before I knew I had Celiac Sprue, I had alot of diarrhea, and felt washed out all the time, but now, one little crumb in my peanut butter, by a kid who can't read my name on the lid, and BAM, I get horrible, horrible stomach...
  4. frustratedneicey
    Tiffany, It was not you who made those comments. I recognize your name and know for a fact it was not you. I am not sure what the lady's name was, but I know it was not you. Denise Thank you for asking. As far as Celiac is concerned, I am doing very well. A few cross-contaminations here and there, but I recently had a endoscopy for gastritis...
  5. frustratedneicey
    I am not a doctor, but I am sure that many food allergies carry the same effects.In fact, I am going go back to my allergist to finish off my testing because I am sure that I am allergic to some other foods. There are times when I am 100% certain that I have not been glutened, yet I get the same or close to the same reactions. My advice is to look into...
  6. frustratedneicey
    Hi. I have not been on here on a regular basis, but I want to say a few things. I want to thank all who have been supportive and helpful and sympathetic. I have had good experiences on this board for the most part. I also want to welcome all new members and say that please don't be discouraged if you get one poster who is not so supportive. This happened...
  7. frustratedneicey
    I am sorry for your illness. I have always worked in the medical field, so I know somewhat about ALS. I hope that the gluten free diet eases some of your pain. If you are feeling a difference after 3 days, I know that a few weeks will make a great difference. Good luck and God Bless. Denise Gail, making an appointment with a Neurologist will help to...
  8. frustratedneicey
    Well, where do I begin. About 5 years ago, I had bad bouts of really debilitating fatique and weakness. There were times that I would end up in bed thinking I had the flu, and just so weak I couldn't function. A doctor told me I had "fibromyalgia" and left it at that. This happened on and off for about 3 years until it totally affected my work and my...
  9. frustratedneicey
    I have Multiple Sclerosis, so those kind of sensations are the norm for me. But, my neurologist told me that Celiac disease and the reaction to gluten actually causes similiar symptoms, which in my case, makes them twice as bad. But I just wanted to let you know straight from my neurologist, they are normal occurences and I hope your neurologist studies...
  10. frustratedneicey
    Wow. What an appropriate time for me to read this topic. It has been 1 1/2 years since I have been on the gluten free diet. I have been doing so well, never purposely eating anything forbidden on purpose. I had completely lost the urge to eat anything but gluten free foods. Then, yesterday, at a family gathering, someone brought out a homemade apple pie...
  11. frustratedneicey
    HI Everyone, I haven't been on here for a while. I had been feeling better, and I thought that I was finally coping with my diet. (also been very busy with school) But, since I went to the store last night, I have been pretty ticked off. It seems that my local Weis Markets had decided to start putting wheat starch in the cereals I have been eating for...
  12. frustratedneicey
    Thank you all for your advice and comments. I had to take the hycosamine last night because I woke up at 1:30 am with terrible pain, diarrhea,and vomitting.....again. (don't know what is going on) It did absolutely nothing for me! I felt like I was having a baby. I actually woke up my daughter with my crying and moaning. And I am so sick of having to...
  13. frustratedneicey
    Hi. My doctor prescribed Hycosamine (sp?) for severe abdominal cramps for the times I may get glutened. (happened 2 nights ago, could not bare the cramping) It hasn't happened for about 4 months, but I was reminded the other night how bad it is when it does happen. I have these pills now and I wonder has anyone else ever taken this? Does it work? Does...
  14. frustratedneicey
    I would bet that it was the artificial sweetener that got to you. It does the same to me. You even have to watch sugar free gum.. Many of these foods contain sorbitol, which is a laxative. Nice.....no wonder sugar free makes you skinny, it makes everything run right through you!!!!!! Denise
  15. frustratedneicey
    Supplements are very good. The only thing I take are calcium, a multivitamin and B12, (when I remember to). But the thing is, when I forget, I know I forget, because I feel drained more than usual. I take a prescribed med for my fatigue for another illness, but it has such a strong, unnatural feeling, so much different than supplements. Give your boyfriend...
  16. frustratedneicey
    Thank you. I just called my doctors office and left a message for him to give me a prescription for when this happens. Doesn't happen too much anymore, but ya know how people say you forget the pain of having a baby? well......I remember it well when this happens, it is absolutely unbearable. Denise
  17. frustratedneicey
    Hi Heather, I haven't been on here for awhile, but i just wanted to let you know when I read your letter, I felt like I was reading about me. I have been gluten free for a year now, and I have felt ALL of those things you do. I have had melt downs with my boyfriend and what I thought to be "inconsideration" turned out to be "just not understanding". Now...
  18. frustratedneicey
    Hi everyone. My 17-year-old daughter is going to have a "Celiac Panel" run on her today at the lab. Do you know if a child comes up for showing they have Celiac, do they do the biopsy, or do they just recommend they start the diet? Also, I somehow got glutened and was up at 2 am very very sick, and in horrible pain. I will vomit when I have this intense...
  19. frustratedneicey
    Thanks! I live in Jacobus, so that's only 20 minutes away!! Denise
  20. frustratedneicey
    Hi. Last week I went for a follow-up with my GI for the first time in a year since I was DX with Celiac. Last year, I thought he may be a little unsure about Celiac, but last week it was confirmed. He looked at me like I was an idiot when I told him how sensitive I am to cross-contamination,etc. He didn't understand how I could be so sensitive. What...
  21. frustratedneicey
    Hi. I don't know if this will help, but I am in the process of waiting for an appeal hearing with social security as we speak. I have celiac disease, along with MS and major depression. So I got kind of a triple whammy going here. It is very hard to get SSD, and chances are at first you will get denied, but SS lawyers will take your case if they think...
  22. frustratedneicey
    I'm joining in with the group of angrys!! I don't think it is the disease itself that makes me so angry. Believe me, I was really sick for years. I think what makes me angry is the limited choices of food, and the cost. Yes, I could cook long meals from scratch, (and I love to cook) but I also have MS and my fatique just zaps all my energy from me. I...
  23. frustratedneicey
    I would like a copy also. Thank you so much! Denise
  24. frustratedneicey
    I am an anxiety riddled mess most days, so I know how it feels. Sometimes medicines can help, but you did mention maybe therapy. A really good therapist can work with you and teach you some great coping skills. I finally found a good one I just started seeing recently. Find someone who will work with you, that works with people who have chronic illness...
  25. frustratedneicey
    Jessica, The prep for this procedure is actually worse than the actual procedure. Once I got past the prep and the IV, and was wheeled into the room, I talked to my doctor for a minute, and BAM! I woke up and it was over. I have had worse trips to just go and have my blood drawn. Believe me, it is not that bad. I am pretty new to this forum, but you...
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