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TestyTommy

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Everything posted by TestyTommy

  1. TestyTommy
    I had lots of sleep problems before going gluten-free. It took a few months til it got significantly better. I'm 8 months gluten-free and still having problems sleeping. I haven't slept through the night in over nine years, but it's getting better. So be patient. Especially if you've been damaged for many years like a lot of us, it will take many months...
  2. TestyTommy
    Extreme thirst was one of my celica symptoms. Other people too --- there are several threads about it on this site. After about 8 months without gluten I'm drinking a lot less, but still more than normal. One caution: drinking lots of water can actually make you thirstier! i ended up in the hospital with hyponaetremia, which is what happens to you if...
  3. TestyTommy
    Carla's right. Iodine is not part of salt naturally; it is added to most salt as a supplement. Years ago, people were not getting enough iodine in their diets, so someone came up with the idea of adding it to salt. It's similar to milk having added vitamin D in it. It's not naturally there; the govt just decided that's a good place to put it. If by...
  4. TestyTommy
    Drinking too much water can lead to a condition called "hyponaetremia", which literally means "not enough sodium". I know because it put me in the hospital a few years ago. I didn't know what was wrong and went to the ER, where they diagnosed me with the flu, gave me some liquid (!) and sent me home at 3:00 am on Sunday morning. I was still miserable...
  5. TestyTommy
    I've often wondered about the relationship between the explosion in vaccines and the increased number of people with allergies, asthma and autoimmune disorders. My own symptoms started shortly after completing the HepB series. It makes sense that flooding a person's body with lots of different vaccines, all of which are supposed to stimulate the immune...
  6. TestyTommy
    If you have DH, you have celiac. Period. Many people with DH do not have any GI symptoms. About 20%of people with DH have a negative intestinal biopsy. Like Fiddle-Faddle said, the real test for celiac is whether you get better when you quit eating gluten.
  7. TestyTommy
    Hi Parrot! Yes, absolutly you can have DH without any GI symptoms. For some people, the GI symptoms start later (like me, for instance), and some people never get any GI symptoms. You might want to check out the book "Celiac Disease - a hidden epidemic" by Peter HR Green. (He's some big shot at Columbia medical school) He says that not only do many...
  8. TestyTommy
    I'm not going to tell anyone NOT to get tested for diabetes or to eat a lot of sugar (I eat virtually no sugar besides what I get from fruit), but my experience has been that doctors will immediately test you for diabetes if you tell them that you are urinating frequently. Then, when you test negative (as I did --- eight times!) they dismiss your symptoms...
  9. TestyTommy
    Mine is low, too. Below the bellybutton; I usually describe it as the front of the pelvis. Any speculation on why we feel it in different places?
  10. TestyTommy
    Oh yes, I also forgot to mention the unquenchable thirst. When I first got sick, I said that it felt like all of the water had been sucked out of my body. Since going gluten-free, my thirst has definitely diminished. Since I've had the skin problems for so long, I expect it will take a long time to heal. But you folks have helped make me feel more optimistic...
  11. TestyTommy
    I've had 'chronic idiopathic urticaria' and 'chronic idiopathic pruritis' for 8 years. I know exactly what you're going through --- try to imagine living with it for all those years! A few months ago, a new doctor suggested this (and my other problems) may be celiac. I've been gluten-free for about 6 weeks, and I've felt significant improvement with...
  12. TestyTommy
    I've had extremely dry skin, eyes, mouth, etc. for years. I don't know if it's connected to celiac, but I hope so. I've been gluten-free for about 6 weeks. My stomach problems and sleep problems have improved a lot over that time, but I've seen no change in the dryness. It was the first symptom I noticed --- almost 8 years ago now --- so I figure it may...
  13. TestyTommy
    I had a similar experience. I think it takes time for the gluten (or the effects of the gluten) to work its way out of your system. I went gluten-free for about 6 weeks (after a long-term low gluten diet) and was feeling much better, including sleeping better and waking up earlier. Then I went back on gluten for a week and felt miserable. I'm at about...
  14. TestyTommy
    Lemonade, Check out the FAQ on the mainpage of this website. There is a section addressing the question of how much gluten you need to be eating in order for the blood tests to be valid. As I read it, it works out to a slice of bread for every 18 pounds of bodyweight for 2 months before the tests. There are many 'self-diagnosed' celiacs on this...
  15. TestyTommy

    ARCHIVED Whey Protein

    TestyTommy replied to lemonade's topic in Sports and Fitness

    Right --- whey protein is made from milk. Most protein powders are made of a blend of whey and casein. So if you are sensitive to casein (as many celiacs seem to be) be careful. Even if the name of the product is 'whey protein', read the ingredient list (I'm guessing we all have practice in label reading!) "Whey Protein Isolate" is pure whey --- not...
  16. TestyTommy
    I'm dreaming significantly more since going gluten-free. I, too, was one of those people who never dreamed. Now I dream most nights. I am sleeping more deeply and getting more rest, too. I think the increase in dreams is related to spending more time in deep sleep, which is the only time you dream. I've used melatonin in years past, with no increase...
  17. TestyTommy
    Same here! It seemed like the strangest thing, but apples and orangesdefinitely disagreed with me. I thought I was just being paranoid, but I guess I'mnot.
  18. TestyTommy
    Sorry to hear about your appointment. I suspect alot of us have alot of stories like this. But we underdstand. Whenever I've complained about idiot doctors to my (healthy) friends, they just patronize me and say, "Well, if the doctors says there is nothing wrong with you, then there must not be anything wrong with you." But keep trying. Doctors are...
  19. TestyTommy
    Check out the FAQ section on this website. For the blood test to be accurate, the patient should be eating 0.3 of gluten per kilogram of body weight for 2 months before the test. That works out to about one slice of bread for every 18 pounds of bodyweight. If you're on a gluten-free diet, the test will probably be negative. That's why so many people...
  20. TestyTommy
    For years and years, I never had any dreams while I slept. After going gluten-free, I started having dreams again/ Some were 'nightmares', some were just weird. For those of you post, have your dreams changed and gotten scarier, or are you just having/remembering more dreams. My guess is that I'm sleeping more soundly, so I'm (happily) spending more...
  21. TestyTommy
    I have this problem, too. I get up 2-4 times per night to urinate. I also need to urinate every 60-90 minutes during the day, couple with an unquenchable thirst. I was noticably less thirsty and needed to urinate less after about 6 weeks gluten-free (where I am now), both during the day and during the night. Anyone else notice less thirst/less need...
  22. TestyTommy
    How long did it take until you noticed a difference in your sleep patterns?
  23. TestyTommy
    I'm a newbie, and I've been going through the message board archives to learn more about celiac. One of the things I've read in several places is that you are supposed to eat about 3 slices of bread for 3 months in order for the celiac test to be accurate. Does anyone know the origin of the "3 slices for 3 months" rule of thumb? I ask because on the...
  24. TestyTommy
    Kim, I hope you're still reading the boards, because this sounds a lot like what I've had for the last 7+ years. Only recently have some of my other problems indicated that I have celiac disease. But I have lots of experience dealing with itching! First, use a lotion with lanolin and NO fragrance. My favorite is Vaseline Intensive Care "Advanced...
  25. TestyTommy
    I've never read any theories as to why gluten affects our sleep, but it certainly does. I'm a newbie, but after about 3 weeks gluten-free, I'm definitely sleeping better. Instead of getting up 3 times a night to go to the bathroom, I only need to get up once or sometimes not at all. And my sleep seems 'deeper' somehow. My experience with gluten is that...
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