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dopaminegirl

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by dopaminegirl

  1. dopaminegirl
    Apologies for my over-reaction. As the shampoo exposure was only for a couple week or so, I doubt any lab tests would have indicated exposure. Unfortunately, since I didn't have the antibodies, I can only rely on my symptoms to tell me if I've been exposed. I'm fortunate enough that eliminating gluten (and dairy) from my diet completely fixed my...
  2. dopaminegirl
    The reason I think it was the shampoo? Process of elimination. Our house is almost entirely gluten free (except for this shampoo which slipped through the cracks until I read the ingredient label). My husband has bread that he eats at lunch, but he practices something that resembles aseptic technique from the lab when he's making his sandwiches. He's...
  3. dopaminegirl
    I also can't have dairy but through a series of experiments and a lot of research I think I've pinpointed my problem. It may or may not be the same for you, but I thought I'd share. There are two kinds of beta-casein protein A1 and A2. We'll call A1 "bad casein" and A2 "good casein". The two proteins differ only in a single amino acid, but this is enough...
  4. dopaminegirl
    I'm a scientist, and I did a little research into the study. Looks valid and it was published in a respected journal. Open Original Shared Link The science looks solid. As someone who didn't have a super clean cut diagnosis before going gluten free, I'd love to see something like this become available. Then again, there's no doubt in my mind...
  5. dopaminegirl
    I've actually been glutened by shampoo with hydrolyzed wheat protein, and I wasn't even the one using it. It was my husbands! I swear I don't go around eating my husbands hair. I am pretty sensitive though, so it's entirely believable that the trace amounts in his hair were getting onto his and my hands and then making its way to my mouth, etc...
  6. dopaminegirl
    I love light yoga when I'm recovering from a glutening. I understand how hard it is to get back into exercise when you're just beginning to recover. I find that yoga engages my muscles in a pleasant and non stressful way and it definitely helps with the aches I usually encounter post-glutening. I try to walk as much as possible, take the stairs. Exercise...
  7. dopaminegirl
    Some of the artificial sweeteners used in gum are actually used as laxatives in larger doses, especially the sugar alcohols (usually ending with -ol, e.g., sorbitol, xylitol, erythritol). We also tend to have more sensitive stomachs, so it might not take much to set yours off.
  8. dopaminegirl
    There is some very interesting research out there with regard to the benefit of Omega 3s for inflammation. Most of these clinical trials use doses that it would be difficult to achieve with diet alone. I personally take fish oil because generalized inflammation seems to be a big problem for me. As long as you're taking a gel capsule you can see through...
  9. dopaminegirl
    RLS is significantly more prevalent among the celiac population than the general population, so I think there's definitely a correlation. Unfortunately, it doesn't aways go away once you go gluten free. There's also a link between RLS and inflammation, and, for me at least, most of my post-glutening symptoms can be linked back to generalized inflammation...
  10. dopaminegirl
    Hi Dave, I'm glad your starting to feel better. My gluten challenge did a similar thing to me, and low fodmap is the only way to get relief. I did learn from past experience that eventually I'll heal enough that I can start eating normally (minus the gluten). Do onions kill you? They destroy me. I look forward to the day that I can eat JUST gluten free...
  11. dopaminegirl
    For the curious, I want to add that I had elevated liver enzymes (AST and ALT) back in October, when I was only recently gluten free. They tested for everything that could possibly cause elevated transaminases (fatty liver disease, hepatitis, Wilson's, Lupus) and found nothing. The enzymes were back to normal in February after a couple months gluten...
  12. dopaminegirl
    Thank you everyone. Finally got to see the biopsy summary for myself. He took at least 6 in a duodenal sweep, and 6 from the bulb. It looks like the increased intraepithelial lympocytes (Marsh I) were fairly diffuse across both. I've asked how the IEL counts compare between this biopsy (post gluten challenge) and my first biopsy (6 months gluten free). Hopefully...
  13. dopaminegirl
    So, after a murderous 7 week gluten challenge, my bloodwork came back negative (DGP, TTG and EMA). My EGD showed increased epithelial lymphocytes, and other tests have ruled out all the other possible causes of IEL. Between my symptoms when I was eating gluten, my positive genetics, and the lackluster biopsy, my doc has decided that we should treat this like...
  14. dopaminegirl
    Nope!
  15. dopaminegirl
    Thanks Laura
  16. dopaminegirl
    Mom sent me an email this morning. Martha Stewart's on the gluten-free band wagon! Her latest newsletter came with a bunch of recipes for gluten-free goodies. Cool, ok, I'm down with that. But then you see the rest of the newsletter. Open Original Shared Link I would just like to say that having the next thing under all the gluten free articles...
  17. dopaminegirl
    One of the problems that first sent me in search of a diagnosis was some pretty severe stomach cramping that I finally identified as an intolerance to the allium family (onions, garlic, etc.). It was hard cutting them out, but we did and some (but not all) of my pain went away. after about 10 months gluten free (because it made me feel better, not because...
  18. dopaminegirl
    ...then I start my fast for the endoscopy/colonoscopy and say goodbye to gluten forever. Any suggestions for what I should eat over these last couple of days? Any recipes that desperately need to be tried before I toss out my All Purpose flour, once and for all? I'm definitely excited to be off the gluten wagon, but I'd like to give it a proper...
  19. dopaminegirl
    So, no going in to work. Good to know. Kareng- I'm getting an endoscopy done at the same time. I've already had one to identify an ulcer, and my duodenal biopsy came back as Marsh 1 (not definitively celiac) but at that point I had been gluten free for about 8 months. Because my GI symptoms still haven't resolved all the way (I suspect due to the fact...
  20. dopaminegirl
    Hi everyone, I've got my first colonoscopy coming up on May 1st. I know a lot of you have had them done in the process of getting a diagnosis, so I was hoping you could answer my questions. My prescribed prep is 2 liters of NuLytely between 5 and 6 pm the night before my colonoscopy (following a day of clear liquid fasting), and then the next morning...
  21. dopaminegirl
    Okay, time for the medical history breakdown: test, normal range, my results October 2014, at this point I'd been mostly gluten free for about 4 months 10/2/14 Westegren RBC Sedi Rate 0-20 mm 6 10/2/14 Metabolic panel (selected results) Protein 6.0-8.3 g/dL 6.8 Albumin ...
  22. dopaminegirl
    Thanks Sharon. Your story definitely sounds familiar. Cristiana, I'm not sure what you're asking. I have access to my test results so once I'm back to my home computer I can give you a more precise answer. Can you clarify? Thanks!
  23. dopaminegirl
    Forgot to add: I've been treated for depression anxiety for about 6 years. It's mostly under control, but once the challenge started it reared it's ugly head again.
  24. dopaminegirl
    Hello everyone, this is my first time posting, but I've really learned a lot from these forums and they've really helped me get through the past year. Skip to the bottom for my question, but I thought I'd give a little background. My story definitely isn't as bad as some. About a year ago I started having some GI issues following a mild virus and through...
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