Jump to content

TestyTommy

Advanced Members
 View Profile  See their activity

  • Posts

    130

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Your Trusted Resource for Celiac Disease & Gluten-Free Living Since 1995

Everything posted by TestyTommy

  1. TestyTommy
    Absolutely. It's a huge change in how we live. I don't understand how people can think of it as a 'choice'. I'm a celiac; I can't eat gluten. It's not that I 'choose' not to eat gluten. (And is anyone else getting an eerie vibe from this? Change 'celiac' to 'gay' and re-read this thread. . . .)
  2. TestyTommy
    I have absolutely no idea how people can think of celiac as a 'lifestyle choice'. It's a disease. If we eat gluten, we get sick and we will eventually die. I suppose there are people who have celiac and still eat gluten, but I can't imagine why. It's like slamming a door on your finger over and over again. You know it breaks your finger, but you keep...
  3. TestyTommy
    I checked out Cooqi yesterday. It's on the corner of Marshall and Cretin, right across from Town & Country golf course. It's very easy to get to once you know where it is. (My friend had told me it was near Selby & Dale, which is why I couldn't find it when I looked once before. It's about 4 miles from there!) The items are limited by most...
  4. TestyTommy
    Hi everyone! My name is Tom and I live in downtown Minneapolis. Thanks for the link to Cooqi. A friend of mine told me about this store last week. (The owner is apparently a friend of a friend). I tried to find it last weekend, but let's just say that my friend is 'directionally challenged'. I drove around St. Paul for an hour and a half and couldn...
  5. TestyTommy
    Well said, Jerry. And I'm right there with you. I was sick for 8+ years and lost pretty much everything in the world that mattered to me. And the doctors just kept telling me that it was all in my head, that I was 'stressed', and that I need to be pumped full of anti-depressants. I don't have any 'official' diagnosis either, but after a year of being...
  6. TestyTommy
    As I understand it, no one knows why some people get autoimmune diseases. They are definitely genetic, but some people get them and some people don't. One theory is that you inherit the potential to get an autoimmune disease, and then there is some sort of trauma to the immune system that triggers the disease. A lot of us can identify some sort of trigger...
  7. TestyTommy
    I had a similar response. When I first went gluten-free, seeing or thinking about gluten-y foods made me incredibly hungry. It went away after a few months. Now, I'm not tempted at all.
  8. TestyTommy
    My understanding is that a first degree relative is a parent, sibling or child of yours. And if you have the celiac gene, it had to come from somewhere. That means either your mom or dad is carrying it. Any advice on how to convince family members to get tested? Like some of you, my mom and sister absolutely refuse to get tested. My sister just tells...
  9. TestyTommy
    My doctor told me that anyone who has a chronic illness has to go through a mourning or grieving phase: you're grieving the loss of your old, normal life. And the last thing you want to hear when you're grieving is that "it's no big deal" or "turn that frown upside down". Self-pity is a necessary step in coming to grips with a disease like this. That's...
  10. TestyTommy
    I can usually tell pretty quickly --- 30-60 minutes. It starts with a grumbling in my belly, often accompanied by a sharp pain. The bloating and brain fog come later.
  11. TestyTommy
    ^^^ That makes us even; I hate doctors! I've got a variation on the night sweats. I've been gluten-free almost a year. I was sick about 9 years before going gluten-free. During that time, I was always hot. Even in the dead of winter in Minnesota, I was trying to find ways to keep cool. The problem was that I couldn't sweat. Even a little bit of...
  12. TestyTommy

    ARCHIVED Huuungry

    TestyTommy replied to peasoup's topic in Coping with Celiac Disease

    Gluten makes me hungry, too! I get this dry feeling in my mouth, and no matter how much I eat, I feel hungry again in a half hour or so. I got glutened yesterday (I ate in a restaurant; the meal seemed gluten-free, but that familiar feeling hit soon after) and have been starving ever since! I'd almost forgotten this feeling. I'm roasting a turkey...
  13. TestyTommy
    Brian, Make sure you are getting enough electrolytes, especially salt. If your electrolytes get out of whack (as they did for me), drinking water will actually make you thirstier. The reason is that the water doesn't get into your cells, because it needs the electrolytes to get through the cell membranes. The more you drink, the more dilute your blood...
  14. TestyTommy
    I've been gluten-free about 10 months, and I've also been a little disappointed in my recovery. On the other hand, I feel WAY better than I did a year ago, so that's a positive thing. In my case, I was undiagnosed for at least 8 years, so I figure it will take me longer to heal than fpr people who were diagnosed more quickly. My belly feels much better...
  15. TestyTommy
    My urination frequency reduced too. Mine was never as bad as 5x an hour; it was more like once an our. But I'm still not normal ---- yet!
  16. TestyTommy
    Thanks, Brian. I'll stick it out for a couple of weeks and see what happens. Besides, what's a little belly ache and GI distress to a celiac??
  17. TestyTommy
    Add me to the list of people who react to probiotics. I started taking one a couple of days ago. I got a stomach ache and felt bloated & gassy. Then I got the big D. It was similar to a gluten reaction, except when I was on gluten, I felt bloated and gassy, but could never pass any of the gas. This gas is definitely passing. Will this wear...
  18. TestyTommy
    I'll echo what others have said about being cautious about seeing psychiatrists. My experience is that they take a 'drug first' attitude. Antidepressants can be helpful for some people --- those who have some sort of chemical imbalance that's causing their depression. But those of us suffering with the emotional effects of celiac disease won't be helped...
  19. TestyTommy
    I did this liver flush thing about 2 years ago, before I found out that I have celiac. My girlfriend pressured me to see a witch doctor, and I agreed in order to preserve domestic harmony. It didn't hurt me, but it didn't help. It's basically complete BS. Don't do it. I'm sure there are legitimate naturopaths out there who are sincerely interested...
  20. TestyTommy
    This thread is making me hungry! I'll echo the previous post about keeping things simple. I basically eat meat, rice, fruits and veggies. It gets boring sometimes, but, when you think about it, it's a pretty trivial adjustment if it gives you your life back. It helps me to think of food as a drug --- "If I ingest this, what will happen to my body?"...
  21. TestyTommy
    The same thing happened to me about 2 years before I was diagnosed with celiac. Eating gluten made me very thirsty, and I drank so much water that I ended up in the hospital with hyponaetremia (low sodium). It is a very serious condition, and the ER doctor who figured it out (only after I returned to the ER twice and refused to leave) told me I was a few...
  22. TestyTommy
    I agree that B vitamins (esp B6) are important, but consider thay you might be dehydrated. I had exactly the same problem: wake up after a few hours sleep, feeling like I had to urinate, but not thinking that was the problem. I even tried not drinking for a few hours before bed, but that just made me wake up earlier. What 'worked' to some extent was...
  23. TestyTommy
    I absolutely agree about the danger of vaccines. The most likely trigger of my celiac was that frickin' HepB vaccine. Is really mysterious that the number of kids with asthma and allergies have skyrocketed at the same time that we require them to get more and more vaccines? (Most of which they don't need BTW. As for your immune system, I think I know...
  24. TestyTommy

    ARCHIVED Why Water

    TestyTommy replied to DVK's topic in Coping with Celiac Disease

    I have no idea WHY I drink so much, but like some of you other celiacs, I was drinking about 4 gallons of water/day before I went gluten-free. Now, after about 8 months gluten-free, I still drink about 2 gallons. Hopefully, that means I'm healing. I'll echo the previous poster --- if you're drinking a lot of water, watch your electrolyte balance. A...
  25. TestyTommy
    I've been gluten-free for 8-9 months now. I feel better, but not well. I'll go through periods where I'm pretty energetic and can function almost normally, but then I'll have periods (like right now) where I am very fatigued and have trouble doing much of anything. My intestinal problems are pretty much gone; it's the fatigue, sleep problems, allergies...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.