Jump to content

Dark Angel

Advanced Members
 View Profile  See their activity

  • Posts

    15

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Dark Angel

  1. Dark Angel
    I finally received a diagnosis. I tested positive for Lyme Disease and two other tick associated infections. It explains everything for me and wanted to thank everyone for their support.
  2. Dark Angel
    Is this standard of care? It sounds promising but not sure how to talk to the MD about it. I was ridiculed with the mention of leaky gut so not sure what to do with all this information. Thank you for your post.
  3. Dark Angel
    I have had many neurological symptoms as well to the point of having a work up for MS. I will be seeing a neurologist for a complete evaluation. There is an association with celiac and autonomic neuropathy as well as other conditions that have been mentioned in other posts. In addition to other supplements mentioned, what has helped me the most is collagen...
  4. Dark Angel
    That would depend on your health plan. You might want to message your PCP and GI MD and see what they recommend. Some plans will refer to allergy/immunology. You can also inquire about an elimination diet to see what you tolerate. Again, depending on your coverage, they might offer that under a MD's protocol, a referral to a nutritionist or to complimentary...
  5. Dark Angel
    Look up FODMAPS. That might clarify things for you. There really are a lot of diet recommendations so make sure you bring a list of questions regarding foods to your doctor's and dietician's appointments.
  6. Dark Angel
    Look into The Paleo Approach by Sara Ballentyne, PhD. Great resource and will probably answer your questions. I have the same problem. You have to really read labels. The only coconut milk I can use is an organic canned one. Others have too many ingredients that are problematic. For now, stay with meat and vegetables as someone else has recommended....
  7. Dark Angel
    I was told by the allergist that there are not tests currently for food intolerance, just testing for allergies. Maybe it depends on the practitioner that you go to. That would be a relevant question as well as histamine intolerance testing/treatment when choosing a practitioner. It is helpful to keep a food log with reactions for reference for yourself...
  8. Dark Angel
    You might want to consider seeing a functional medicine physician. There are many immune pathways and some allergies/sensitivities do not show up on traditional skin or blood testing but one can still be reactive and not have celiac disease. From my understanding, they are more familiar with this presentation of symptoms. Good luck and hope you find some...
  9. Dark Angel
    I recommend the guidance of a health professional. From my experience, the naturopathic doctors are more familiar with this. If you want to do some of your own reading, try The Autoimmune Solution by Amy Myers, MD and The Paleo Approach by Sarah Ballantyne, PhD. There is a lot of information out there. It is straightforward for me if I have allergies...
  10. Dark Angel

    I just got the test results from the endoscopies and no celiac.  I went to the allergist today and he did not want to test me for MCAS because a previous tryptase test was normal.  He did skin testing and although the skin tests were negative, I had a full allergic reaction to somethings out of the six.  Even though I became hoarse, short of breath, chills, raynoud's symptoms, swollen lip and burning mouth he denied allergy.  Gave me a zyrtec and sent me home.  I have no other options.  My only thoughts are going on a low histamine diet and staying on zyrtec until things balance out.  I hope soon,  I have lost 30 pounds which puts me very much underweight.  The main reason for this message is to thank you for the information on MCAS,  Even though I will not be tested or believed, I have found the direction I need to take.  And I cannot thank you enough.  There is an old saying that if you save one person, you save a world.  

     

     

  11. Dark Angel
    Thank you. I just had the endoscopies done, multiple biopsies so hopefully will have some answers soon.
  12. Dark Angel
    At this point, I just go with symptoms. Angioedema trumps all for me. All foods listed by other posts are intolerances for me as well causing flare up of GI symptoms, joint pain, etc. so I avoid them. I found this book a great resource: The Paleo Approach Reverse Autoimmune Disease and Heal your Body Ballantyne, Sarah Her website...
  13. Dark Angel
    Thank you, everyone for all the information. It will help me move forward in navigating the system which has been extremely challenging.
  14. Dark Angel
    I tried going back on gluten for the testing and had to stop first day because of angioedema. So, no, I haven't tested positive and did wonder about the biopsies. Where ever I am on the autoimmune spectrum, I know that gluten is a huge problem for me. Thank you for the information and about mast cell activation. I will ask. As far as how I am managing...
  15. Dark Angel
    From my understanding there are a lot of foods that cross react with gluten. If you have been sick for awhile, it can be hard to digest a lot of other foods. Also if you are on any medications, you might want to check with the pharmacist to see if they are gluten free. Even so, I have heard it can take up to two years for the small intestine to heal. ...
  16. Dark Angel
    I am waiting to have an endoscopy to test for celiac. I have had anaphylactic reactions to foods and now multiple chemical sensitivities requiring an inhaler. This has all happened within the last year along with many other symptoms that seem related to celiac disease. I have been following an autoimmune paleo diet since September which has been amazing...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.